05/01/2026
✨ Welcome to Once Upon a Wolf Foundation!✨
At Once Upon a Wolf, our mission is rooted in awareness, compassion, and advocacy for individuals and families affected by Wolf-Hirschhorn Syndrome (WHS).
WHS is a rare genetic disorder caused by a deletion of genetic material on the short arm of chromosome 4. It is often characterized by a distinct facial appearance, developmental delays, intellectual disability, and a range of health challenges, including seizures and heart defects.
Because WHS is so rare, awareness is everything. By sharing knowledge and educating others, we can help promote earlier diagnoses, improve access to critical medical and therapeutic resources, and ultimately enhance the quality of life for those living with WHS.
Through awareness, education, and support, we aim to empower families, inform communities, and encourage research that leads to better understanding and care. Together, we can create a more inclusive and compassionate world for individuals with WHS.
Thank you for being here and supporting our journey. 🐺🧡
