06/07/2026
DIPG looked different for Myla, and it ultimately ended her life in the same way. I think it is important to share this side of how it looked for us because it was the complete opposite of everything I ever read and learned. And it left everyone in complete shock.
Myla suffered minimally with her disease. She lived as if she did not have it and never allowed it to hold her back. She had many days of inconveniences, and more days lived fully. We had the best 11 months of our life together, we loved, we laughed, we said everything we ever needed to say, we experienced as much as we could with her all while living with the worst possible diagnosis one could receive. But always knowing that the worst possible case scenario of it taking her life meant the best case scenario for her..that she would be with our Lord and Savior in complete peace, which is the whole entire goal of our short life on earth itself.
DIPG was so stealthy to the point we questioned if she really had this. The only indication of her cancer was her eye turn. She did not experience ANY of the usual symptoms until her last few days of life when she lost every single ability all at once. From having no symptoms to having every symptom, to death. It was not until her final few days where I was finally convinced: yes, she has this rare, brutal, reckless, ruthless, TERMINAL disease that is DIPG and had to watch it shut her body down. Function by function, until it took her last breath. It was not slow with weeks to months of suffering, it was rapid and instantaneous almost.
We find peace in knowing exactly where Myla went. While she is no longer here physically with us, we felt the exact moment her soul left to be with Him. As much as I wanted to keep her with me, I would never want to take eternal peace from her if He needed her and it was her time.
She was complete perfection, she was beyond this world. She was kind, smart, hilarious, creative, athletic, cool, witty, sassy, talented, fashionable, humble and most of all Faithful to the Lord to the very end. In her short 9 years on earth she impacted and changed the lives of so many.
We prayed daily for a miracle, but Myla WAS the miracle and she changed our life forever. One of the last things she told us days before she passed was that she was okay with having this brain tumor because it brought so many people back to Jesus and she loves Him.
And the very last thing she spoke to us,
after having no ability to speak was
“I’m going to go be with God”
and we heard it perfectly clear.
After she left us, the sun came out and a powerful wind hit my face as I was praying, I looked up and Jake and I counted at least 10 horses in the clouds, one with a small rider with angel wings. It was the most beautiful peace we have ever felt and I thank God for that immaculate confirmation that she was there.
We miss you so much angel.
Your mission is complete.
We are so proud of you.
I will be strong because you were.
🫶
