BreatheStrong CF

BreatheStrong CF Real-time resources empowering people with cystic fibrosis In 2024, our merged national organization became BreatheStrong CF.

In 2023, two organizations, Miles for Cystic Fibrosis and the Cystic Fibrosis Lifestyle Foundation merged to optimize their reach and support the cystic fibrosis community. Our Mission:
BreatheStrong CF advances the physical and mental wellness of people with cystic fibrosis through education, direct support, and empowering opportunities. Our Vision:
We envision a new era in which people with cystic fibrosis are empowered to live above and beyond perceived limitations.

Join us in celebrating one of our incredible BreatheStrong CF team members, Rima Manomaitis, who competed in the 2026 Tr...
06/25/2026

Join us in celebrating one of our incredible BreatheStrong CF team members, Rima Manomaitis, who competed in the 2026 Transplant Games in Colorado over the weekend. Rima is a two-time double lung transplant recipient who not only competed in the 5K and Sprint events but also brought home a GOLD MEDAL in the Long Jump! 🥇

Way to go, Rima! Your determination, resilience, and commitment to living life to the fullest are truly inspiring.

Rima utilized a BreatheStrong CF Exercise Grant to help support her registration and training for the Transplant Games. Stories like hers are exactly why our mission matters—helping people with CF access the resources they need to stay active, pursue their goals, and thrive.

To support BreatheStrong CF and help make more success stories like Rima's possible, donate at https://donorbox.org/2025-2026-fundraisers/fundraiser/rima-manomaitis-1

Cool down, fuel up, and hydrate with our CF Power Slushie!Packed with fresh fruit, healthy fats, electrolytes, and optio...
06/24/2026

Cool down, fuel up, and hydrate with our CF Power Slushie!

Packed with fresh fruit, healthy fats, electrolytes, and optional protein boosts, this refreshing slushie is a delicious way to support energy and hydration, especially during hot days and active adventures.

Check out Buster's latest snack and the bonus version he made for his sister. Get the recipe and watch the step-by-step video at https://breathestrongcf.org/cf-power-slushie/

Smaller, frequent meals are easier to tolerate in heat than large, heavy meals. Pair carbs + protein (like yogurt and fr...
06/23/2026

Smaller, frequent meals are easier to tolerate in heat than large, heavy meals. Pair carbs + protein (like yogurt and fruit, a smoothie with some peanut butter, or crackers with hummus) to maintain energy and prevent fatigue.

06/18/2026

Rima is keeping her training interesting as she climbs steps to get her legs (and lungs) ready for the Transplant Games!

Let’s be real—staying socially connected with CF can feel complicated.But connection isn’t optional. It’s part of what k...
06/17/2026

Let’s be real—staying socially connected with CF can feel complicated.

But connection isn’t optional. It’s part of what keeps us grounded, supported, and human. It doesn’t have to be big. Start small. A message. A call. A moment of laughter.

Find what fills your cup—and build more of that into your life, in ways that work for you.

Social Wellness is important too. Read the post at https://breathestrongcf.org/connecting-matters-social-wellness/

Some foods can help hydrate you. Cucumbers, strawberries, watermelon and lettuce can all help you meet your hydration go...
06/16/2026

Some foods can help hydrate you. Cucumbers, strawberries, watermelon and lettuce can all help you meet your hydration goal.

Perfect for hot summer days, this chilled soup is packed with hydrating ingredients and can easily be boosted with extra...
06/15/2026

Perfect for hot summer days, this chilled soup is packed with hydrating ingredients and can easily be boosted with extra calories, protein, and healthy fats.

Get the recipe at https://breathestrongcf.org/cucumber-gazpacho/

06/14/2026

While still on vacation at her second location in Vilnius, Lithuania, Rima is sticking to her plan of at least running a mile - regardless of the many more thousands of steps she was going to walk that day. Taking in all the town has to offer, Rima is loving the cobblestone and historic buildings.

Living with CF—whether personally or as a caregiver—can feel heavy, and no one should have to carry it alone. In More Th...
06/13/2026

Living with CF—whether personally or as a caregiver—can feel heavy, and no one should have to carry it alone. In More Than Lungs: You Don’t Have to Do This Alone, CF warriors Colin Butler and Sam Monson highlight the power of connection, from CF-aware therapists and peer mentors to support groups and caregiver resources.

This post is a reminder that support isn’t a last resort—it’s part of staying well. Help exists, community exists, and you deserve both.

Read the post at https://breathestrongcf.org/more-than-lungs-you-dont-have-to-do-this-alone/

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