HS Coalition

HS Coalition Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from HS Coalition, Nonprofit Organization, Washington D.C., DC.

The Hidradenitis Suppurativa Coalition (HSC) unites leading research and policy initiatives to drive awareness, address disparities, and improve outcomes for those affected by HS.

10/28/2025

On October 4, Times Square lit up with something bigger than lights, it lit up with the power of the HS community. 💜

HS Connect - Hidradenitis Suppurativa Connect's event brought patients, advocates, and allies together to show the world what visibility really looks like.

From education and connection to the bold From Patient to Person runway, this was history in motion and proof that HS patients are no longer invisible.

We’re proud to stand with this unstoppable community. 💪

This World Mental Health Day, we’re standing together during Mental Illness Awareness Week to say: you are not alone.💙 1...
10/10/2025

This World Mental Health Day, we’re standing together during Mental Illness Awareness Week to say: you are not alone.
💙 1 in 5 adults in the U.S. experiences a mental health condition each year.
💙 1 in 3 people living with HS experience depression.
That’s why the HS Coalition is sharing resources made for you:
-Healing Space on HS Connect:A mental health resource created by the community, for the community. (https://hsconnect.org/healingspace/)
-MHA’s Free Mental Health Screenings: a quick, private way to check in with yourself. (https://screening.mhanational.org/screening-tools/)
-988 Su***de & Crisis Lifeline: call, text, or chat 988 anytime for free, confidential support.

Community is where healing begins. Let’s keep building it together.

It’s National PA Week! 🎉 From Oct. 6–12, we’re honoring the Physician Associates who go beyond every day.PAs are often t...
10/07/2025

It’s National PA Week! 🎉 From Oct. 6–12, we’re honoring the Physician Associates who go beyond every day.

PAs are often the ones treating people living with HS providing compassionate care, expert treatment, and hope. Across the U.S., nearly 190,000 PAs deliver more than 590 million patient interactions each year that’s a huge impact on healthcare access.

💙 Join the celebration: Nominate a PA who goes beyond! Share your story and thank the PA who has made a difference in your life or community. https://www.aapa.org/pas-go-beyond/nationwide-physician-associate-impact/

09/25/2025

As Dr. Hamzavi shares in the video: “HS patients have endured so much, yet they remain optimistic and collaborative. They’re a joy to care for and they inspire me personally.”

Dr. Hamzavi is a distinguished dermatologist with expertise in pigmentary disorders and HS. He serves as senior staff at Henry Ford Health System, teaches at Wayne State University, and has authored over 300 publications.

Beyond his clinical and research work, he’s been a driving force in patient advocacy co-founding the Global Vitiligo Foundation and serving as past President of the HS Foundation.

We’re honored to have him leading HSC’s Federal Advocacy Committee, guiding efforts to advance policy, awareness, and care for HS patients nationwide.

Imagine this: Your HS medication costs $2,000. A nonprofit or drug company helps cover $1,500. You pay $500.But then you...
09/22/2025

Imagine this: Your HS medication costs $2,000. A nonprofit or drug company helps cover $1,500. You pay $500.

But then your insurance company says: “Only your $500 counts toward your deductible. The $1,500 doesn’t.”

That means you’re still stuck paying thousands more before your insurance actually kicks in. This is what’s called a copay accumulator program.

The HELP Copays Act would fix this. It makes sure all copay assistance counts toward your deductible and out-of-pocket maximum so you aren’t paying twice.

What you can do:
Contact your Member of Congress and ask them to support the bill
Share your HS story about medication costs
Use

Together, we can protect the HS community from unfair costs.

Find your Representative here: https://www.house.gov/representatives/find-your-representative
Get their contact info here: https://www.house.gov/representatives

Hurley Stage II (Moderate HS) marks a turning point in the disease, when symptoms become harder to ignore. Patients may ...
09/18/2025

Hurley Stage II (Moderate HS) marks a turning point in the disease, when symptoms become harder to ignore. Patients may experience recurrent abscesses causing sinus tracts (tunnels) beneath the skin, and scarring.

Treatment options at this stage can include:
Anti-inflammatory medications
Corticosteroids
Antibiotics
Biologics
Hormone therapy
Minor surgical procedures

Recognizing Stage II is important for timely treatment with the right care, flare-ups can be managed, and progression to more severe disease may be prevented. Find a HS specialists in your area here: https://www.hs-foundation.org/hs-specialty-clinics

Images used with permission from HS Connect.

We’re excited to introduce Brindley Brooks as the Communications Committee Chair of the Hidradenitis Suppurativa Coaliti...
09/16/2025

We’re excited to introduce Brindley Brooks as the Communications Committee Chair of the Hidradenitis Suppurativa Coalition (HSC)!

Brindley, the Founder & CEO of HS Connect - Hidradenitis Suppurativa Connect, has been living with HS since childhood. Her personal journey, from years of silent suffering to finding strength through surgery and advocacy, gives her a unique perspective and deep empathy for others in our community.

She’s passionate about resilience, honesty, and connection, values that drive her work at HSC as she helps us elevate awareness and support for everyone living with HS.

We’re honored to have her leadership and dedication on our team.

Living with Hidradenitis Suppurativa (HS) isn’t just about skin flares, it’s about living with the emotional and mental ...
09/10/2025

Living with Hidradenitis Suppurativa (HS) isn’t just about skin flares, it’s about living with the emotional and mental health challenges that come along with them. Depression, anxiety, and even suicidal thoughts are more common in HS, but no one has to face this alone.

This ***dePreventionDay, here are ways to find support:
Talk to your dermatologist or a mental health professional about HS and its impact
Join a HS support group to connect with others living with HS
Explore HS Connect’s Healing Space for tools and encouragement (https://hsconnect.org/healingspace/)
If you or someone you know is feeling hopeless, overwhelmed, or thinking about su***de, call or text 988 (US Su***de & Crisis Lifeline)

Together, we can raise awareness, reduce stigma, and support every person living with HS.

Find more HS organizations here: hs-foundation.org/patient-organizations

09/05/2025

Meet Dr. Steven Daveluy HSC Board Treasurer and passionate advocate for the HS community.

As he shares in the video: “HS is a disease that can interfere with every aspect of someone’s life. To be able to give someone their life back warms my heart and gives me purpose.”

Dr. Daveluy is an Associate Professor & Program Director of Dermatology at Wayne State University, where he blends clinical expertise with a commitment to teaching and mentorship. At HSC, his leadership helps ensure we can keep advocating, educating, and supporting those living with HS.

We’re honored to have him on our Board.

Back to school with HS can be tough, but you don’t have to do it alone.We’ve put together resources to help:Use the HS d...
09/02/2025

Back to school with HS can be tough, but you don’t have to do it alone.

We’ve put together resources to help:
Use the HS description letter to explain HS to your school
If food is a trigger, send the HS food trigger petition letter

Both are available here: hsconnect.org/preparing-for-back-to-school-with-hidradenitis-suppurativa/

Share this to spread awareness and support HS students this school year.

We’re thrilled to introduce Jasmine Espy, Founder & CEO of The Association of Hidradenitis Suppurativa and Inflammatory ...
08/28/2025

We’re thrilled to introduce Jasmine Espy, Founder & CEO of The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID), as a Member At-Large of the Hidradenitis Suppurativa Coalition (HSC) Board!

Jasmine is a bold and compassionate advocate who has redefined what it means to lead with purpose. From producing groundbreaking documentaries and hosting national summits to working with pharmaceutical companies and uplifting underserved voices, Jasmine is helping to reshape the conversation around HS.

Her storytelling, advocacy, and leadership are grounded in lived experience and fueled by a commitment to justice and healing. We’re proud to work alongside her in the fight for a world where no one suffers from HS in silence.

Understanding the early stage of HS is crucial for timely treatment and managing symptoms effectively. The Hurley stagin...
08/25/2025

Understanding the early stage of HS is crucial for timely treatment and managing symptoms effectively. The Hurley staging system helps classify HS severity, with Stage 1 involving single or few painful nodules or abscesses without scarring or tunnels. If you or someone you know is experiencing these symptoms, consulting a dermatologist early can prevent progression and improve quality of life.
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Images in this post are used with permission from HS Connect.
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