Grace Elizabeth Heart Warrior Foundation

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Grace Elizabeth Heart Warrior Foundation

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Heart to Heart Giving. Thank you for your love and support.

Here to be a resource for families who have been impacted by Congenital Heart Disease (CHD) with an emphasis on Hypoplastic Left Heart Syndrome (HLHS). Donate to Grace Elizabeth Heart Warrior Foundation GoFundMe Here:
https://www.gofundme.com/f/fighting-for-grace/donate?utm_source=widget&utm_medium=referral&utm_campaign=p_cp+share-sheet

For bigger donations, please connect with us directly and we can get you all of the instructions for donating through 5/3rd bank and all of the proper tax papers.

09/01/2026

Gracie’s first day of her second year of half-day preschool! 💕📚

We’re excited for a new year and can’t wait to see how Gracie learns and grows this year. She was very excited to see the bus this morning and even woke up singing and ready to go!

We decided to do morning preschool while we work on some other things this year. Gracie isn’t used to waking up so early, so hopefully it’s a quick adjustment! 😴

Here’s to a great year!

06/18/2026

We realized it’s been a while since our last update, and we just wanted to share a little summer check-in ❤️

We’ve been really enjoying the start of summer! Gracie finished school the first week of June and has been enjoying the break. Her hero heart is doing great and she’s stayed healthy for the most part, which we are so incredibly grateful for.
She has had a few minor illnesses, and recently had her first real injury—she fractured her ankle and is in a boot for a few weeks. It hasn’t slowed her down much at all, and she quickly figured out how to still run and play in her own way. We were honestly surprised when we found out it was fractured because she barely cried—we only brought her in because she wasn’t putting much weight on it.
We’re still working hard on eating by mouth. Gracie doesn’t show a lot of interest yet, but we remain hopeful and would truly appreciate prayers that this continues to improve in time. She will be going to all-day preschool next school year, and we’re hoping that transition helps a lot too.
She still isn’t using many words, but she is working so hard in therapy and does her best to mimic us. We are hopeful more will come soon.
She’s also learning how to be a big sister. She enjoys playing with her brother, but also definitely values her quiet, independent time.
We are working through some new behavioral challenges as she learns to express herself and navigate big emotions while nonverbal. It can be hard at times, and prayers for wisdom, patience, and guidance for both her and us would mean so much.
We also have her next appointment and heart biopsy on July 21 to check on her hero heart. We are praying for smooth results and no signs of rejection.

Thank you all for always thinking of our sweet, strong, and sassy girl. We are so grateful for your continued prayers and support ❤️

03/17/2026

Happy 4th Birthday to our strong, sweet Gracie girl! 🎉💖

Four years ago you came into this world and have been teaching us about strength, courage, and grace ever since. You inspire us every single day, and celebrating you is so easy

Gracie, we love you more than words. Happy Birthday! 🎂

03/01/2026

It’s hard to believe Gracie is two years post heart transplant. In some ways, it feels like just yesterday… and in other ways, it feels like a lifetime ago.

We carry so much gratitude for her donor’s family — for saying yes in the midst of unimaginable grief. Their selfless gift gave our daughter life. We pray for them often and honor her donor in everything we do.

We are endlessly thankful to God for His precious gift of Gracie and the miracle of her hero heart.

We also cannot thank the medical staff enough at Mott who loved our daughter like their own and took care of her wonderfully.

Gracie has grown into doing things we once dreamed of. She went from spending most of her first two years in the hospital to going to preschool, working so hard in her therapies, becoming a big sister (still working through a little toddler jealousy — but we know she’ll grow into the best big sis ❤️🤪), and participating in so many everyday activities we once weren’t sure would ever be possible.

To everyone who has followed along — Gracie’s Gang — thank you. Thank you for your love, your prayers, your encouragement, and your support over the years.

02/06/2026

Gracie says: “I wear red for ME!” ❤️
If you’re wearing red today, she would love to see it—send us a pic!

02/03/2026

Friday, February 6th is Wear Red Day to bring awareness to Congenital Heart Defects ❤️
We’ll be wearing red in honor of our sweet Gracie.
If you wear red, we would love to see a picture — thank you for helping spread awareness and love!

01/22/2026

Gracie will be heading to Ann Arbor this Friday for a heart catheter. It’s hard to believe she’s just over a month away from being two years post-transplant (2/29/24)!

We know we haven’t shared an update in a while, but that’s because we’ve been busy enjoying life. Over Christmas break, we spent time in Florida—beautiful weather, lots of sunshine, and Gracie absolutely loved the pool.

She continues to thrive in her school program and has been having fun-filled weekends. We’re also very happy to report that she has largely stayed healthy. Gracie is still working hard on her speech; while she doesn’t have many words just yet, we are very confident that more will come soon.

Thank you all for your continued prayers, love, and support—it truly means more than we can say. 💛

11/19/2025

It’s been a while since we’ve shared an update on our sweet Gracie girl, so here we go! 💛

Gracie is still absolutely loving her school program. She’s been working so hard and learning so many new things. Big milestone this month: she started taking the bus! 🚍She enjoys every ride, and the extra safety features give us so much peace of mind.

She continues to give her all in therapy whenever she’s able to go. With her school schedule (and mom and dad both working full-time), she doesn’t get to go as often as we’d like — but she lights up when she’s there. She still doesn’t have many words yet, but she’s working incredibly hard in speech, and we’re definitely seeing progress!

Gracie is still 100% G-tube fed, though we offer oral tastes when we can. She’s not very interested in much beyond water right now, but we know her curiosity will grow in her own time.

Healthwise, she’s been doing amazing — just a few minor illnesses these past few months and no hospital stays. We are so proud of her and so, so grateful.

Every day, we’re thankful for her incredible medical team at Mott, and forever grateful for the donor family who said “yes” in a moment of unimaginable grief. Their decision continues to give our girl the chance to thrive. 💙💛

Picture of our perfect girl: Lynlee Marie Photography

09/21/2025

Family Trip to Gull Meadow Farms | 9/20/2025

Address

1617 Tea Pond Court
Vicksburg, MI
49097

Telephone

+15745293444

Website

https://www.geheartwarriorfoundation.org/

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