Fat Disorders Resource Society, Inc.

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Fat Disorders Resource Society, Inc.

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Dedicated to improving the quality of life for all people affected by adipose tissue disorders by supporting research, education, advocacy & collaboration.

FDRS is bringing patients, doctors, therapists and others together for research, education and advocacy of Dercum's Disease (DD), Lipedema/Lipoedema, Familial Multiple Lipomatosis (FML), and Madelung's Disease (MSL). These 4 subcutaneous adipose tissue (SAT) disorders have features in common with each other. The diseases are under-recognized and not well understood. We'd like to change that. Please check back for our new website launching soon.

28/10/2026

Registration Options Simplified

💡Full Conference: Thursday evening through Sunday. Includes both tracks and the complete FDRS 2027 experience, with opportunities to connect with fellow attendees, professionals, and exhibitors while exploring research, clinical care, treatment approaches, and lived experience.

💡Clinical Track: Thursday evening meet-and-greet, Friday, and Saturday. Designed for attendees primarily interested in clinical education, research, and advances in care.

💡Patient Summit: Saturday and Sunday. Designed for attendees primarily interested in patient experiences, treatment perspectives, education, and community connection.

☀Better Together: Bringing research, clinicians, patients, and advocates together to learn from one another and move the field of fat disorders forward.

📢FDRS 2027 Conference: Better Together April 8-11, 2027 at the Radisson Blu Mall of America, Bloomington, MN or Virtually!

Please use the link below to REGISTER NOW!
Attend In Person: https://bit.ly/4yOo509
Attend Virtualy: https://bit.ly/4z3wmhE

26/10/2026

📢FDRS 2027 HOTEL ROOM BLOCK NOW OPEN! 📢
📆 April 8-11, 2027
🔹 Full Conference/Clinical Track Evening Meet & Greet: April 8
🔹 Full Conference: April 9-11
🔹 Clinical Track: April 9-10
🔹 Patient Summit: April 10-11
⏰ Start Times: Fri 4/9 8:00am, Sat 4/10 7:00am, Sun 4/11 7:00am
The conference will conclude Sun 4/11 at 12:45p
🛏 Radisson Blu Mall of America, Bloomington, MN
💲$169/night 🙌 DISCOUNTED RATES AVAILABLE APRIL 7-12, 2027
🌐Book hotel room online using this link: https://bit.ly/4i5DBjd

26/10/2026

🐣Early Bird Registration for FDRS 2027 is Open!🐣
FDRS 2027 Conference: Better Together is HAPPENING on April 8-11, 2027 at the Radisson Blu Mall of America, Bloomington, MN or Virtually!

Join us at FDRS 2027: Better Together, where patients, advocates, researchers, and clinicians who study and treat these conditions will come together under one roof to share knowledge, exchange perspectives, and advance the field of fat disorders.

Hear the latest developments in research, advocacy, and treatment options from expert speakers presenting on topics within their respective areas of expertise. Connect with others who understand your experiences, build meaningful relationships, and be part of a community working toward better understanding, improved care, and meaningful progress.
When we bring research, clinical expertise, advocacy, and lived experience together, we are stronger. We are Better Together.

We're thrilled to bring back the Expanded Conference Format:

Choose the track that fits your interests:
🔹 Full Conference/Clinical Track Evening Meet & Greet: April 8
🔹 Full Conference: April 9-11
🔹 Clinical Track: April 9-10
🔹 Patient Summit: April 10-11

We cannot wait to see you there!!!

Please use the link below to REGISTER NOW!
Attend In Person: https://bit.ly/4yOo509
Attend Virtualy: https://bit.ly/4z3wmhE

03/10/2026

📢 Big News!! 📢
We asked and you answered!

We are proud to announce:
FDRS 2027 Conference
🗓 April 8 - 11, 2027
📍Minneapolis, Minnesota

More details to come!
Please help us get the word out! Forward, Share, Tell Everyone!

If you didn't get a chance to respond to our 2027 Conference Interest Survey, you still can! Let us know what you are interested in!
https://www.surveymonkey.com/r/LPX79NT

15/09/2026

Have you missed connecting with your community?

Have you missed hearing from patients, clinicians, researchers, and other medical professionals?

Well, we have missed YOU!! We are in discussions for hosting our next conference in April 2027 and we want to hear from YOU, our entire FDRS community!

If you have missed us, or are considering attending for the first time [in-person or virtually (LIVE)], please take a moment to complete a BRIEF attendee interest survey.

https://www.surveymonkey.com/r/LPX79NT

The survey takes less than 2 minutes. Share it with your community, the more voices we hear, the bigger we can dream for 2027.

02/06/2026

This month, we shine a light on lipedema, a chronic tissue disorder that affects women worldwide. Despite its prevalence, lipedema is often misunderstood, misdiagnosed, or dismissed, leaving many to struggle for years without answers.

Awareness leads to recognition.
Recognition leads to diagnosis.
Diagnosis leads to support and treatment.

Throughout June, we will be sharing educational resources, patient experiences, and ways you can help advocate for those living with lipedema. Together, we can increase understanding, reduce stigma, and help ensure that no one faces this journey alone.

04/05/2026

We have been working behind the scenes to strengthen and grow FDRS to better serve our community, expand our programs, and increase our impact

As part of this next chapter, we are proud to introduce our Board of Directors:

Briana Garrott, Interim President*
Michelle Morris, Vice President
Mariam Aladdin-Albakaye, Treasurer
Jerianne Wheaton, Community Engagement & Advocacy
Danielle Ditenhafer, Secretary
Polly Armour, Science Officer Emeritus
*Cheyenne Brinson, Extended Leave of Absence

We are confident in our mission for FDRS to:

-Expand patient and clinician support
-Strengthen community and medical partnerships
-Increase awareness and education around fat disorders

We are energized for what is ahead and remain committed to making a difference.
-B

23/04/2026

Let’s Connect!
We would love to hear from you! What are some positive ways connecting with others has helped you on your journey?

Over the past decade, online support through virtual groups and social media has greatly expanded access to resources, education, and community.

For me, when I first heard the word lipedema 12 years ago and received my diagnosis, explaining it to others often meant pointing out our differences just to help people somewhat understand. In 2014, I joined two early lipedema groups, Lipedema Sisters and Lipedema Fitness, each with fewer than 500 members at the time. For the first time, I could recognize shared experiences instead of focusing on what set me apart.
Attending and presenting at the FDRS Conference in 2016 was one of the best decisions I have ever made. It gave me the opportunity to build meaningful, in-person connections. Twelve years later, many of those relationships remain strong, and some have become lifelong friendships, people who understand in a way that is both rare and deeply meaningful.

What an incredible gift that has been.

I tag Aladdin-Albakaye our treasurer to share in the comments!!!

04/04/2026

April 4th is Dercum’s Disease Awareness Day 🧡

What is Dercum’s disease?
Dercum’s disease is a rare disorder that causes multiple, painful fatty growths called lipomas. These growths can press on nearby nerves, leading to chronic pain that can deeply affect daily life. Dercum's most often occurs in adults and is more common in women

Today is about compassion, awareness, and connection.
We stand with everyone living with Dercum’s.

Your experiences matter, your voices matter, and you are not alone 🧡

Help us spread awareness by sharing this post and learning more through the Fat Disorders Resource Society

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Website

http://fatdisorders.org/

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