Rett Syndrome Research Trust

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Trumbull, CT
Rett Syndrome Research Trust

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Fighting to cure Rett Syndrome and MECP2 related disorders. RSRT is the only nonprofit focused solely on a cure for Rett syndrome.

Achieving success takes a deep understanding of the relevant science, an environment built for scientific collaboration, and experience with drug and business development. RSRT is the only organization with a plan to achieve a cure and that has the staff with the necessary drug and business development experience to execute on that plan. Today RSRT is building on incredible scientific and industry momentum by implementing six genetic-based strategies that tackle Rett from every angle. Every single company pursuing a cure for Rett is able to do so because they leveraged discoveries and resources that were incubated with RSRT funding. RSRT is the home of the Rett cure community, and we are confident that together we will cure Rett syndrome.

11/04/2026

Introducing our Ask Us Anything series! We want to hear from our community about all things Rett Syndrome, and any questions you may have for us about our organization, the latest research, or life with Rett. Ultimately, we want to help Rett families and friends understand a little more about the the science and what we do on a daily basis.

Genetic medicine research can be overwhelming, but we're here to simplify it! What do you wish you understood more about genetic medicines?

11/03/2026

✨ This week is finally here.

Safe travels to everyone making their way to Beverly Hills for Reverse Rett LA.

We're looking forward to an incredible evening with families, supporters, and friends who are all taking action to bring us closer to cures. No words could adequately express our gratitude to the Abramson, Bohn, Epstein, and Valner families, who make it all happen out of love for all with Rett syndrome.

https://reverserett.org/events/reverse-rett-la-2026/

11/03/2026

✨ This week, it all comes together.

Months of planning are about to become one unforgettable evening.

Thank you to everyone who's helped bring Reverse Rett Phoenix to life!
https://reverserett.org/events/reverse-rett-phoenix-2026/

11/02/2026

11/02/2026

10/30/2026

When we asked what matters most to families living with Rett syndrome, one response came through loud and clear: communication.

RSRT funding helped support the development of Rett-ORCA, the first tool specifically designed to measure communication abilities in individuals with Rett syndrome. Because understanding communication is an important step toward measuring progress and advancing treatments.

10/29/2026

Thinking about hosting your first fundraiser for Rett syndrome research? Take it from someone who's been there! Seasoned event organizer and Rett parent Caroline Van Arsdale shares her top tips, lessons learned, and advice for turning an idea into meaningful impact.

Every fundraiser starts somewhere. Yours could be next!

10/28/2026

Life with Rett syndrome means constantly adapting, finding a new normal, and navigating challenges others may never see.

We asked parents and grandparents to share their everyday realities, how they've adjusted, and what they wish more people understood about life with Rett.

10/27/2026

Thank you and congratulations to the Gray family on a truly successful event, the Riverfront Rally for Rett! On September 26, the banks of the Allegheny came alive with good food, great people, custom-brewed purple b**r, and a "Purple Carpet" show where every one of our stars got their moment in the spotlight, cheered by name as they rolled or walked the runway. 💜

Great fundraisers start with one idea and bloom from there. If you've been dreaming about hosting your own event but aren't sure how to get started, Kati Gray would love to share how she brought hers to life.

Every event gets us closer.

10/26/2026

A mother’s love can inspire incredible action. 💜

For Addie, that meant turning her love for her daughter, Rose, into a mission to make a difference. What started as a desire to do something grew into crowdfunding and planning an event to raise awareness and support for Rett syndrome research.

Hear how Addie got started, what inspired her to take action, and why every effort matters in moving genetic medicines forward.

Address

67 Under Cliff Road
Trumbull, CT
06611

Telephone

+12034450041

Website

https://reverserett.org/

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