Cutaneous Lymphoma Foundation

Cutaneous Lymphoma Foundation Dedicated to serving the cutaneous lymphoma community for over 25 years! Our vision is to create a life free from the burdens of cutaneous lymphomas.

๐‡๐ž๐ฅ๐ฉ ๐‘๐š๐ข๐ฌ๐ž ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐–๐จ๐ซ๐ฅ๐ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐ƒ๐š๐ฒ, ๐’๐ž๐ฉ๐ญ๐ž๐ฆ๐›๐ž๐ซ ๐Ÿ๐Ÿ“, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”This year's World Lymphoma Awareness Day campai...
08/31/2026

๐‡๐ž๐ฅ๐ฉ ๐‘๐š๐ข๐ฌ๐ž ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Ÿ๐จ๐ซ ๐–๐จ๐ซ๐ฅ๐ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐ƒ๐š๐ฒ, ๐’๐ž๐ฉ๐ญ๐ž๐ฆ๐›๐ž๐ซ ๐Ÿ๐Ÿ“, ๐Ÿ๐ŸŽ๐Ÿ๐Ÿ”

This year's World Lymphoma Awareness Day campaign is ๐๐š๐ฏ๐ข๐ ๐š๐ญ๐ข๐ง๐  ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐š๐ง๐ ๐‚๐‹๐‹ ๐“๐จ๐ ๐ž๐ญ๐ก๐ž๐ซ. ๐๐จ ๐๐š๐ญ๐ข๐ž๐ง๐ญ ๐“๐ซ๐š๐ฏ๐ž๐ฅ๐ฌ ๐€๐ฅ๐จ๐ง๐ž.

You can help raise awareness of cutaneous lymphoma by taking the No Patient Travels Alone Pledge at WorldLymphomaAwarenessDay.org. There you will find information on how you can share one challenge you've faced during your diagnosis, treatment, or survivorship on social media to remind others that they are not alone on their lymphoma journey. By sharing your story, you can help build connections, understanding, and hope for those affected by cutaneous lymphoma.

๐๐จ ๐จ๐ง๐ž ๐ฌ๐ก๐จ๐ฎ๐ฅ๐ ๐ก๐š๐ฏ๐ž ๐ญ๐จ ๐ง๐š๐ฏ๐ข๐ ๐š๐ญ๐ž ๐œ๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐ฅ๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐š๐ฅ๐จ๐ง๐ž.

We're excited to welcome you to our Facebook networking communities: the Cutaneous Lymphoma Networking Group and the new...
08/28/2026

We're excited to welcome you to our Facebook networking communities: the Cutaneous Lymphoma Networking Group and the new Cutaneous Lymphoma Care Partner Group!

We look forward to building a supportive and welcoming space together.

Join Cutaneous Lymphoma Networking Group: Cutaneous Lymphoma Networking Group
Join Cutaneous Lymphoma Care Partner Group: Cutaneous Lymphoma Care Partner Group

PLEASE NOTE: When requesting to join the groups, you will need to scroll down to read and accept the group rules before clicking on submit.

๐’๐ญ๐š๐ฒ ๐‚๐จ๐ง๐ง๐ž๐œ๐ญ๐ž๐ ๐ฐ๐ข๐ญ๐ก ๐ญ๐ก๐ž ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐…๐จ๐ฎ๐ง๐๐š๐ญ๐ข๐จ๐ง!Join our mailing list today to receive updates on educational even...
08/27/2026

๐’๐ญ๐š๐ฒ ๐‚๐จ๐ง๐ง๐ž๐œ๐ญ๐ž๐ ๐ฐ๐ข๐ญ๐ก ๐ญ๐ก๐ž ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š ๐…๐จ๐ฎ๐ง๐๐š๐ญ๐ข๐จ๐ง!

Join our mailing list today to receive updates on educational events, the Forum newsletter and monthly eNews, and other important news and announcements.

For more information and to sign up: clfoundation.org/join-mailing-list

Join us on Friday, September 18 at 3:00 pm (ET) for our Answers from the Experts: Open Q&A with Drs. Vincent Liu and Eri...
08/26/2026

Join us on Friday, September 18 at 3:00 pm (ET) for our Answers from the Experts: Open Q&A with Drs. Vincent Liu and Eric Mou. We invite you to come prepared with any questions you may have or to sit in and listen. We hope you will plan to attend!

For more information and to register:
www.clfoundation.org/answers-experts-openqa-Sept

We hope youโ€™ll join us for our upcoming Online Networking Groups!Engaging with our online networking groups can be helpf...
08/25/2026

We hope youโ€™ll join us for our upcoming Online Networking Groups!

Engaging with our online networking groups can be helpful when you have cutaneous lymphoma or a loved one who does. These groups provide an opportunity to connect with others who may have similar experiences and offer a supportive space to talk about it.

Upcoming dates:
Tuesday, September 1, 7-9 pm (ET) bit.ly/44eyANy
Thursday, September 10, 12-2 pm (ET) bit.ly/3RiMzio
Tuesday, October 6, 7-9 pm (ET) bit.ly/4i1lniY
Thursday, October 8, 12-2 pm (ET) bit.ly/4wVebK6

๐–๐จ๐ฎ๐ฅ๐ ๐˜๐จ๐ฎ ๐‹๐ข๐ค๐ž ๐ญ๐จ ๐‹๐ž๐š๐ซ๐ง ๐Œ๐จ๐ซ๐ž ๐š๐›๐จ๐ฎ๐ญ ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š?The Cutaneous Lymphoma Foundation offers a variety of informative ...
08/21/2026

๐–๐จ๐ฎ๐ฅ๐ ๐˜๐จ๐ฎ ๐‹๐ข๐ค๐ž ๐ญ๐จ ๐‹๐ž๐š๐ซ๐ง ๐Œ๐จ๐ซ๐ž ๐š๐›๐จ๐ฎ๐ญ ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š?

The Cutaneous Lymphoma Foundation offers a variety of informative publications. Besides various disease-specific Fast Facts, most people find "A Patient's Guide to Understanding Cutaneous Lymphoma" and "Understanding Treatment Options in Cutaneous Lymphomas" to be very valuable resources. All publications are available to view and download in English at www.clfoundation.org/publications or you can request hard copies at www.clfoundation.org/publication-ordering

You can also view and download select publications in Arabic, French Canadian, Hebrew, and Spanish (American) at www.clfoundation.org/translated-publications

08/20/2026

๐“๐ก๐ž #๐‚๐‹๐‚๐ก๐š๐ฅ๐ฅ๐ž๐ง๐ ๐ž ๐ข๐ฌ ๐š๐ฅ๐ฆ๐จ๐ฌ๐ญ ๐ก๐ž๐ซ๐ž! ๐–๐ข๐ฅ๐ฅ ๐ฒ๐จ๐ฎ ๐›๐ž ๐ฉ๐š๐ซ๐ญ ๐จ๐Ÿ ๐ญ๐ก๐ž ๐ฆ๐จ๐ฏ๐ž๐ฆ๐ž๐ง๐ญ?

The CL Challenge is a global fundraising movement supporting the Cutaneous Lymphoma Foundation. Whether you're walking, baking, gaming, or simply sharing your story, you can raise critical funds to support advocacy, research, education, and patient support for those living with cutaneous lymphoma.

Get ready to take on the challenge and start planning your fundraiser today! ๐Ÿ‘‰ www.givebutter.com/cl-challenge-2026

08/19/2026

๐”๐ง๐๐ž๐ซ๐ฌ๐ญ๐š๐ง๐๐ข๐ง๐  ๐“๐ก๐ž ๐•๐š๐ซ๐ข๐จ๐ฎ๐ฌ ๐“๐ฒ๐ฉ๐ž๐ฌ ๐จ๐Ÿ ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š
Learning all you can about cutaneous lymphoma will help you better understand your disease.

Exploring the links under the "๐”๐ง๐๐ž๐ซ๐ฌ๐ญ๐š๐ง๐๐ข๐ง๐  ๐Œ๐ฒ ๐ƒ๐ข๐š๐ ๐ง๐จ๐ฌ๐ข๐ฌ" section of our web site www.clfoundation.org will help you learn more about the more common types of cutaneous lymphoma.
Links to information about some of the more rare variants can be found here www.clfoundation.org/cutaneous-t-cell-lymphoma under ๐‡๐จ๐ฐ ๐‚๐จ๐ฆ๐ฆ๐จ๐ง ๐ˆ๐ฌ ๐‚๐ฎ๐ญ๐š๐ง๐ž๐จ๐ฎ๐ฌ ๐“-๐œ๐ž๐ฅ๐ฅ ๐‹๐ฒ๐ฆ๐ฉ๐ก๐จ๐ฆ๐š?

We hope you find this informative.

CTCL stands for cutaneous T-cell lymphoma, a rare cancer of T-lymphocytes (a type of white blood cells) that involves the skin. There are several types of CTCL, but mycosis fungoides and Sรฉzary syndrome are the most common. We've provided an overview of the disease, treatment and prognosis.

Weโ€™re excited to announce the 2026 Forum - Issue 2 newsletter is out now and available online! www.clfoundation.org/foru...
08/18/2026

Weโ€™re excited to announce the 2026 Forum - Issue 2 newsletter is out now and available online! www.clfoundation.org/forum

In this issue: From the Co-Chief Executive Officers โ€ข USCLC Meeting Highlights โ€ข Rare Disease Week โ€ข A New Treatment Option For People Living with CTCL โ€ข 2026 Annual Patient Conference โ€ข Health History Cheat Sheet โ€ข Show Your Support Through a Donor Advised Fund โ€ข Frequently Asked Questions

If you would like to receive the forum, please join our mailing list: clfoundation.org/join-mailing-list

08/17/2026

Join us for our next ๐€๐ง๐ฌ๐ฐ๐ž๐ซ๐ฌ ๐Ÿ๐ซ๐จ๐ฆ ๐ญ๐ก๐ž ๐„๐ฑ๐ฉ๐ž๐ซ๐ญ๐ฌ: ๐Ž๐ฉ๐ž๐ง ๐&๐€ with Drs. Eric Mou and Vincent Liu. We invite you to come prepared with any questions you may have or to sit in and listen. We hope you will plan to attend!

Date and Time: Friday, September 18, 2026, 3:00 pm (ET)

For more information and to register: www.clfoundation.org/answers-experts-openqa-Sept

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Warren, MI
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