CGDAssociation of America

10/05/2026

Thanks Crystal CGD & Bone Marrow Transplant Journey ❤️🙏 Mallory Byrd Give an Hour Key to CGD Ximena G. Champion Beyond The Diagnosis Art Exhibit Katrina

10/05/2026

Thanks Crystal ❤️🙏 Mallory Byrd Give an Hour Key to CGD Ximena G. Champion Beyond The Diagnosis Art Exhibit Katrina

10/04/2026

☕ Coffee & Careers TONIGHT
Join the CGD Association of America’s new Coffee & Careers series with Nathan as he shares more about building an impressive career while pursuing his passion for music and living with CGD.
📅 Sunday, October 4th
🕗 8:00 PM ET
💻 email us at [email protected] to register and receive the Zoom link

All members of the rare disease community, clinicians, and industry are welcome to attend to learn, grow, and connect.

09/23/2026

Thanks to Julie Wells of Give an Hour for our wonderful “Coffee & Careers” Zoom talk last night and for partnering with The CGD Association of America to provide free counseling to our community.

Our and prove every day that it is possible to have a meaningful career and too while living w/ .

Thank you to Amgen for sponsoring our CGD Coffee talks and to everyone from across the nation and around the world who joined us. ❤️⏳

09/19/2026

☕ New season, new you! 🌱
Join the CGD Association of America’s new Coffee & Careers series with Give an Hour for a virtual workshop supporting those navigating changes in work, school, or life.
📅 September 21
🕗 8:00 PM ET
💻 email us at [email protected] to register and receive the Zoom link
MentalHealthMatters CareerSupport LifeTransitions

09/04/2026

08/28/2026

Our latest blog kicks off our new series "Coffee & Careers" features Nathan who has built an impressive career while pursuing his passion for music and living with CGD.

Join our Coffee & Careers Zoom call on Sunday October 4th to meet Nathan, share your own experiences, and meet other fellow working members of your community.

Before that, join us on September 21st at 8 PM EST, for a special Coffee & Community workshop featuring Julie Wells of Give An Hour, a CGDAA partner organization. Julie is experienced in holding impactful workshops to help patients explore options, discuss challenges, and find pathways forward. Julie can also point to resources and programs at Give An Hour, including mental health programs and wellness activities, that can help you in your journey.

A New Series from the CGD Association of America

07/18/2026

Hooray Remember The Girls!

Remember The Girls raised $10,000+ to advance X-Chromosome Reactivation Research through their fundraising initiative, Miles In May.

06/25/2026

Join us at the IDF conference in San Antonio, TX on June 26 at 3:30 PM to learn the latest in and

05/06/2026

Exciting news! Professor Claire Booth of and Dr. Morna Dorsey of will present the following posters on ’s latest research in during the Clinical Immunology Society Annual Meeting! Visit their website (www.clinimmsoc.org) to find additional details about this year’s meeting and poster viewing sessions.