KMT2B Dystonia Foundation

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Toledo, OH
KMT2B Dystonia Foundation

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Our mission is to accelerate awareness, advance treatment, and offer hope to every individual and family affected by KMT2B-related disorders.

08/24/2026

10 Ways to Participate!

There isn’t one right way to participate. There’s YOUR way.

Our September challenge is designed for all ages and all abilities.

Walk. Roll. Stretch. Dance. Swim. Garden. Do therapy. Move to music. Every movement counts.

The goal isn’t perfection.
The goal is participation.

For just $30, you’ll join a community moving together to fund research and raise awareness for KMT2B-related disorders.

💙 Choose the movement that fits your life.
💙 Complete 30 days in September.
💙 Help move research forward.

Ready to join us? Registration is open! Registration link in comments.

Tag a friend who would make a great teammate!

08/18/2026

Moving looks different for everyone. And that’s exactly the point. 💙

Whether you walk, roll, stretch, dance, use an AAC device, garden, bike, or simply take one extra step today—you belong in this movement.

This September, we’re inviting YOU to join our 30 Days. $30. Moving Toward a Cure challenge.

✅ Move in a way that works for you.
✅ Donate $30 (or fundraise even more!).
✅ Help accelerate research for KMT2B related disorders.

Every movement matters. Every participant matters.

Registration is now open! Join individuals, families, friends, schools, and teams as we move together toward a cure. Registration link in comments. More info will be sent to those who register/donate.

08/17/2026

This September, join the KMT2B Dystonia Foundation for our “Moving Towards a Cure” challenge. We invite you to commit to 30 days of movement while raising awareness and support for those living with KMT2B dystonia and other forms of dystonia.
Our challenge is simple: $30 • 30 Days • Move Any Way You Can

Walk, run, roll, bike, swim, dance, stretch, practice yoga, or move in whatever way is meaningful and accessible to you. Every movement counts. Whether you’re living with dystonia, supporting a loved one, or standing with our community, you can make a difference.

Invite your family, friends, coworkers, classmates, or neighbors to join you. Share your journey throughout September and help spread awareness while raising critical funds to advance research, support families, and move us closer to better treatments—and ultimately, a cure.

Because every movement matters.

Check the comments for the link.

-A-Thon

08/15/2026

Join us today!

Our next Patient & Family Advisory Meeting today, Saturday, August 15 at 3pm MST. Families and patients from any country are welcome — your voice matters and we’d love to see you there.

Email [email protected] if you’d like a link to join!

We’ll be chatting about our upcoming live MSAB webinar (9/23), September’s Movement Challenge for Dystonia Awareness Month, and plenty more exciting updates.

Let’s connect, share, and keep building this incredible community together 💙

08/13/2026

KMT2B Community Update! ✨

We’ll be chatting about our upcoming live MSAB webinar (9/23), September’s Movement Challenge for Dystonia Awareness Month, and plenty more exciting updates.

Let’s connect, share, and keep building this incredible community together 💙

Email [email protected] if you’d like a link to join!

08/09/2026

KMT2B Community Update! 🤝🫂

Our next Patient & Family Advisory Meeting is coming up on Saturday, August 15 at 3pm MST. Families and patients from any country are welcome — your voice matters and we’d love to see you there.
We’ll be chatting about our upcoming live MSAB webinar (9/23), September’s Movement Challenge for Dystonia Awareness Month, and plenty more exciting updates.

Let’s connect, share, and keep building this incredible community together 💙

Email [email protected] if you’d like a link to join!

08/05/2026

Something exciting is coming this September! 💙

In honor of Dystonia Awareness Month, we're kicking off our Moving Towards a Cure Move-a-thon. Start thinking about who you'll invite to join your team, and stay tuned for registration details on our website and social media.

Together, every step moves us closer to a cure.

07/29/2026

Hear what went through a mom’s heart when she made the decision to move forward with DBS for her child. ❤️

Watch the full video on our website.
kmt2bdystonia.org

07/26/2026

Parents: What is one thing you wish your child's school team knew before the first day? Share your best advice in the comments to help other families prepare.

Address

Toledo, OH

Website

https://www.kmt2bdystonia.org/

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