Amaris Reynoso Apple Blossom Medical Fund

02/07/2023

Well we've finally started fundraising for Amaris Reynoso Apple Blossom Medical Fund . Last year we were given the green light for Amaris to start her implant/ jaw bone graphing/ reconstruction surgery, journey by the UCLA Craniofacial and Plastic Surgery Team. The top plastic surgeon on the team told us, after you raise the 100k, come back and we'll get her started. That was honestly a blow to the gut. We were so happy to be able to start, but by no means could we.. but peeps, that won't stop us.. we're working on a gofundme as well as other cool fundraisers.
Please consider helping us help Amaris so she can get a jawbone and teeth so she can eat normally.

Ways to donate:
Venmo Kate-Reynoso-
Cashapp: $AmarisLeoraMedFund
Paypal: https://www.paypal.me/BenandKateReynoso

Thank you to everyone. She truly appreciates all the love and support.

02/22/2019

Please be patient.. This page is being updated and there will be a link for donations for Amaris' Medical/ Dental fund soon. ♥️♥️

02/22/2019

Hey friends and supporters of Amaris... I can't believe how time has flown by with this beautiful girl.. Sooooo many Dr appointments over the years, so much character and confidence growth for Ben and I, our girls, and Sweet Amaris. Amaris is suuuch an amazing young lady.. She's full of s***k, confidence, generosity, beauty, joy and love. We're about to embark on a new journey with the UCLA Craniofacial team. Right now we're trying to figure out logistics and which team (Plastic Surgery or Dental) will take the lead on Amaris' journey to get a full mouth of implants. They've discussed jaw surgery, bone grafts, and reconstruction.. Whatever it may be, ready or not... Here we go...

10/05/2017

So I know it's been a long time since we've posted and a lot has happened since we posted.. Amaris had retinal scar tissue removal surgery February 16th, 2017...Wow that was an intense and long recovery process... she also goes in October 10th, 2017 for another eye surgery to strengthen the muscles and repair her lazy left eye... With her eye getting lazy this last year she/we realized she had peripheral blindness on her left eye on her nasal side... We are hopeful (and to be honest really nervous) that when her eyes are working together the blind spots will go away. She has had this issue since she was born we were told.. So fingers crossed it gets corrected.. Pray for Amaris this next week... Katie Reynoso

03/05/2015

JOIN HANDS WITH US FOR I.P. This Friday, post a picture of you holding hands with as many people as you can fit in one picture to gain awareness for Incontinentia Pigmenti..Check out Incontinentia Pigmenti International Foundation for more information on this incredible rare genetic disorder.

08/11/2014

This is Fantastic!! We are sooo excited to be a part of this AMazing group of friends!! Parents For Joy!!

A year ago, a group of local moms had a vision to build a special-needs playground in Atascadero but few plans in place. Now, Parents for Joy hopes to break ground on their $500,000 park next year.

08/11/2014

http://melodyincontinentiapigmenti.blogspot.com/p/what-is-incontinentia-pigmenti.html?spref=fb

Hi My Daughter Was Born With A Rare Genetic Disorder Called Incontinentia Pigmenti. Want to share my story and raise awareness. In my town she is the only one with this disorder. About an hr where I live I think theres a few with ip. This is my Melody♥♥♥

08/11/2014

Well, Summer has been Great!! Lots of swimming in the Templeton pool, camping out in the backyard, watching movies on the back patio with our movie projector with friends, sleepovers, Adventures to the beach, hosting China students for two weeks, visiting her Grandma (Pita) as well as her Great-Grandma and Grandpa in Nevada for a week, home relaxing, and a few birthday parties in July.. With LOADS more I cant remember right now.. Lol... This coming Fall, Amaris is going into the 5th grade.. Wowsers!! This is a year of continuing to building her self-esteem,dealing with adversary and bullying, excelling in her education, alongside LOADS of Medical/Dental/Vision Appointments...I am so proud of Amaris.. In who she is. In what she has taught us. She is truly an Overcomer.

06/19/2013

Ectodermal Dysplaisa is a form of Incontinentia Pigmenti (Amaris's lovely condition). The NFED is our Umbrella Organization because there aren't very many people affected by I.P... Please take the time to read this and understand why we have a heart to spread the word and help raise funds for the children and adults affected. Thanks!!

Our mission is to empower and connect people touched by ectodermal dysplasias through education, support and research.

06/19/2013

Amaris has had her braces now for a little over a month now. the bottom wire slid so far over twice that she had to get the wire cut once, and then a new wire pit in and have the edges clamped to prevent further slidage. Poor lil thing thought her cheek being sliced open was normal. Thankfully my sister, Julie Marshall, and Amaris' local dentist, Dr. Forrester, at Clinica de Tolosa, made arrangements with a local orthodontist, who is willing to help Amaris out with braces issues inbetween trips to UCSF at any time. So cool!! Amaris has adjusted pretty darn well...Love this little girls heart..

06/19/2013

Amaris has had her braces now for a little over a month now. the bottom wire slid so far over twice that she had to get the wire cut once, and then a new wire pit in and have the edges clamped to prevent further slidage. Poor lil thing thought her cheek being sliced open was normal. Thankfully my sister, Julie Marshall, and Amaris' local dentist, Dr. Forrester, at Clinica de Tolosa, made arrangements with a local orthodontist, who is willing to help Amaris out with braces issues inbetween trips to UCSF at any time. So cool!! Amaris has adjusted pretty darn well...Love this littles girls heart..