Finnz Fundz

Finnz Fundz We are a grass roots 501(c)(3) non profit organization. We hope to be able to fill that gap and carry on Finnegan's loving, kind spirit.
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Founded in loving memory of Finnegan Burns, who courageously fought Cystic Fibrosis but lost his battle in March 2009. Finnegan spent 13 months in intensive care across three states (RI, CT and DC)...we relied on the kindness of friends, family and strangers to help us get through our journey emotionally and financially. While the Cystic Fibrosis Foundation does an excellent job in research and de

velopment of therapies, new drugs, and ultimately, a cure, it does not provide direct assistance to families. He was an inspiration to all who knew him, and to many who have heard his story.

03/12/2020

With the outbreak of coronavirus (COVID-19) affecting thousands of people around the world, individuals with respiratory conditions such as cystic fibrosis (CF) need to take precautions, according to medical expert Richard K. Mathis, MD. Mathis is a board member of Claire’s Place Foundation, a...

12/06/2019

Some common myths and misconceptions about cystic fibrosis

This cost will likely impact insurers approving coverage for it, and could impact accessibility to the treatment.
11/04/2019

This cost will likely impact insurers approving coverage for it, and could impact accessibility to the treatment.

Vertex Pharmaceuticals Inc has priced its three-drug combination for cystic fibr...

10/21/2019

FDA approves breakthrough therapy for patients 12+ with cystic fibrosis and at least one F508del mutation in the CFTR gene, estimated at 90% of CF population.

04/30/2019

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months.

As folks with CF are living longer, on average, there are many things that need attention/consideration...this is one.
03/01/2019

As folks with CF are living longer, on average, there are many things that need attention/consideration...this is one.

Columnist Elizabeth Rogers identifies as asexual. She advocates for the need to address topics of sexuality and LGBT+ representation in the CF community.

02/14/2019

National Donor Day is an observance day dedicated to spreading awareness and education about organ, eye and tissue donation, celebrated on February 14th.

02/12/2019

A baby born with CF today can now expect to live a median 44 years, says Preston W. Campbell, MD, president and CEO of the Cystic Fibrosis Foundation.

12/05/2018

Several professional surfers stopped by Haleiwa Alii Beach Park on Saturday to surf with children suffering from a debilitating disease. 

10/21/2018
10/05/2018

There is now a 1,000 strong army of pint-sized Thors across the world.

Address

Warwick, RI

Telephone

+14015271773

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