Rett Syndrome Research Trust

Rett Syndrome Research Trust Fighting to cure Rett Syndrome and MECP2 related disorders. RSRT is the only nonprofit focused solely on a cure for Rett syndrome.

Achieving success takes a deep understanding of the relevant science, an environment built for scientific collaboration, and experience with drug and business development. RSRT is the only organization with a plan to achieve a cure and that has the staff with the necessary drug and business development experience to execute on that plan. Today RSRT is building on incredible scientific and industry

momentum by implementing six genetic-based strategies that tackle Rett from every angle. Every single company pursuing a cure for Rett is able to do so because they leveraged discoveries and resources that were incubated with RSRT funding. RSRT is the home of the Rett cure community, and we are confident that together we will cure Rett syndrome.

For the first time ever we’re running a spring matching campaign. Every dollar raised through crowdfunding or donated on...
06/11/2026

For the first time ever we’re running a spring matching campaign. Every dollar raised through crowdfunding or donated on this page is matched by the Rossin family, up to $100,000 total. Start your campaign here. Donate here. The match runs until July 1, so please act now to help RSRT speed the research to cures for our loved ones!

💚 DONATE: https://tr.ee/DonateRett

🍀 FUNDRAISE: https://tr.ee/FundraiseRett

Congratulations to the Neurogene Inc. team for completing dosing of all the clinical trial participants. We look forward...
06/08/2026

Congratulations to the Neurogene Inc. team for completing dosing of all the clinical trial participants. We look forward to a data update later this year.

A big shout-out and thank you to Greg and Danielle Foley for hosting another amazing Miracle for Molly event in NJ!Thank...
06/05/2026

A big shout-out and thank you to Greg and Danielle Foley for hosting another amazing Miracle for Molly event in NJ!
Thanks to their hard work and the generosity of many, the event raised nearly $200,000.

This incredible achievement was made possible by sponsors, donors, volunteers, and a community united by the shared goal of accelerating research for Rett syndrome.

Thank you to everyone who helped make this event such a memorable success!

https://reverserett.org/events/miracle-for-molly-2026/

06/05/2026

One experiment changed everything. The reversal worked in mice. Monica has spent every moment since ensuring it works for people too. The work isn't done. What comes next, and when, is in large part, up to how much our community can raise.

06/03/2026

Nora Vaughn is back with her joke booth, and she's not kidding around.

For the second year in a row, this 10-year-old raised over $1,000 for her big sister Susie, who has Rett syndrome.

Good jokes. A QR code. And a whole lot of heart.

https://tr.ee/donaterett

05/18/2026

Have you heard? We’ve just launched the Spring Match! We need to raise $100,000 in crowdfunding donations by the end of June. Monica explains how GoFundMe makes launching a crowdfunding campaign easy and quick. Start your campaign now and help ignite the match. 🍀

Learn more here:
https://fundraise.reverserett.org/campaign/798737/landing

05/16/2026

Thanks to the generosity of Debby & Pete Rossin, our Spring Crowdfunding Match campaign is now live! Tim Freeman, RSRT’s chief development officer and dad to Eleanor who has Rett, is putting his money where his mouth is and will personally donate $250 to the first 20 crowdfunding campaigns to get them started.

Start a campaign today!
https://tr.ee/6hSYyw

05/16/2026

Thanks to the generosity of Debby & Pete Rossin, our Spring Crowdfunding Match campaign is now live! Tim Freeman, our chief development officer and dad to Eleanor who has Rett, is putting his money where his mouth is and will personally donate $250 to the first 20 crowdfunding campaigns to get them started.

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67 Under Cliff Road
Trumbull, CT
06611

Telephone

+12034450041

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