Les Turner ALS Foundation

06/04/2026

Now live: My ALS Decision Tool™: Tracheostomy and Invasive Mechanical Ventilation (IMV).

Featuring insights from Dr. John Coleman and Matt Creen, this interactive resource helps individuals and families navigate important care decisions with trusted information and support. Developed in collaboration with Northwestern Medicine, Network of Excellence for ALS - NEALS, clinicians, caregivers, and people living with ALS.

Access the tool: https://buff.ly/3TWTkyl

06/04/2026

ALS changes everything.

As a former technology officer, Dr. Andrew Goldberg now depends on advanced communication tools to connect with his family and the world around him. Through eye-gaze technology and a sharp sense of humor, Andrew continues to show up for his family - offering love, wit, and connection in new ways.

Watch Andrew’s story and please consider making a gift today to support people living with ALS: https://buff.ly/VykD1j5

06/03/2026

Today, on Global Running Day, we're celebrating the incredible runners who go the distance for the ALS community.

Whether you've raced with Team Race for ALS in the past or are training for this year's event, thank you for every mile, every step, and every effort made in support of people living with ALS and their families.

We’re grateful for our running community and all that you do to advance ALS care, support, and research.

06/03/2026

What a day at Wrigley Field!

Thank you to everyone who joined us for Lou Gehrig Day with the Chicago Cubs. It was wonderful to spend the afternoon together celebrating community, making connections, and raising awareness for ALS.

06/03/2026

Thank you for being part of the 2026 Lew Blond Memorial Run/Walk.

From the 5K and 1-Mile Walk to the Little Lew Dash, it was incredible to see the community come together in support of the Les Turner ALS Foundation and in memory of former Maple School teacher Lew Blond.

Thanks to the generosity of this community, over $14,000 was raised in support of the Foundation and its mission to provide care, support, and hope for people living with ALS and their families.

Thank you to the organizers, volunteers, sponsors, participants, and everyone who showed up to make the day so special. We’re grateful for your support and for the community that continues to make this event possible year after year.

06/03/2026

06/02/2026

The National ALS Registry celebrates ’s official third annual Lou Gehrig Day. Today we honor and celebrate his legacy and the attention he brought to ALS in the United States. Learn more about the ALS Registry’s work today at buff.ly/GixR0hO

06/02/2026

A major step forward for the ALS community in Illinois.

Together, we helped secure $300,000 in state funding for ALS care and research—an important investment that will help expand care coordination, strengthen support for families, improve access to multidisciplinary care, enhance outreach efforts, and advance research focused on life-enhancing treatments.

This achievement reflects the power of advocacy and what is possible when a community comes together. Thank you to Rep. Kevin Olickal, Sen. Ram Villivalam, the legislators who championed this effort, and everyone who responded to advocacy action alerts and helped raise awareness across Illinois.

Read the full story: https://buff.ly/989vinh

06/01/2026

Thank you to everyone who joined us for Lou Gehrig Day with the Chicago White Sox.

From the pre-game tailgate to the game itself, it was wonderful to spend the day together as a community, raise awareness for ALS, and celebrate the connections that make these events so special.

We loved seeing so many members of the ALS community at the ballpark!

06/01/2026

Tomorrow’s the day! We’re excited to gather with the ALS community for Lou Gehrig Day with the Chicago Cubs at Wrigley Field.

We can’t wait to meet everyone, enjoy a day at the ballpark together, and celebrate the community that makes these events so special.

Want to join us? Check if there are still tickets available: https://buff.ly/r5dT6kF