IgA Nephropathy Foundation

10/20/2026

In 2004, a 13-year-old boy came home with cola-colored urine. His parents, Bonnie and Ed Schneider, were told he had a rare kidney disease called IgA nephropathy, and that there was almost nowhere to turn.

So they built the place that didn't exist. 💙

If you or someone you love has IgAN, you may know that feeling of searching for answers and finding very few. For more than 50 years after IgAN was first discovered, there was no treatment made for it. Families were left to figure it out on their own.

That has changed. Today there are more ways to treat IgAN than ever before, and more people working every day to make sure every patient can reach the care they need.

If you have questions about your options, your nephrologist is a great place to start, and we're here to help you prepare for that conversation.

Our new short film tells the story of how we got here, from a microscope in Paris in 1968 to a kitchen table in New Jersey to a global community of patients, families, doctors, and researchers.

Whether you were diagnosed last week or years ago, whether you're the patient or the one sitting beside them at every appointment: You are not alone. ❤💙

Find support, resources, and community at IgA Nephropathy Foundation

Thank you to Vertex for making this film possible.

Watch it here: https://youtu.be/RvFmD45lG1A?si=lHQOps0Rsf2auFoO

10/17/2026

Rock. Paper. Scissors. Connection wins.

Living with IgA Nephropathy means bringing more than lab results to an appointment. You bring questions, concerns, goals, and a life beyond your diagnosis.

You deserve a nephrologist who sees that whole picture and understands IgAN.

That’s why we’re heading to ASN Kidney Week in Denver next week, proudly representing our global IgAN patient and caregiver community. We’ll be connecting with nephrologists, sharing patient perspectives, and introducing the Foundation’s resources, including our IgANCare provider network.

Our goal at ASN is simple: to champion you and make sure nephrologists hear what matters most to people living with IgAN.

What’s one thing you wish your nephrologist better understood about living with IgAN? Share below.

No one fights IgAN alone.

10/12/2026

UPDATE: We’ve crossed the Equator! 🌎 Our challenge team just reached Ecuador and 75% of our goal. 12 days left to go the distance for the IgAN community. Every step counts. Join us before Oct 31 and help us finish strong.

Well, we can officially confirm the world is NOT flat. We've got the steps to prove it!

Our IgAN community is making its way around the equator, and we're nearly 60% of the way around the world!

And guess what? The math says WE CAN make it to the finish line!

Here's where we stand:

170 participants

22 teams

34,993,337 steps together

19 days left to reach our goal!

We've already accomplished something incredible, but we're not done yet!

To complete our journey of 58,435,404 steps, we need to average just over 1.2 million steps a day. With 170 participants, that's roughly 7,300 steps per person, per day!

And imagine what happens if MORE of our IgAN community joins us!

WE CAN DO THIS. But we need YOU!

There's still plenty of time to join, and participation is completely FREE.

Patients, care partners, families, friends, doctors, nurses, researchers, industry partners, and advocates. This challenge belongs to ALL of us.

Walk. Run. Dance. Take the stairs. Walk the dog. However you move, every step brings us closer to our goal.

As we recognize Indigenous Peoples' Day, we also acknowledge and honor the cultures, histories, and contributions of Indigenous communities around the world.

One world. One IgAN community. One finish line.

No waiting on the sidelines. We're ALL IN!

The challenge ends October 31. Join us today:
https://igan.bigteamchallenge.com/

10/07/2026

Ready to go the distance for IgAN?
IgA Nephropathy Foundation is proud to be an official charity partner of the 5th Annual Jersey City Marathon & Half Marathon on April 18, 2027. The Jersey City Marathon

This fast, flat, USATF-certified course is also a 2028 Boston Marathon Qualifier, making it the perfect opportunity to chase a goal while running for something bigger.

Team We Can for IgAN is coming back in 2027, and we want YOU at the starting line.

We have a limited number of charity bibs available for patients, caregivers, family members, friends, and supporters ready to turn their miles into meaningful impact.
Fundraising commitment:
Half Marathon: $500
Full Marathon: $1,000

Every mile raises awareness. Every dollar helps fuel IgAN research. Every runner reminds our community that no one fights IgAN alone.

Not a runner? Share this with the runners in your life and help us build our 2027 team.

Applications are open now. Apply to join Team We Can for IgAN.
https://forms.gle/oAaqCSu8y1UQXwyT7

You can go the distance. We Can for IgAN.
https://jerseycitymarathon.com/

The Jersey City Marathon & Half Marathon Marquee Experience at Newport is on Sunday, April 19, 2026. We are New Jersey's Marathon.

10/06/2026

Hey, Hemogoblins! Let’s carve out some Halloween fun.
There’s nothing scary about IgA Nephropathy when you know you are not alone.

Join our pumpkin carving contest! Use one of our stencils or create your own design for a chance to win a $25 Amazon gift card and IgAN swag.

We’re especially excited to see our IgAN Pediatric Warriors join the fun and would love to see one of you take home the prize!

Deadline to enter: October 31 at 11:59 PM ET.

How to enter:
Carve your pumpkin using a Foundation stencil or your own design. Painted pumkins OK too!
Post a photo on Instagram or Facebook
Tag IgA Nephropathy Foundation and include (Instagram or Facebook)
Make sure your post is public so we can see your creation!

Let’s light up our community, one pumpkin at a time.
LINK IN BIO FOR TEMPLATES
https://share.google/rSjNFTQ6QamZw0KfO

10/03/2026

Doors are now open at IgAN Horizons.

It's 9 AM ET. Come in, explore the platform, and connect with the IgAN community before Welcome Remarks at 9:30 AM ET. Sponsor booths, resources, and the help desk are all open now.

You are not alone. Join us: iganhorizons.vfairs.com
Already registered: Log In with your email

***Same Day Registration closes at 10:00 AM ET

Can't join live for every session? The program will be available on demand after the event, so you can watch at your own pace.

10/02/2026

IgAN Horizons is tomorrow, Saturday, October 3!

We are honored to welcome a lineup of very special speakers, including two leaders from the U.S. Food and Drug Administration (FDA). They will join Dr. Sayna Norouzi for Clinical Trials and Research: How Patients Can Help Shape the Future.

Dr. Aliza Thompson is Director of the Division of Cardiology and Nephrology at the FDA's Center for Drug Evaluation and Research. Her division reviews new therapies for cardiovascular and kidney diseases. A nephrologist trained at Columbia University/New York-Presbyterian, she has been with the FDA since 2007.

Dr. Selena DeConti, Pharm.D., M.P.H., is Deputy Director for Safety in the same division, where she oversees the safety of therapies for cardiovascular and kidney diseases. She has been with the FDA since 2011 and has served in the U.S. Public Health Service since 2008.

This is a rare chance to hear directly from the people who review kidney treatments, and to learn how patients can help shape the future of IgAN research.

Registration is free and closes at 10am ET on Saturday, October 3. Can't make it live? Register now and watch the sessions on demand.

No matter where you are, join in the language you're most comfortable with. IgAN Horizons features live translation in 20+ languages, powered by Palabra.

Register: https://iganhorizons.vfairs.com/

Cancelling your registration will remove your access to the event. If you proceed, you will no longer be able to participate or access event-related materials.

09/29/2026

We're proud to head to Capitol Hill this week alongside the American Kidney Fund, raising our voices for everyone living with IgA nephropathy and kidney disease. When patients, families and advocates show up together, lawmakers listen. You are not alone. ❤️💙

09/22/2026

WE MADE IT TO THE MALDIVES!

Our IgAN community is officially on the move.
Together, 149 participants have already logged 10,975,857 steps, putting us 18% of the way around the equator with a daily average of more than 914,000 steps.

And we’re just getting started.

There is still PLENTY of time to join us, build a team, challenge your friends and coworkers, and help move our community around the world.
Patients. Care partners. Families. Friends. Clinicians. Researchers. Industry partners. Everyone has a place in this challenge.

No waiting on the sidelines. We’re ALL IN.

The challenge continues through October 24, so join us wherever we are on the route and start adding your steps. Walking, running, dancing, taking the stairs, walking the dog. However you move, it counts.

Next stop? Let’s see how far this community can take us.

58,435,404 steps. Around the equator. One IgAN community. ALL IN.

Join the challenge for free today: https://igan.bigteamchallenge.com/