The Autistic Self Advocacy Network

05/19/2026

On this day in 2020, we lost Stacey Park Milbern, a fierce advocate and activist who taught us about disability justice, love, organizing, and so much more. Spend a moment today with some of her most important works here: https://disabilityvisibilityproject.com/2020/05/23/staceytaughtus-syllabus-work-by-stacey-milbern-park/

05/17/2026

The Trump administration wants to make a rule change that would decrease or end benefits for SSI recipients who live with their family. As many as 400,000 disabled people may have their benefits cut if this rule change occurs.

A rule change pushed by White House officials would slash benefits or end support for as many as 400,000 Supplemental Security Income recipients with Down syndrome, dementia and other disabilities whose parents or relatives receive SNAP benefits.

05/16/2026

States are starting to implement Medicaid policy changes due to last year’s budget bill. This article explains what changes will be happening and what that means for disabled people.

It is early 2026, and we are starting to see states begin efforts to implement changes to their Medicaid policies because of the “One Big Beautiful Bill Act of 2025 (OBBBA).” The legislation, now Public Law 119-21, will cut almost $1 trillion from Medicaid over the next 10 years and will have si...

05/15/2026

Applications are now open for the 2026 Teighlor McGee Grassroots Mini Grant Program! These grants are for self-advocates who are interested in making the world better for people with disabilities. Learn more and apply by July 31, 2026! https://autisticadvocacy.org/teighlor-mcgee-grassroots-mini-grants/

05/14/2026

Update: As of May 12, South Dakota has also dropped out of the Texas v. Kennedy lawsuit. If you live in one of the 7 remaining states on the lawsuit (Alaska, Montana, Kansas, Missouri, Texas, Louisiana, and Florida), use our action alert to push your Governor and Attorney General to do the same!

05/13/2026

Many of us need accommodations in order to work. But getting workplace accommodations can be hard to navigate. Join us for a webinar on Thursday, May 28th at 4pm ET with Marissa Ditkowsky to learn all about labor rights! https://us02web.zoom.us/webinar/register/WN_jAVHAOOdS1i8bO3rK9nsVA #/registration

05/12/2026

Over 400 million people have been impacted by Long COVID. But Long COVID is still being underdiagnosed and underreported. This article explains some of the reasons why Long COVID is underreported and how researchers and advocates are working to change this.

Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries (LMICs).

05/11/2026

Keeping up with complicated lawsuits that impact our lives can be really difficult! It makes sense that there’s misunderstandings or outdated info going around. Let's clear up some info about Texas v. Kennedy. Then, you can take action with our action alert! https://autisticadvocacy.org/2026/02/take-action-to-protect-disability-rights/

05/10/2026

Check out ASAN’s Executive Director Colin Killick on the Disability Matters podcast with Joyce Bender!

2 likes. "Disability Matters with Joyce Bender"

05/08/2026

ASAN is working to fight misinformation about autism from this administration. Check out this article that interviews ASAN’s Zoe Gross. The article highlights some of our work, including our recent project, “Autism, HHS, and Public Health.”

Health officials in Trump administration were accused of fueling ‘crisis of public trust’ over autism and vaccines

05/07/2026

Update on Texas v Kennedy — advocates in Indiana convinced their state to drop out of this case!

Let’s keep going — if you live in Alaska, Montana, South Carolina, Kansas, Missouri, Texas, Louisiana, or Florida, take action to get your state to do the same!

https://autisticadvocacy.org/2026/02/take-action-to-protect-disability-rights/