BreatheStrong CF

BreatheStrong CF Real-time resources empowering people with cystic fibrosis In 2024, our merged national organization became BreatheStrong CF.

In 2023, two organizations, Miles for Cystic Fibrosis and the Cystic Fibrosis Lifestyle Foundation merged to optimize their reach and support the cystic fibrosis community. Our Mission:
BreatheStrong CF advances the physical and mental wellness of people with cystic fibrosis through education, direct support, and empowering opportunities. Our Vision:
We envision a new era in which people with cystic fibrosis are empowered to live above and beyond perceived limitations.

In hot weather, you can lose more than a liter of fluid per hour depending on your activity level, so make sure you alwa...
06/02/2026

In hot weather, you can lose more than a liter of fluid per hour depending on your activity level, so make sure you always pack water on summer outings or have a water bottle handy if you’re in the heat.

05/30/2026

If you missed our weekly tips on protein and the value it has, check our Shannon Stamper's monthly recap.

Don't get caught up on numbers! Despite what you may hear elsewhere online, protein needs are not extremely hard to meet...
05/28/2026

Don't get caught up on numbers! Despite what you may hear elsewhere online, protein needs are not extremely hard to meet. As long as you are conscious about including it in most meals or snacks, you should be meeting your needs. Talk to your dietitian if you think you need extra protein or want to start a supplement.

Men with CF desire comprehensive SRH discussions initiated by their CF team beginning in early adolescence, but many rep...
05/28/2026

Men with CF desire comprehensive SRH discussions initiated by their CF team beginning in early adolescence, but many report that SRH conversations with their care teams are brief and not comprehensive.

This not only leaves a gap in knowledge, but also has mental health ramifications. This episode is an opportunity to unearth men’s questions on SRH and hold candid conversations about their experiences around sexual function.

Streaming now where you enjoy podcasts. Or, visit https://boldenoughtoask.org

05/27/2026

Progress over perfection! Rima is starting to build some distance on her runs as she gets ready to tackle the 5K distance at the Transplant Games of America. Check out her video update and and drop a ❤️ to cheer her on!

05/27/2026

Meet Annabelle — an active teen from NC who wanted the freedom to keep up with life while staying on top of her treatments. Through the BreatheStrong+ program, she applied for an AffloVest so she could manage her care on the go and keep doing what she loves. Check out Annabelle's story!

Resilience isn’t about pretending you’re okay—it’s about showing up, even when things are hard. In our next blog we expl...
05/26/2026

Resilience isn’t about pretending you’re okay—it’s about showing up, even when things are hard.

In our next blog we explore what emotional resilience really looks like living with CF—no toxic positivity required. It’s shifting your mindset, celebrating small wins, setting boundaries, and giving yourself permission to rest and feel it all.

Because strength isn’t about having it all together… it’s about learning how to keep going in a way that honors YOU. Read the post at https://breathestrongcf.org/more-than-lungs-building-emotional-resilience/

For those with CF, protein isn’t just a trend—it’s essential. From supporting muscle and metabolism to helping meet high...
05/24/2026

For those with CF, protein isn’t just a trend—it’s essential. From supporting muscle and metabolism to helping meet higher energy demands, getting enough protein can make a real difference in how you feel day to day.

Stacey Fogarty-Brown, RD shares more about the importance of protein in our newest blog post at https://breathestrongcf.org/more-protein/

Extra protein doesn’t equal extra muscle. Extra protein is either used as a source of energy or stored as fat.
05/23/2026

Extra protein doesn’t equal extra muscle. Extra protein is either used as a source of energy or stored as fat.

05/22/2026

Rima is in the thick of training for the Transplant Games of America and training has been a roller coaster! There have been highs and lows. Successes and set back. Watch her video to learn all about it!

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