VWD Connect Foundation

04/11/2026

If you’re planning on attending the conference and the free member appreciation day, remember time is running out to register! To join us on member appreciation day you must be registered by April 15. 

03/18/2026

Registration is now open for the 2026 severe von Willebrand’s disease patient conference!

03/06/2026

Know someone going off to college that's a part of the bleeding disorder community? 📚 Make sure to check out our March newsletter- it's full of scholarship opportunities (and application deadlines) you won't want to miss!! Happy Friday 🫠

Monthly newsletter for Foundation Members living with severe von Willebrand disease

12/06/2025

11/10/2025

Send a Message to our Providers! 🙌 💌 🌱

Please click the link to complete this form.

11/10/2025

This weekend is our Provider Education Workshop, where providers from around the country will gather to learn about severe VWD! Help us show them how much their dedication means by submitting a few words of support that we will display (anonymously) throughout the Workshop! 👇 🌱

Please click the link to complete this form.

11/04/2025

November's issue is overflowing with gratitude, growth, and good news 🍁 - and it's our biggest issue yet!
Read our November Newsletter for info on our upcoming Provider Workshop, new and updated clinical trial opportunities, & more!

Monthly newsletter for Foundation Members living with severe von Willebrand disease

10/08/2025

We're heading up to Northbridge, MA for our 💙 2nd Annual Golf Tournament 💙! Luckily for the competition, we'll be too busy taking pictures to show off our golf skills... 😉 ⛳️

  We are so excited to host the 2nd Annual VWD Connect Golf Tournament on Friday October 10th, 2025. The Tournament will be held at Shining Rock Golf Club in Northbridge MA and begin at 8:00am with a shotgun start. Registration opens at 7am. To read more about Our Story with Von Willebrand diseas...

10/02/2025

October Newsletter is here!!! 🎃
This issue we explore the surprising wellness benefits 🌱 that come from watching horror movies 🎥 🍿, and hear from one of our Members how she uses her imagination to overcome fear.
🙌 💓 Read today on our Website!

Monthly newsletter for Foundation Members living with severe von Willebrand disease

08/22/2025

It's been a month since our NINTH Annual Patient Conference and we're already counting the days to see everyone again! 📆
Click the link below for a look at our 2025 featured "Spark Station" activities, lots of pictures, and information about more upcoming events in our August Newsletter! 😎

Monthly newsletter for Foundation Members living with severe von Willebrand disease