Life with the UBA 5 Gene Mutation

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Life with the UBA 5 Gene Mutation This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation. This page represents the UBA5 Foundation.

08/31/2026

The 2026 Results are in...

That’s a wrap on year 8 of our UBA5 walk. Thank you Kevin and Madison for sharing Elliot’s story. Thank you to each and ...
08/22/2026

That’s a wrap on year 8 of our UBA5 walk. Thank you Kevin and Madison for sharing Elliot’s story. Thank you to each and everyone of you who took the time out of your day to make our walk a success! We didn’t let the storms stop us!! See you next year and bring a friend.

08/19/2026

Only 4 more sleeps until the 2026 UBA5 Awareness Walk!!!

Only 5 more days until we are blessed with Elliott’s story!!
08/18/2026

Only 5 more days until we are blessed with Elliott’s story!!

We are thrilled to announce that our 2026 UBA5 Guest Speaker will be Madison Bailey! Traveling all the way from Georgia to Kansas, she will share Elliot's inspiring UBA5 story with all our walk participants. Don’t miss out—make sure to sign up so you can hear their inspiring journey. We can't wait to see you there!

Shout out to our silver sponsors. Your support makes an impact. THANK YOU!
08/15/2026

Shout out to our silver sponsors. Your support makes an impact. THANK YOU!

Thank you to Greg Dempewolf for your sponsorship of our 2026 UBA5 Awareness Walk. Your sponsorship is appreciated & help...
08/14/2026

Thank you to Greg Dempewolf for your sponsorship of our 2026 UBA5 Awareness Walk. Your sponsorship is appreciated & helps our event be successful. THANK YOU!

Thank you to the Shows Family for your continued support of our UBA5 Walk. Your donation is appreciated.
08/13/2026

Thank you to the Shows Family for your continued support of our UBA5 Walk. Your donation is appreciated.

We extend a huge thank you to Warm Welcome Quilts for their ongoing partnership with the UBA5 Foundation. For the past e...
08/12/2026

We extend a huge thank you to Warm Welcome Quilts for their ongoing partnership with the UBA5 Foundation. For the past eight years, Warm Welcome Quilts has been a dedicated sponsor of the UBA5 Walk. Not only do they provide generous sponsorship, but they also contribute cozy quilts for our door prizes. So, if you're ever in need of a warm quilt, be sure to contact Warm Welcome Quilts!

We extend our heartfelt gratitude to the Bigham Family. Your generous donations over the past three years have enabled o...
08/11/2026

We extend our heartfelt gratitude to the Bigham Family. Your generous donations over the past three years have enabled our foundation to contribute to UBA5 research. Your support is truly appreciated.

We would like to extend our heartfelt gratitude to the Austin 1st Foundation for their generous support of our walk. Fou...
08/11/2026

We would like to extend our heartfelt gratitude to the Austin 1st Foundation for their generous support of our walk. Founded by the parents of our beloved UBA5 Warrior, Austin, Anthony and Lindsey continue to make a positive impact by aiding other foundations and advancing research for UBA5 and other rare diseases through their efforts with the Austin 1st Foundation, all in memory of their cherished UBA5 Warrior, Austin. https://www.austin1stfoundation.org/

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Topeka, KS
66610

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