FSHD Society Southwest

FSHD Society Southwest The Southwest's division of the facioscapulohumeral muscular dystrophy (FSHD) Society. The FSHD Society.

04/15/2025

Checkout our upcoming webinar and latest updates here:

02/18/2025

FSHD UNIVERSITY WEBINAR
Anesthesia During Surgery for People with FSHD
with Bruna M. Castro de Oliveira, MD
​Thursday, February 20, 2025
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT​​

01/13/2025

Avidity Biosciences, Inc. (Nasdaq: RNA), a biopharmaceutical company committed to delivering a new class of RNA therapeutics called Antibody Oligonucleotide Conjugates (AOCs™), today announced its progress and planning for a transformational year in 2025. These major anticipated milestones include...

01/07/2025

An amazing encounter .

01/06/2025

Big pharmas are investing in FSHD therapies

Kate therapeutics info
11/23/2024

Kate therapeutics info

FSHD is caused by aberrant expression of the DUX4 gene in muscle tissue, which leads to death of muscle and replacement by fat.

11/22/2024

Novartis just purchased Kate for 1.1 billion. This puts Novartis strongly in the Fshd search for a treatment and cure. Great news.

Take advantage of this tool for a better life
11/18/2024

Take advantage of this tool for a better life

BetterLife FSHD is more than just a research tool for managing your symptoms—it’s where your personal health journey intersects with innovative discoveries. By joining, you become part of a collective effort aimed at driving the development of better treatments and therapies for FSHD. BetterLife FSHD provides you with the resources and support you need while ensuring your voice is heard in the research community. Join BetterLife today and make an impact. Learn more at BetterLifeFSHD.org.

Sign up for this clinical trial.
10/31/2024

Sign up for this clinical trial.

Avidity Biosciences has begun enrollment of Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. This cohort will assess del-brax in people living with FSHD, ages 16-70 and will measure changes in DUX4 biomarkers.

The expanded age range for this cohort is monumental and a direct result of your advocacy. Visit https://bit.ly/4htbRm0 for more information about this exciting news!

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Tulsa, OK

Telephone

+19182095686

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