Lionheart Lou

03/25/2025

Six years ago, Luis passed away from DIPG. He was only five.
Lulu, you’re missed more than words could ever describe. You are the kindest, sweetest, silliest, most gentle and pure little soul ever to be. You’re forever carried in the hearts of everyone who loves you ❤️🦁❤️
Lionheart Lou

03/19/2025

https://neurosurgery.weill.cornell.edu/about-us/news-updates/breakthrough-dipg-pediatric-brain-cancer-treatment-novel-drug-delivery?fbclid=IwZXh0bgNhZW0CMTEAAR2uf9Uww2Azj56IuxPEhfKyjJXfSlrjGNKmA2wRjba-EJ643bz4q9QVnS8_aem_ilydYE5pF9V5vr5dXipkRA

Diffuse intrinsic pontine glioma (DIPG) is one of the most challenging pediatric brain tumors to treat due to its location in the brainstem and resistance to conventional therapies. However, a groundbreaking clinical trial led by Dr. Mark Souweidane, director of pediatric neurological surgery at Wei...

07/06/2024

🩶💛 PLEASE SHARE 💛🩶
I’m getting closer to launching my cookbook that’s filled with delicious recipes from around Mexico.
The book also aims to raise DIPG awareness and to honor our loved ones, so I’m including photos of children (and adults) impacted by DIPG. If you would like your child to be included, please DM the page for details. YOU MUST BE A PARENT OR LEGAL GUARDIAN TO ADD A CHILD’S NAME.
>>Last day to add is July 10th

05/01/2024

Sweet Brooke would be celebrating her 16th birthday today. Sadly, Brooke passed away when she was just 12.
You are missed and remembered with infinite love every day, Brooke. Happy birthday in heaven 🩷
in Brooke

03/27/2024

DIPG OneLink empowers parents with up-to-date DIPG DMG care insights and provides pathways for data donation, helping researchers drive the discovery of new and innovative treatments.

03/25/2024

Today is the 5th anniversary of Luis’s passing. He was just 5 years old. Luis defines love and sweetness, and he will continue to be loved for eternity.

“If you become a rock on the mountain high above me,” said his mother, “I will become a mountain climber, and I will climb to where you are.”

“If you become a mountain climber,”
said the little bunny, “I will be a crocus in a hidden garden.”

“If you become a crocus in a hidden garden,” said his mother, “I will be a gardener. And I will find you.”

“If you are a gardener and find me,”
said the little bunny, “I will be a bird
and fly away from you.”

“If you become a bird and fly away from me,”said his mother, “I will be a tree that you come home to.”

“If you become a tree,” said the little bunny, I will become a little sailboat, and I will sail away from you.”

“If you become a sailboat and sail away from me,” said his mother, “I will become the wind and blow you where I want you to go.”

From The Runaway Bunny by Margaret Wise Brown

02/25/2024

🦁 **Luis Toy Drive - Please Share!** 🦁

Help us bring joy to children in need at our local hospital and The John Theissen Foundation.

As we mark 5 years without Luis and celebrate another year in his memory and my birthday, we're hosting a toy drive to brighten the days of children facing long stays in the hospital.

Luis battled DIPG, spending weeks at our local hospital. Cancer took much from him, but the smiles brought by new toys meant the world.

You can make a difference by donating toys until the end of March. Even the smallest gift can bring a big smile.

Please PM me for the address or if you have any questions and suggestions. Let's make a bunch of kids smile! 🎁

Thank you for your support and generosity.
Love always Luis’ mom❤️

09/09/2023

I remember feeling the same way. life is short, things can change in an instant. Not everything in life is going to be easy. You need to focus on your outlook and make the best of each day no matter how it went.  Try to surround yourself with love and joy. Because we are here for a short time, make the best of it 

A powerful message from ZoeJane’s Father as she continues with her fight against DIPG Brain Cancer.
——

PARENTS : Are your kids bickering or causing frustration as you read this? Or have you recently been in an argument causing you to go into the other room and that's why you're reading this?

Did you wake up with your entire family safe? Were you able to hug (or even simply TELL) your children good morning or good night?

STOP taking it ALL for granted (EVEN THE ARGUING).. You'd miss it, you'd wish you'd have learned (whatever it was you were supposed to learn) in the moment and wish you'd have endless opportunities to continue to learn.. Next time there's an argument, take the step back (IN THE MOMENT) and picture them NOT in front of you!!!

I'm begging you, play catch, spend the quality time, talk to your children, hug them, discipline with love and forgive at the soonest moment, show your children their worth and value..

Make the extra efforts to LOVE them harder than ever before because in the end what matters most are these moments together….

03/28/2023

It’s been four long years since Luis passed away, taking a piece of our hearts with him. The love he shared with everyone who was lucky enough to know him was unmatched: the way he’d text his aunties to make sure they got home safely; how he managed to turn his sisters’ squabbles into giggles; how his tender hugs warmed you from the inside out. I’ve said it before: To say you won’t be forgotten assumes that were ever a possibility. We love you forever, Lulu ❤️🦁

04/10/2022

Sending so much love and so many prayers to his family. What an incredible fight he gave DIPG. 💔

But Jesus said, “Let the little children come to me and do not hinder them, for to such belongs the kingdom of heaven.”
Matthew 19:14 ❤️💛💙

Hallelujah. It is Easter week and we can only imagine the worship LJ is experiencing alongside Jesus in heaven. While we are broken hearted for ourselves we are PRAISING THE LORD that LJ is cured of DIPG. He will have no more pokes. No more pain. No more scans. No more pills. He has a new perfect body. That is the power of the God we serve. As followers of Jesus we know how this story ends. God wins. His love is victorious.

Please pray with us in the days ahead and and know we love and appreciate you all. We will share details and arrangements as we know them.