11/19/2025
It’s been a while since we’ve shared an update on our sweet Gracie girl, so here we go! 💛
Gracie is still absolutely loving her school program. She’s been working so hard and learning so many new things. Big milestone this month: she started taking the bus! 🚍She enjoys every ride, and the extra safety features give us so much peace of mind.
She continues to give her all in therapy whenever she’s able to go. With her school schedule (and mom and dad both working full-time), she doesn’t get to go as often as we’d like — but she lights up when she’s there. She still doesn’t have many words yet, but she’s working incredibly hard in speech, and we’re definitely seeing progress!
Gracie is still 100% G-tube fed, though we offer oral tastes when we can. She’s not very interested in much beyond water right now, but we know her curiosity will grow in her own time.
Healthwise, she’s been doing amazing — just a few minor illnesses these past few months and no hospital stays. We are so proud of her and so, so grateful.
Every day, we’re thankful for her incredible medical team at Mott, and forever grateful for the donor family who said “yes” in a moment of unimaginable grief. Their decision continues to give our girl the chance to thrive. 💙💛
Picture of our perfect girl: Lynlee Marie Photography
