The Kortney Rose Foundation is a 501(c)(3) charity that raises awareness and research funding for pediatric brain tumors, the #1 cause of death by disease in children. The foundation was created in loving memory of our 9 year old daughter Kortney Rose Gillette who died in 2006 from one of the most rare and deadliest forms of brain tumor, Diffuse Intrinsic Pontine Glioma (DIPG) in her brain stem. T
hrough the foundation we've created Kortney's legacy of helping other children with brain tumors through the promise of research. In 2007 we built a playground at her school, Wolf Hill Elementary School, in 2009 worked with the NJ Legislator to have May declared as Brain Tumor Awareness Month in the State of New Jersey and are responsible for donations of over $2 Million Dollars to pediatric brain tumor research. KRF was one of the founding supporters of the 18+ institution collaborative Children's Brain Tumor Tissue Consortium (CBTTC.org-Providing free and open access data to find a cure for pediatric brain cancer) operated out of the Children's Hospital of Philadelphia​, that helped to launch the first ever pediatric data cloud called CAVATICA (Democratizing Access to Pediatric Genomics Data). Only about 4% of funding from the National Institute of Health (NIH) goes to fund all pediatric cancers. That's right, 96% to adult cancer research and 4% to kids! It's foundations like KRF that are funding this gap to accelerate research findings for better/less toxic treatments and cures.
