Sisters by Heart

07/13/2026

We are incredibly honored to be the recipient of this very special fundraiser held in memory of Charlie. 💙
Charlie’s single ventricle journey, along with the mission of Sisters By Heart, was shared during a high school theatrical performance directed by his uncle, Jacob. Through the generosity and compassion of this wonderful community, even more individuals and their families will receive the support they need.
Jacob, thank you for honoring your nephew’s legacy in such a meaningful way and for using your gifts to make a lasting difference. Charlie’s impact continues to be felt, and we are so grateful to everyone who helped make this fundraiser possible.

07/10/2026

❤️💙 Roll Call: Single Ventricle Community

If you’re living with a single ventricle—or love someone who is—drop a ❤️💙 in the comments and tell us:

✨ Your age
✨ Your diagnosis
✨ Your Fontan (or other surgery) year
✨ One thing you wish more people understood about living with a single ventricle

Every story is different, but together we remind each other that no one walks this journey alone.

Whether you’re a parent, patient, caregiver, family member, or someone remembering a loved one, your voice matters here.

Let’s fill the comments with hope, encouragement, and connection. You never know who needs to see someone else’s story today.

💙 ❤️ Tag someone in the single ventricle community who should join the conversation.

07/04/2026

06/21/2026

Happy Father’s Day to all dads and father figures.

We honor the dedication, strength, and unwavering support you bring to your families and communities. Your presence helps build confidence, stability, and love in the lives of those who look up to you every day.

Thank you for all that you do, today and always.

05/25/2026

Today we honor the men and women who gave their lives for our country and our freedom. 🇺🇸
Behind every flag is a story, a family, a sacrifice, and a hero who will never be forgotten.
As we spend time with loved ones today, may we also take a moment to remember those who gave everything so we could have the freedoms we enjoy every day. ❤️🤍💙

05/18/2026

We are thrilled to announce our newest board member, Kate Doherty-Schmeck as the Director of Development and Partnerships.
Kate joins Sisters by Heart with experience in the congenital heart disease community shaped by both professional work and personal connection. At Boston Children’s Hospital, she supported global efforts to strengthen congenital heart care programs and later worked with patient and family organizations around the world to expand partnerships and support for people impacted by childhood-onset heart conditions. She has also represented the congenital heart community in global health discussions, including speaking at the United Nations about the needs of people living with CHD. As a family member to many individuals living with CHD, Kate understands firsthand the lifelong impact congenital heart diseases have on families. Based in CT, she is a proud mom of two and dog mom and is grateful to continue supporting and learning from the Sisters by Heart community.
We are so excited to have her!

05/18/2026

Reminder!!

05/03/2026

Some mothers remember the goodnight kisses they once gave.

Some whisper their children’s names to the sky.

Some are still waiting for a child they’ll never get to hold.

Every version is real. Every version is motherhood.

You are still a mother. Always.

BereavedMothersDay

05/01/2026

We’re proud to share a new American Heart Association scientific statement focused on education for families and patients living with congenital heart disease ( ).
This work reflects what we know to be true: learning doesn’t happen just once at diagnosis: it’s an ongoing, evolving process that families rely on throughout every stage of the journey.

Sisters by Heart is honored to have one of our Board of Directors members, Allison McCoy, contribute as a co-author on this publication. This work helps ensure that the lived experiences of heart families shape not only what is studied, but how education and support are delivered in real life.

At Sisters by Heart, we’ve always believed that informed, supported families are powerful. We’re committed to translating complex medical information into real, understandable language and creating spaces where families can learn from each other, because no one should have to navigate this journey alone ❤️ https://www.ahajournals.org/doi/10.1161/JAHA.125.046623