IgA Nephropathy Foundation

06/05/2026

Otsuka recently shared new data from its Phase 3 VISIONARY study evaluating sibeprenlimab in people living with IgA Nephropathy. In simple terms, researchers are studying whether this treatment may help protect kidney function over time for certain patients with IgAN.

While research findings are just one part of the larger picture, every study brings us one step closer to improving care and expanding options for the IgAN community.

We encourage patients, care partners, and healthcare professionals to stay informed and learn more about the latest developments in IgA Nephropathy research.

Read the full article:

Otsuka Pharmaceutical Development & Commercialization, Inc. and Otsuka Pharmaceutical Co., Ltd. (Otsuka) today announced that VOYXACT® (sibeprenlimab-szsi) p...

06/04/2026

Canadian IgAN Community: Your Voice Is Needed

Health Canada is currently considering a proposal that could significantly improve access to medications for Canadians living with IgA Nephropathy and other rare diseases.

The proposal would allow Health Canada to rely on approvals from trusted international regulatory agencies, such as the U.S. Food and Drug Administration (FDA), when reviewing certain medications. This could help bring FDA-approved IgAN treatments to Canada more quickly and improve access to important therapies for our community.

We need Canadian patients, caregivers, and families to speak up.

If you have just a few minutes, please consider submitting feedback to Health Canada within the next 24 hours. You can copy, paste, and personalize a sample response to share why timely access to approved IgAN treatments matters to you and your family.

Personal stories are especially powerful. Consider sharing:

Your experience living with IgAN
Challenges accessing treatments in Canada
Why faster access to internationally approved medications is important for your health and future

Learn more and submit your feedback here:

https://www.canada.ca/en/health-canada/programs/consultation-proposed-phased-implementation-incorporated-by-reference-list-ministerial-reliance-order/notice.html

https://www.canada.ca/en/health-canada/programs/consultation-proposed-phased-implementation-incorporated-by-reference-list-ministerial-reliance-order.html

Every submission helps demonstrate the urgent need for improved access to IgAN treatments in Canada. Thank you for helping advocate for our community. LINK TO TEMPLATE
https://acrobat.adobe.com/id/urn:aaid:sc:US:2d59f0e8-28da-4ffe-9854-ce51670de573

06/02/2026

🚨SOLD OUT🚨

SPARK 2026 in Atlanta has officially reached capacity.

We're honored by the incredible support from the IgAN community and can't wait to gather together this July.

Still hoping to attend? Join the waitlist and we'll contact you if a spot becomes available. ❤️💙

If you are currently registered and can no longer attend please email [email protected] for a refund.

****TICKETS ARE NON-TRANSFERRABLE. DO NOT ATTEMPT TO BUY OR SELL TICKETS FROM ANYONE. *******

Learn More www.iganspark.org

05/26/2026

Join us on Thursday, June 18, 2026, at 7:00 PM ET for a special educational webinar with Lauren Levy, MS, RDN, CSR, an IgAN and CKD nutrition specialist, as she explores the science behind plant-based nutrition and shares practical ways to build a kidney-friendly lifestyle.

From simple meal strategies to affordable nutrition tips, this session will provide realistic guidance you can start using right away, whether you are new to plant-based eating or looking to strengthen your current approach.

Register today and learn how nutrition can become a meaningful part of your kidney health journey.

https://igan.org/events/

05/18/2026

Living with IgA Nephropathy can feel overwhelming, but you are not alone.

is proud to provide FREE resources and support programs for patients, caregivers, and families around the world. From education and mental health support to clinical trial information and patient connection, our goal is to ensure every member of the IgAN community has access to trusted resources and hope.

Available FREE resources include:

• Patient Guides & Worksheets https://igan.org/iga-nephropathy-guide/

• IGAN+ App https://igan.org/iganplusapp/

• IgAN Hope Patient Registry https://igan.org/patient-registry/

• Clinical Trial Information https://igan.org/clinical-trials/

• Patient Support Groups https://igan.org/support-options/

• Educational Webinars & Conferences https://igan.org/events/

• Financial Assistance Programs https://igan.org/apply-for-patient-aid/

• Free 1:1 licensed therapy through Talkspace https://www.talkspace.com/iganfoundation

• Free Mental Health & Wellness Support through Calm https://www.calm.com/b2b/iga-nephropathy-foundation/subscribe

• Nutrition Resources https://igan.org/nutrition/

• SPARK Conference Resources and Patient Support https://iganspark.org/

Whether you are newly diagnosed or years into your journey, the Foundation is here to walk beside you every step of the way.

Visit IGAN.org to explore all available resources, upcoming events, and ways to get connected with the community. ❤️💙

05/15/2026

When Jeff and his family first heard the words “IgA nephropathy,” they had never heard of the disease before. Like so many individuals facing a rare kidney disease diagnosis, their journey began with uncertainty, questions, and the need to adapt to a new reality.

In this powerful 12-minute Medical Stories feature aired on PBS stations nationwide, Jeff and his wife and care partner, Joy, share an honest look into life with — from the emotional impact of diagnosis to the everyday challenges of protecting kidney health and navigating the unknown together.

The segment also features expert insight from Jai Radhakrishnan, M.D. of Columbia University Medical Center, who explains the disease and why early awareness and kidney protection are so important.

We invite you to watch Jeff’s story and help raise awareness for everyone living with IgAN

Because of their lack of obvious symptoms and low public awareness, rare kidney diseases or RKD, like immunoglobulin A (IgA) nephropathy, make it difficult f...

05/15/2026

The future of IgAN research will be built by all of us together.

Every patient story, every shared experience, and every data point helps move research forward and brings us closer to better treatments and ultimately, a cure.

Today, we invite our global community to join the IgAN Hope Patient Registry and help shape the future of IgA Nephropathy research.

Getting started is simple, secure, and confidential.

Join in 4 easy steps:
STEP 1 Request access
STEP 2 Create your password
STEP 3 Complete the consent process
STEP 4 Complete your survey

You can enter your lab results, connect your Electronic Health Record (EHR), and save your progress at any time.

The survey takes approximately 15–20 minutes to complete and is fully HIPAA compliant.

Your voice matters. Your experience matters. You are helping build hope for generations to come.

Please Share Your Voice: https://igan.org/patient-registry/

You Are Not Alone. ❤️💙

05/14/2026

May 14 is not just another day. Today, we celebrate IgAN Aware Day and the anniversary of a Foundation built on hope, advocacy, research, and the strength of this incredible community.

As the only nonprofit organization 100% dedicated to IgA Nephropathy, we remain committed to one mission: finding a cure. And because of supporters like you, 100% of every donation goes directly toward IgAN research.

Today, we ask you to celebrate with us. Share your story. Share your hopes. Share your fears. Every voice matters, and every story brings us one step closer to greater awareness, better treatments, and ultimately, a cure.

Together, we are building a future where no one faces IgAN alone — and where IgAN has a cure. ❤️💙

05/13/2026

We are deeply grateful to every patient, care partner, family member, advocate, and supporter who has trusted us with their IgA Nephropathy journey by sharing their story.

Together, we’ve seen incredible progress, including 5 FDA-approved IgAN treatments in the U.S. and a growing number of clinical trials bringing hope to our community.

But IgAN does not stop at borders, and neither will we.

We remain committed to making sure every patient voice is heard and to fighting for true equity in IgAN treatment and care worldwide.

No matter where you are in your journey, you are not alone. ❤️💙