Cutaneous Lymphoma Foundation

10/16/2026

Holly Priebe and Susan Thornton, Co-CEOs of the CL Foundation, recently attended the European Organisation for Research and Treatment of Cancer-Cutaneous Lymphoma Tumour Group (EORTC-CLTG) Annual Meeting in Berlin, Germany. With more than 500 participants from 34 countries, this meeting brings together leading clinicians, pathologists, scientists, researchers and healthcare professionals to explore the latest developments in understanding and treating cutaneous lymphoma.

Meeting highlights included a patient forum session moderated by Holly Priebe with Europe-based patient advocacy organizations to bring awareness to the lived experience of people with cutaneous lymphoma and the value of patient advocacy organizations. Another highlight was the recognition of Susan Thornton for her lifetime dedication to individuals affected by cutaneous lymphoma.

We also proudly supported young investigator Khaled Elsayad, MD at the EORTC-CLTG Annual Meeting for his work in cutaneous lymphoma. His passion and dedication fuel innovation and bring hope. Investing in young researchers means investing in better outcomes for every patient.

10/16/2026

𝗪𝗲’𝗿𝗲 𝗛𝗶𝗿𝗶𝗻𝗴!
Are you organized, caring and looking for work that matters? The Cutaneous Lymphoma Foundation is hiring an Office and Support Services Assistant to keep our office running smoothly and to be a warm, welcoming voice for the people we serve.

𝗧𝗼 𝗹𝗲𝗮𝗿𝗻 𝗺𝗼𝗿𝗲 𝗮𝗻𝗱/𝗼𝗿 𝘁𝗼 𝗮𝗽𝗽𝗹𝘆 𝘃𝗶𝘀𝗶𝘁: bit.ly/4yS2C7v

10/15/2026

Medicare Open Enrollment starts today and goes to December 7, 2026, for changes to begin on January 1, 2027. During this time, you can join, switch or drop a Medicare Advantage Plan or Medicare Part D drug plan, or you can switch to Original Medicare from an Advantage Plan.

It is very important to review the Annual Notice of Change (ANOC) you should have received by the end of September from your current Part D prescription plan or Medicare Advantage plan. The ANOC includes any changes in coverage, costs, providers, formularies (list of prescriptions that are covered under your plan), and much more that will be in effect on January 1, 2027. If you haven't received it, contact your current plan.

For more information visit:
https://www.clfoundation.org/open-enrollment-medicare-2027

10/14/2026

𝗧𝗼 𝗼𝘂𝗿 𝗶𝗻𝗰𝗿𝗲𝗱𝗶𝗯𝗹𝗲 𝗖𝗟 𝗖𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆: 𝗬𝗼𝘂 𝘀𝗵𝗼𝘄𝗲𝗱 𝘂𝗽! 𝗬𝗼𝘂 𝗴𝗮𝘃𝗲 𝗴𝗲𝗻𝗲𝗿𝗼𝘂𝘀𝗹𝘆! 𝗬𝗼𝘂 𝗶𝗻𝘀𝗽𝗶𝗿𝗲𝗱 𝗵𝗼𝗽𝗲!

These funds will directly support:
• Research that improves quality of life
• Education that empowers patients and healthcare providers
• Advocacy that elevates patient voices
• Support programs that foster connection and community

You are the reason these programs exist. You are the reason someone will find answers, feel less alone, and discover hope.

You didn’t just fundraise; you fought for someone’s future. We are deeply grateful!

10/12/2026

Join us for the Gut Microbiome and Cutaneous Lymphoma Webinar on Wednesday, October 21, at 4:00 pm (ET) with Drs. Cecilia Larocca and Xiaolong (Alan) Zhou for an overview of the latest research on the gut microbiome and its potential connection to cutaneous lymphoma.

For more information and to register: www.clfoundation.org/gut-microbiome

10/09/2026

𝐒𝐭𝐚𝐲 𝐂𝐨𝐧𝐧𝐞𝐜𝐭𝐞𝐝 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 𝐂𝐮𝐭𝐚𝐧𝐞𝐨𝐮𝐬 𝐋𝐲𝐦𝐩𝐡𝐨𝐦𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧!

Join our mailing list today to receive updates on educational events, the Forum newsletter and monthly eNews, and other important news and announcements.

For more information and to sign up: clfoundation.org/join-mailing-list

10/08/2026

𝗜𝘁'𝘀 𝗗𝗔𝗙 𝗗𝗮𝘆!
A Donor-Advised Fund makes charitable giving simple, flexible, and tax-smart. If you have a DAF, please consider recommending a grant to the Cutaneous Lymphoma Foundation today.

Every gift helps connect patients and caregivers with trusted education, support, and hope. 💙

Learn more:

What is a donor advised fund? A Donor Advised Fund (DAF) is becoming a popular way to accomplish tax efficient charitable giving. Essentially, a DAF is a charitable giving account administered by a sponsoring organization (Sponsor), usually a brokerage firm or community foundation. Generally, you a...

10/08/2026

Thank you to all of our Facebook Fundraisers who so generously support the Cutaneous Lymphoma Foundation by raising funds for their birthdays and other special events.

WE COULDN'T DO IT WITHOUT YOU!

To learn how you can create a fundraiser using Facebook, go to www.facebook.com/help/990087377765844 and follow their step-by-step directions.

THANK YOU!

10/07/2026

We hope you will join us for tomorrow’s Online Networking Group!

Engaging with our online networking groups can be helpful when you have cutaneous lymphoma or a loved one who does. These groups provide an opportunity to connect with others who may have similar experiences and offer a supportive space to talk about it.

Upcoming dates:
Thursday, October 8, 12-2 pm (ET) bit.ly/4wVebK6
Tuesday, November 3, 7-9 pm (ET) bit.ly/4qVevGF
Thursday, November 12, 12-2 pm (ET) bit.ly/4qJZbfS

10/06/2026

One destination. Two important meetings with global patient advocacy organization partners. This week in Dublin, Ireland, our Co-CEOs Holly Priebe and Susan Thornton began by hosting the annual meeting of the International Coalition for Cutaneous Lymphoma (ICCL), where members discussed how to collaborate across borders to better serve people living with cutaneous lymphoma globally.

They then joined the Lymphoma Coalition Global Summit 2026, "Lymphoma Changemakers," learning from and with patient organization leaders from around the world. Each session brought together global knowledge, experience, and expertise:

• Global Patient Survey findings on the lived experience of lymphoma worldwide
• Workshops mapping gaps in diagnosis and care across different health systems
• How patient organizations everywhere are evolving as advocates
• What AI could mean for lymphoma patients globally

We are grateful to the Lymphoma Coalition for bringing us together. So many outcomes to act on, and we cannot wait to get started for the cutaneous lymphoma community.