Kamara Sickle Cell Project

07/26/2026

🇱🇷 Happy Independence Day, Liberia! 🇱🇷

Today, KaSp (Kamara Sickle Cell Project) proudly joins all Liberians in celebrating 179 years of independence.

As we honor our nation’s history, resilience, and progress, we also reaffirm our commitment to improving the lives of individuals and families affected by sickle cell disease across Liberia through awareness, advocacy, education, and empowerment.

May this Independence Day inspire renewed hope, unity, and a healthier future for every Liberian.

Happy Independence Day, Liberia! ❤️🤍💙

— From all of us at KaSp (Kamara Sickle Cell Project), an initiative of MTS Sickle Cell Foundation.
Advocacy Empowerment Liberia

07/26/2026

Sad!

We are deeply saddened by reports of the death of 17-year-old Mamadou Djouma Bah of Guinea, who lived with sickle cell disease and died after developing complications while in custody. Our hearts are with his family and loved ones during this unimaginable time.

Regardless of the circumstances that led to his detention, every person deserves timely, appropriate medical care—especially individuals living with chronic, life-threatening conditions like sickle cell disease.

Sickle cell disease is not "just pain." A crisis can rapidly become life-threatening without prompt recognition and treatment. Delays in care can have devastating consequences.

This tragedy reminds us why:

🔸️Healthcare access must never be compromised because someone is incarcerated.

🔸️Correctional facilities and law enforcement personnel need education on recognizing and responding to sickle cell emergencies.

🔸️Every healthcare provider should understand that sickle cell complications require urgent medical attention.

🔸️Compassion and dignity should remain at the center of care for every person, everywhere.

At MTS Sickle Cell Foundation, we continue to advocate for better awareness, equitable healthcare, and systems that recognize the seriousness of sickle cell disease.

No family should have to wonder whether their loved one would still be alive had they received the care they needed.



SOURCE: https://www.bbc.com/news/articles/cn0nykz6lweo

07/11/2026

📅 SAVE THE DATE! ❤️🩸

MTS Sickle Cell Foundation, Inc., in collaboration with The Kamara Sickle Cell Project (KaSp), is excited to host our upcoming SCD Awareness Fundraiser Cookout!

🎟 Sign up here:
https://www.eventbrite.com/e/sickle-cell-disease-awareness-fundraiser-cookout-tickets-1992031090616?aff=oddtdtcreator

07/04/2026

06/23/2026

World Sickle Cell Day in Liberia! Thanks MOH and all the partners!

06/21/2026

💙 Happy Father’s Day! 💙

Today, we celebrate the strength, love, and dedication of fathers everywhere, especially those who support and care for children and families affected by Sickle Cell Disease.

Your sacrifices, encouragement, and unwavering presence make a lasting difference. Thank you for being a source of hope, resilience, and inspiration.

From all of us at Kamara Sickle Cell Project (KaSp), we honor and appreciate you today and every day.

Happy Father’s Day! 👔💙

StrengthAndHope FathersDay

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📍 FB: Kamara Sickle Cell Project

06/19/2026

Today, on World Sickle Cell Day, we stand in solidarity with millions of individuals and families affected by Sickle Cell Disease around the world.

As someone living with Sickle Cell Disease, I understand firsthand the challenges, pain, and resilience that come with this journey. Through the Kamara Sickle Cell Project (KaSp), our mission remains clear: to raise awareness, advocate for better care, empower patients and families, and ensure that no one living with Sickle Cell Disease feels alone.

This day is not only about recognizing the struggles faced by those living with SCD but also about celebrating their strength, courage, and determination. It is a call to action for governments, healthcare providers, communities, and individuals to work together to improve access to quality healthcare, education, screening, and support services.

To every warrior and caregiver: your story matters, your voice matters, and your life matters. Together, we can break the silence, fight stigma, and build a future where every person living with Sickle Cell Disease has the opportunity to thrive.

Thank you to MTS Sickle Cell Foundation, supporters, volunteers, and advocates who continue to stand with us in this important work.

Awareness • Advocacy • Empowerment

Happy World Sickle Cell Day!

Karen Kamara Schaack
Founder, Kamara Sickle Cell Project (KaSp)

Follow us: IG: Kamara Sickle Cell Project | FB: Kamara Sickle Cell Project
To support our mission, please call: 785-323-8040.

06/19/2026

🩸 Today, on World Sickle Cell Day, we honor the courage, resilience, and strength of every Sickle Cell Warrior. Together, let’s raise awareness, advocate for better care, and empower those living with SCD. Every voice matters. Every life matters. Not just today, but EVERYDAY!!❤️

WorldSickleCellDay KaSp SickleCellAwareness HopeInAction AwarenessAdvocacyEmpowerment