Singing at the Top of My Lungs

Singing at the Top of My Lungs Taking the Stage to Cure Cystic Fibrosis Empowering Teens to Reach for their Dreams

12/02/2025

This , you can deliver joy. 🩵
Just $30 helps fill a Feel Better Box with the healing power of music to a child who needs it most. Donate now at the link in bio.

Last week I had the honor of keynoting at Akron Children’s Hospital for their Cystic Fibrosis Family Education Night in ...
09/15/2025

Last week I had the honor of keynoting at Akron Children’s Hospital for their Cystic Fibrosis Family Education Night in Akron, Ohio.

I shared my journey living with cystic fibrosis — the challenges, the triumphs, and the power of community and innovation that makes it possible for patients like me to thrive.

Thank you Akron Children’s for creating space to bring families, patients, and providers together in support of one another. Opportunities like this remind me of the importance of sharing our stories to foster connection, resilience, and hope. 💙

Help us spread joy — one Feel Better Box at a time ✨📦
08/17/2025

Help us spread joy — one Feel Better Box at a time ✨📦

At Singing at the Top of My Lungs, we believe in that refuge — in the way a melody can hold you, comfort you, and remind...
08/13/2025

At Singing at the Top of My Lungs, we believe in that refuge — in the way a melody can hold you, comfort you, and remind you you’re not alone. 💛 Through music therapy and our Feel Better Boxes, we share that comfort with children who need it most.

When music turns a hospital room into a stage 🎶 Karaoke party in full swing thanks to our Feel Better Boxes! 🎤🩵 These ro...
07/01/2025

When music turns a hospital room into a stage 🎶 Karaoke party in full swing thanks to our Feel Better Boxes! 🎤🩵 These rockstars lit up the room—and our hearts.

This is our why 🩵
06/24/2025

This is our why 🩵

Dropped off 20 Feel Better Boxes at Dell Children’s in Austin with their incredible music therapy team 🎶💛 Grateful to wi...
06/11/2025

Dropped off 20 Feel Better Boxes at Dell Children’s in Austin with their incredible music therapy team 🎶💛 Grateful to witness the power of music and joy in action — one box, one smile, one song at a time.

Another Feel Better Box off to the music therapy department at Johns Hopkins All Children’s Hospital in Tampa!! Big than...
04/10/2025

Another Feel Better Box off to the music therapy department at Johns Hopkins All Children’s Hospital in Tampa!! Big thank you to Cheryl and the sisters of for packing the boxes and hand delivering them today 🩵

🎶💖 A little music, a lot of joy! This rockstar is turning her hospital room into a stage with her Feel Better Box karaok...
03/29/2025

🎶💖 A little music, a lot of joy! This rockstar is turning her hospital room into a stage with her Feel Better Box karaoke mic—because music has the power to heal, uplift, and bring smiles when they’re needed most. ✨🎤

Every box we deliver is designed to lift spirits and bring comfort to children facing tough times.

In honor of we are looking back at past moments advocating for cystic fibrosis on Capitol Hill - a reminder of why thi...
03/01/2025

In honor of we are looking back at past moments advocating for cystic fibrosis on Capitol Hill - a reminder of why this mission is so close to our hearts. is proud to support rare disease patients through our Feel Better Boxes, bringing comfort and joy to those who need it most. 💛🎶

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Wayne, PA
08226

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