Korie and Kacie Foundation

Korie and Kacie Foundation Helping parents through child loss!! Our Story

On October 7th, 2013, we lost our 2nd daughter Korie to a heart condition called Long QT Syndrome.

Long QT Syndrome is a genetic arrhythmia disorder of the heart, which can lead to sudden cardiac arrest when someone is startled, sleeping, resting, or exercising. Soon after her birth, at just four days old, Korie underwent open-heart surgery to have a pacemaker placed to regulate her heart rate. Her prognosis was great and her specialists expected her to live a healthy normal life. Unfortunately

at just 5 ½ months old, while napping at her grandmothers house, our healthy, happy, vibrant, sweet baby girl went into cardiac arrest and passed away in her sleep. After the shock of losing Korie, we were advised to do genetic testing on the entire family, and found that she was not the only one in our family carrying the Long QT Syndrome gene. Korie’s older sister Brodie and I (her mom) are both carriers, even though we have never displayed any clinical symptoms as Korie did. Brodie was such a loving sister to Korie, and we did not want her to grow up without a sibling to play with and love on. Knowing that the odds of having another child who carried the Long QT gene were not favorable, and that we could not imagine having to go through such a devastating loss once again, we decided to do IVF for our next pregnancy. IVF gave us the security of knowing that the embryo chosen would not carry the Long QT gene, and we would hopefully never again have to experience losing a child. Our IVF was successful, and on July 29 2015 our 3rd daughter, Kacie, was born healthy as can be. She brought so much joy into our lives and we looked forward to seeing her grow and watching her play with her big sister. To everyone’s shock and dismay, our precious daughter Kacie also passed away in her sleep at just 2 ½ months of age. Her cause of death thus far has been ruled as undetermined, but in our hearts we feel it was a heart condition as well. After her passing we had both autopsy reports compared and in Korie’s autopsy report there was something else found called Histiocytoid Cardiomyopathy which an extremely rare condition. Unfortunately, we were not made aware of this gene abnormality in Korie until after Kacie had passed away, so we were unable to screen for it during the IVF process. We currently have a specialist working to see if Kacie had this gene too, but the process could take years. Thank you for reading our story and helping us honor our daughters,

The Joiner Family (Julie, Brad, and Brodie)

07/04/2025
01/07/2025

I want to give a Huge Shout out and thank you to Elizabeth Curtis and the San Antonio Area Foundation for making a donation to the Korie and Kacie Foundation!! This donation is in honor of Gerald N. And Helen B. McAllister and means a lot to the families we help. If you work for a business or small company please ask if they would be interested in donating for a tax write off.

The Korie and Kacie Foundation was able to make a small donation to help baby Aliyah's family with their funeral expense...
12/29/2024

The Korie and Kacie Foundation was able to make a small donation to help baby Aliyah's family with their funeral expenses!! If you are able and can make an additional donation to this family they would greatly appreciate it. Mom and Dad are young in there 20s, Aliyah was their 2nd child. They were able to celebrate their first Christmas with Aliyah only for it to end in a tragedy by finding her passed away in her sleep. Please consider donating any amount!!

I haven't had a family reach out in a long time so if you can help by donating that would be great. You can donate to go...
04/27/2023

I haven't had a family reach out in a long time so if you can help by donating that would be great. You can donate to go fund me link or on here. My donation does not charge a fee. This is also moms 2nd loss.

Giovanii Mangum Loved laughing . What made him crack up was
1. Getting tickled
2.hearing his theme song when his sister dawnya did it in a funny voice and is calling all his random nicknames like Bizzle, Bonni, Gio Bizzle
3.the kids annoying mommy 🤣 He loved to hear chaos

What were his favorite hobbies
1.listening to drake
2. Certified beat boxer.
3. Loved to work them legs (probably has stronger once’s then micheal )

Words to describe him and personality traits
Joyce
Memorable
Happy
Handsome
Determined
Comfortable

He had best smile in the room could light up the room with it . Always let he presence be known with the signature Giovanni scream. The best of us .

Hi, I'd really appreciate it if you would share or donate to this GoFundMe, https://gofund.me/124129df

It's that time again. We are teaming up with Kendra Scott to do a fundraiser for the non-profit. Nov. 30th is the day. P...
11/21/2022

It's that time again. We are teaming up with Kendra Scott to do a fundraiser for the non-profit. Nov. 30th is the day. Please share and shop on that day. You can shop in person or online with the code.

If you would like to donate to the foundation for Kacie birthday all money will go to helping another family experience ...
07/29/2022

If you would like to donate to the foundation for Kacie birthday all money will go to helping another family experience the worse thing every!! Also please like and share the foundations page I would love to have a 1,000 likes!!

We had a great weekend getaway helping these loss moms heal!!
07/25/2022

We had a great weekend getaway helping these loss moms heal!!

07/25/2022

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Tomball, TX

Telephone

+18327244299

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