VWD Connect Foundation

10/10/2026

We’re kicking things off with a spark at our Provider Education Workshop🔥🔥🔥

10/05/2026

Calling all providers 📢📣📢📣📢 We’re talking to hematologists, RNs, physical therapists, genetic counselors, social workers, OB/GYNs, orthopedists, and more!!

We still have a few spots remaining for our 3rd annual Provider Education Workshop held in West Palm Beach, FL on October 9-11!
Registration is free and all meals and hotel stay are covered by the foundation.

Click the link below for more information and to register. We’d love to see you there!

Events for those living with severe von Willebrand disease

09/21/2026

We think it’s safe to say the petting zoo was a hit at our summer conference! 🐷🐰Who wants to see it return next year? 👀

09/10/2026

Want to learn more about who we are? Check out this video to hear from our patients about living with severe VWD and learn about what VWD Connect Foundation is doing to help.

Severe VWD is an ultra-rare, chronic condition that poses unique ch...

08/10/2026

We’re excited to announce that registration is now open for our 3rd annual Provider Education Workshop held in West Palm Beach, FL from October 9-11! Please visit the link below for more information and to register.

Events for those living with severe von Willebrand disease

07/19/2026

VWD Connect Foundation’s own Dr. Tung Wynn conducted an oral presentation of the foundation-sponsored Consensus Definition for Severe Von Willebrand Disease at the 2026 International Society of Thrombosis and Hemostasis (ISTH) Congress on Sunday, July 12th in Paris, France.

At ISTH Congresses, thousands of the world’s leading experts on thrombosis, hemostasis and vascular biology come together to present the most recent advances, exchange the latest science and discuss the newest clinical applications designed to improve patient care.

Congratulations and great job Dr. Wynn!

07/03/2026

We had an amazing time celebrating our 10th conference! 🎉

Thank you to all of our attendees, staff, faculty, and industry partners who helped make the weekend so memorable.

A special shoutout to the attendees and staff who have been part of all 10 conferences. What an incredible milestone! 💙

Whether you’re a longtime Foundation member, a first-time attendee, or someone interested in getting involved, VWD Connect Foundation is here to welcome you. We can’t wait to see you at future events!

06/22/2026

We have made the decision to limit comments on this post. Please reach out to us directly with any questions or concerns.

As VWD Connect Foundation celebrates its 10th annual conference, we want to take a moment to share a message from the director regarding an interaction that occurred during this patient conference:

A group of non-conference attendees was taking a video in the conference area when our staff asked them to leave. We want to take responsibility for the way our request was communicated. It was discussed why we wanted them to exit the marked restricted area before what is shown in the video, and Jeanette, our director, explained the sensitivity of our conference. We have responded to the original poster explaining the situation and our intent and apologized for how it was communicated. Our number one goal is to prioritize patient confidentiality and privacy while attending this conference. Our mission is always to support you. We appreciate your understanding.

04/11/2026

If you’re planning on attending the conference and the free member appreciation day, remember time is running out to register! To join us on member appreciation day you must be registered by April 15. 

03/18/2026

Registration is now open for the 2026 severe von Willebrand’s disease patient conference!