KCNA2 Epilepsy Global Connection

10/08/2026

https://youtu.be/5Sbn9O6eC5U?si=lg5fxuTC__KCbP_5
Sarah talks about her journey and unique perspective after finding that she shares a KCNA2 diagnosis with her daughter... Listen, subscribe and ask questions...
We are all in this together!

What is it like to discover that the rare epilepsy affecting your c...

09/17/2026

https://youtu.be/kCetTxF6IOg?si=A9HxgNCknKBooTuq
What is it like to have JME? From having his first seizure at school to running a marathon.... Listen, Like and Subscribe... Meet Chevy White...

What is it like to be diagnosed with Juvenile Myoclonic Epilepsy (J...

09/10/2026

https://youtu.be/OhwhOvpkzFo?si=c_PYlJC2s4Fr_Xcg
Listen to my conversation with Dr. Jan Henje Driedger... Together, his team and KCNA2 Epilepsy are collaborating to facilitate a patient registry... This global effort will bring clinical trials and treatment closer... please share and help us spread awareness around the world.

What can a patient registry really do for a rare disease community....

08/31/2026

08/27/2026

https://youtu.be/3EgL2qaYCu8?si=rcNp7-HzCi-45EiA
Meet Joe Baker who has been dealing with epilepsy and autism... and has overcome his challenges to become an accomplished artist! Please like and share so we can keep the conversation going.

In this episode of The KCNA2 & Rare Epilepsy Podcast, Dr. Nancy Mus...

08/25/2026

🎉BIG ANNOUNCEMENT!🎉
We've been working hard on this for 2 years and are so excited to finally announce the launch! The registry will lead to many great things for KCNA2. But we need your participation!
Link in the bio/comments to join.
Info sessions happening soon!

08/13/2026

https://www.youtube.com/watch?v=FjpwlxTIiNo

What does rare epilepsy research actually look like and how could t...

07/30/2026

Need to put a workout goal on your calendar? The KCNA2 Epilepsy Fun Run & Roll is the perfect option! September 12 is just around the corner and we'd love to have your participation!

Participate from anywhere in any way that you want. Run, walk, roll, stroll, or just get outside! Gather your friends and family for this annual event and show off your support for KCNA2!

Sign up today! Link in the comments.

07/08/2026

KCNA2 Fun Run & Roll - 2026!

We're back for another year of the KCNA2 Fun Run & Roll! Join us in Tigard, Oregon or VIRTUALLY anywhere around the world! Don't miss out on this opportunity to connect with and support the KCNA2 community. We continue to raise funds for research for better treatment options. Your support puts hope into the hearts of our families living with this rare disease.

Sign up or donate today!

06/25/2026

https://youtu.be/9TaotX4N4So?si=1TdMy0eAlAFVpeDG
Listen to a conversation with Janice Hrabak... this conversation is filled with practical ideas, HONEST and hopeful ... especially for parents of younger children! please comment on the video and share it so we can reach the top of the rare epilepsy list.

In this episode of the KCNA2 & Rare Epilepsy Podcast, Dr. Nancy Mus...