BreatheStrong CF

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Real-time resources empowering people with cystic fibrosis In 2024, our merged national organization became BreatheStrong CF.

In 2023, two organizations, Miles for Cystic Fibrosis and the Cystic Fibrosis Lifestyle Foundation merged to optimize their reach and support the cystic fibrosis community. Our Mission:
BreatheStrong CF advances the physical and mental wellness of people with cystic fibrosis through education, direct support, and empowering opportunities. Our Vision:
We envision a new era in which people with cystic fibrosis are empowered to live above and beyond perceived limitations.

10/15/2026

From tummy time to playgrounds and everything in between, every little movement helps build the foundation for an active life.

Read “Navigating Growth With Cystic Fibrosis: The Role of Movement” by By Jhoanna Rae Marquez, PT, DAC, INHC on the BreatheStrong CF Wellness Blog at https://breathestrongcf.org/navigating-growth-with-cystic-fibrosis/

10/14/2026

Celebrating our 2026 BreatheStrong CF Impact Award recipient: Molly Taggart!

The BreatheStrong CF Impact Award recognizes someone who does not have CF, but whose work, volunteer service, and dedication have made a significant impact on the cystic fibrosis community.

This year, we are honored to recognize Molly Taggart.

For nearly 20 years, Molly has dedicated her career to the CF community through the Cystic Fibrosis Foundation beginning with the Georgia Chapter and now leading Field Operations nationally. But Molly’s impact goes far beyond her title.

Molly is a champion for people living with CF, a mentor to colleagues, a master at rallying volunteers around a mission, and someone who has built lasting relationships with families, donors, volunteers, and advocates across the community.

Most importantly, Molly leads with kindness, compassion, and heart. She doesn't simply support families affected by CF - she fights alongside them, celebrates with them, and becomes part of their extended family.

Molly has been a tremendous supporter of BreatheStrong CF and someone who has always believed in our mission and the people we serve.

Molly, thank you for nearly two decades of showing up, bringing people together, and making the CF community stronger. We are so grateful for you! Congratulations on the 2026 BreatheStrong CF Impact Award! 💙

Join us in celebrating Molly at Inspired!, Thursday, November 19. Tickets are available at https://donorbox.org/events/967079/steps/choose_tickets

10/13/2026

You don’t have to navigate work and CF alone. In Purpose & Passion: Reasonable Accommodations, CF warrior Colin Butler explains how the Americans with Disabilities Act (ADA) can help you request adjustments—like flexible schedules, remote work, or modified duties—to support your health while doing your best at work.

This post also covers disability benefits, resources like the Job Accommodation Network, and programs that allow part-time work while receiving support. The takeaway: there are options, flexibility, and tools to help you thrive—your career and your health can coexist.

Read the blog at: https://breathestrongcf.org/passion-and-purpose-reasonable-accomodations/

10/12/2026

Shannon continues her tips on immunity support with information regarding iron.

10/09/2026

Snacks to Support Your Immune System by Stacey Fogarty-Brown, RD breaks down the myth of “boosting” your immune system and shares simple, nutrient-dense snack ideas to help support a healthy, functioning immune system.

From yogurt parfaits and hummus to peanut butter toast and avocado toast—these easy options pack in protein, fiber, healthy fats, fruits, and veggies.

Read the blog for practical ideas to fuel your body and support your wellness!

Read the post at https://breathestrongcf.org/snacks-to-support-your-immune-system/

10/08/2026

Celebrating our 2026 BreatheStrong CF Inspire Award recipient: Meghan Barley!

The BreatheStrong CF Inspire Award honors a person living with cystic fibrosis who embodies our values, rises above limitations, stays active to the best of their ability, and inspires others in the CF community.

This year, we are honored to recognize Meghan for the many ways she shows up for others -building community and support for CF families, supporting friends navigating challenging journeys, sharing openly about overcoming the challenges of CF, and demonstrating what it looks like to balance a career, family, and CF while continuing to thrive.

And she doesn't just support our community - Meghan serves as an active member of the BreatheStrong CF Board, helping us advance our mission and serve others living with CF.

The Inspire Award was first presented to BreatheStrong CF charter board member David Adkins, who lived with CF and ran four marathons, embodying the spirit behind the phrase, “CF is a marathon disease.”

Meghan carries that spirit forward in her own way - by showing up, lifting others up, and reminding us that CF may be part of our story, but it doesn't have to define our limits.

Congratulations, Meghan! We are so grateful for you and all the ways you inspire our CF community. 💙

We will present the award to Meghan at Inspired! - a social event benefiting BreatheStrong CF. For tickets to the Chamblee, GA event, visit https://donorbox.org/events/967079/steps/choose_tickets

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10/07/2026

Balancing CF and work comes with ups and downs—but it’s manageable with the right strategies. In Purpose & Passion: Managing CF & Work, CF warrior Colin Butler shares practical tips for navigating energy fluctuations, scheduling tasks, and using tools to make work feel doable.

From understanding your “spoons” to batching tasks on high-energy days, this post emphasizes flexibility, self-awareness, and grace—showing that adapting to your body’s needs is a sign of strength, not weakness.

Read the post at https://breathestrongcf.org/purpose-passion-managing-cf-work/

10/06/2026

Stress in kids with cystic fibrosis isn't always easy to spot. Sometimes it looks like poor sleep, low energy, irritability, or simply not acting like themselves.

You may have heard of heart rate variability (HRV) from a smartwatch or fitness tracker. While HRV isn't a diagnosis or a score to worry about, it can be one small piece of the puzzle—helping us better understand how a child's body is responding to stress, rest, and recovery.

In CF care, emotional health matters just as much as physical health—and sometimes the most important signs aren't found in the numbers.

Read the blog at https://breathestrongcf.org/heart-rate-variability-what-parents-should-know-about-stress-in-kids-with-cf/

10/05/2026

Shannon talks Immunity Support this month, starting with information about probiotics.

10/04/2026

Episode 6: CF Spouses Have Something to Say - In this episode, we turn the mic toward the partners who walk alongside people with CF: the joys of building a life and family together, and the less-visible weight that chronic illness can place on a marriage.

Research shows that CF spouses and romantic partners often carry a significant emotional load, including elevated anxiety, depression, and social isolation that can deepen as lung function declines. Many partners put their own needs on hold, manage anticipatory grief, and absorb financial pressures tied to their spouse's health — all while support systems built specifically for them remain few and far between.

We're joined by three women navigating this reality in their own ways: Jennifer Johnson, whose husband Drue is 16 years post-transplant; Megan Barker, founder of Project CF Spouse, a nonprofit supporting partners of people with CF; and Rebecca Jernigan, raising a two-year-old with her husband of ten years, Cody. Together, they open up about job lock, the decision to start a family, and what it really means to love someone with CF for the long haul.

Bold Enough to Ask tackles the sexual and reproductive health questions people with CF don't always get to ask out loud — with Season 1 centering the experiences of men living with CF.

Listen wherever you enjoy podcasts, or watch it at https://breathestrongcf.org/bold-enough-to-ask/

Address

Tucker, GA
30085

Telephone

+17707656508

Website

http://www.breathestrongcf.org/

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