Coalition to Transform Advanced Care

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Coalition to Transform Advanced Care

+190 organizations making sure Americans receive care consistent with their values and is funded by grants and the support of members.

The Coalition to Transform Advanced Care (C-TAC) is dedicated to the ideal that all Americans with advanced illness, especially the sickest and most vulnerable, receive comprehensive, high-quality, person- and family-centered care that is consistent with their goals and values and honors their dignity. We will achieve this by empowering consumers, changing the health delivery system, improving pub

lic and private policies, and enhancing provider capacity. Founded by Co-Chairs of the Board of Directors, Tom Koutsoumpas and Bill Novelli, C-TAC is a nonprofit, non-partisan organization based in Washington, D.C. Visit http://www.thectac.org for a list of C-TAC’s 120+ members, the C-TAC action plan, and more information on the organization. Follow on Twitter to stay in touch with the Coalition.

05/05/2025

“Elected officials are just people. They want relationships—honest, open, trustworthy.” – Deb Soholt, RN, MS, FAAN – Fmr. SD State Senator

In a time when policy decisions deeply affect the lives of those facing serious illness, building strong, respectful connections with lawmakers is not just important—it’s essential.

📢 Check out this timely and insightful piece by former SD State Senator Deb Soholt:
"Shaping Serious Illness Care: 10 Tips to Influence Elected Officials"
Whether you're a clinician, advocate, or community leader, this guide offers clear, practical steps to help you become a trusted resource and voice in the policymaking process. From coffee chats to coalition-building, these tips remind us that influence starts with authentic connection.

🗳️ Compassionate policy begins with relationships. Start building yours today.
🔗 https://thectac.org/asset/blog/shaping-serious-illness-care-10-tips-to-influence-elected-officials/

In today’s complex and evolving political environment, it is easy to feel powerless or disconnected from the decisions shaping our communities. But now more

04/16/2025

🗓️ Today is National Healthcare Decisions Day — a powerful reminder of the importance of advance care planning.

In honor of this day, our Vice President of Community Action and Policy, Marisette Hasan, RN, BSN, shares a deeply personal story about planning with her own mother. Her experience is a touching example of why having these conversations with our loved ones matters — not just someday, but today.

📝 Read Marisette’s insights and learn how you can take the first step toward meaningful, compassionate planning:
https://thectac.org/asset/blog/national-healthcare-decisions-day/

By Marisette Hasan, RN, BSN, Vice President of Community Action and Policy

03/27/2025

❗ Important Update for Hospice and Palliative Care Providers

C-TAC has submitted critical comments on the DEA’s proposed telehealth rule, which, if finalized, could increase costs, add complexity, and reduce access to care for hospice and palliative providers.

The proposed changes would make temporary flexibilities from the COVID-19 emergency permanent—but with key issues that could impact patient care.

Read more about the challenges and concerns raised in our comments.

https://thectac.org/asset/blog/deas-special-registrations-for-telemedicine-highly-problematic-for-hospice-and-palliative-care-providers/

C-TAC just submitted comments on a proposed DEA telehealth rule that, if finalized as proposed, would be expensive, difficult for hospice and palliative care

03/25/2025

We are pleased to announce our partnership with Caregiving, a documentary executive produced by Bradley Cooper, to premiere on June 24, 2025. It will be available for streaming on May 27, 2025, on PBS.org and the PBS App. The two-hour film highlights the personal and community struggles of caregiving in the U.S., focusing on both paid and unpaid caregivers. As advocates for patients and caregivers, we emphasize the critical need to spotlight these powerful stories. Caregiving is produced by Lea Pictures, WETA in association with Ark Media. https://wellbeings.org/series/caregiving/

From Executive Producer, Bradley Cooper, comes a new documentary on the state and stakes of providing care in America.

03/20/2025

🚨 Government Shutdown Averted - What Does This Mean for Us? 🚨
In a critical move, U.S. leaders recently passed a Continuing Resolution (CR) to fund the federal government, avoiding a shutdown before the March 14, 2025, deadline. Traditionally, CRs maintain current fiscal year funding, but this time, the Republican-controlled U.S. House of Representatives made notable changes:
🔻 $13B cut from nondefense spending
🔻 $20B cut from the IRS budget
🔻 $1B cut from the District of Columbia’s budget
🔺 $6B increase in defense spending
With the House adjourned, the U.S. Senate faced a tough decision: approve the bill or risk a government shutdown.

Want to understand the full implications of these changes? Dive into the details in our latest post. Read now: https://thectac.org/asset/blog/government-shutdown-averted-what-does-this-mean-for-us/

By Brian W. Lindberg, C-TAC Senior Policy Advisor

03/19/2025

Join us on March 26 for a webinar that delves into the intersection of mental health and serious illness, examining its impact on patients, caregivers, care providers, and policy opportunities for managing distressing symptoms throughout care. Learn more and register >>

This webinar will define the opportunity of the intersection of mental health and serious illness to include impact on patients,...

03/10/2025

New York Continues Efforts to Expand Access to Palliative Care Through Medicaid

In 2023, Hospice & Palliative Care Association of New York State (HPCANYS), C-TAC, C-TAC Innovations, and TFA Analytics joined forces to create a set of policy recommendations aimed at improving palliative care access for adults, children, and caregivers across New York.

Read about the progress >>

In 2023, the Hospice and Palliative Care Association of New York State (HPCANYS), The Coalition to Transform Advanced Care (C-TAC), C-TAC Innovations, and TFA

02/25/2025

In 2024, we achieved policy wins on multiple fronts. We made progress with both CMS and Medicaid, and reached out to policymakers with a bipartisan message. See our advocacy impact >> https://thectac.org/asset/blog/2024-progress-in-policy-advocacy/

Summary: In 2024, we achieved policy wins on multiple fronts. We made progress with CMS through the launch of important demonstrations and contributed to

02/18/2025

We are pleased to announce that Kristofer Smith MD, MPP has joined the C-TAC team as Senior Medical Advisor. Dr. Smith is a leader in developing care models that improve the lives of those with serious illness. He joins the leadership team during a dynamic time when there is tremendous opportunity to scale these models nationwide.

We are pleased to announce that Kristofer Smith MD, MPP has joined the C-TAC team as Senior Medical Advisor. Dr. Smith is a leader in developing care models

01/30/2025

C-TAC pays tribute to Rev. Dr. Tyrone Pitts for the Samuel DeWitt Proctor Conference “Beautiful Are the Feet” Award. With this recognition, it is our hope at C-TAC that more will hear about Dr. Pitt’s ethos of community, apply it, and share what they are learning in our collective efforts of helping our fellow members of society – and ourselves – heal.

On behalf of C-TAC, I am proud to see Rev. Dr. Tyrone Pitts as a Beautiful Are The Feet honoree. With this recognition it is our hope at C-TAC that more will

01/23/2025

The first 100 days of the Trump Administration and 119th Congress offer a pivotal opportunity to enact bold policies that improve the quality of care for individuals with serious illness while reducing overall healthcare costs. By addressing key policy priorities, we can create a healthcare system that delivers better outcomes for patients and families. See how C-TAC calls to advance solutions >> https://thectac.org/asset/blog/policy-priorities-for-the-first-100-days/

The first 100 days of the Trump Administration and 119th Congress offer a pivotal opportunity to enact bold policies that improve the quality of care for

12/20/2024

C-TAC members and summit attendees provided important feedback on policy themes and priorities to incorporate into our 2025 policy agenda that will be published in January.

Overarching Comment Themes:

• Transition to value-based care and purchasing models
• Upstream palliative care as a preventative approach
• Workforce shortages and staffing challenges
• Lack of focus on caregiver supports and resources

View Comment Priorities >>

C-TAC members and summit attendees provided important feedback on policy themes and priorities to incorporate into our 2025 policy agenda that will be

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http://www.thectac.org/

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