Christopher Gibney Memorial

Christopher Gibney Memorial As a charity, the Christopher Gibney Foundation was dissolved in June of 2021. Welcome to the Christopher Gibney Memorial Page.

We no longer accept donations but are happy to share Christopher’s story and our memories of him. Christopher Gibney was the beloved son of Quynh Gibney and David Gibney, music teacher in the Escondido Union School District. Christopher - our Little Rainbow Dragon - came to this earth on January 6, 2005 with all of his love and bravery. He left this love with us on December 19th, 2007 before retur

ning to continue painting the sky with his double rainbows bringing part of our hearts with him. The Christopher Gibney Foundation has been established to honor his life with us and to offer some help to other children in making their life more joyful with music. Our Little Rainbow Dragon always loved music and we still hear his sweet voice singing in the wind and ringing in our souls.

Today we remember with joy, the 21st Anniversary of our son Christopher's birth...
01/07/2026

Today we remember with joy, the 21st Anniversary of our son Christopher's birth...

We remember our son, Christopher, on the 18th Anniversary of his passing, December 19, 2007, from Neuroblastoma. This h...
12/19/2025

We remember our son, Christopher, on the 18th Anniversary of his passing, December 19, 2007, from Neuroblastoma. This happy photo was taken in Taos, New Mexico on Thanksgiving 2005 where we had traveled by train to celebrate. Our Little Rainbow Dragon is forever in our Hearts...❤🌈🐉❤ https://www.cncfhope.org/

Here's the latest good news with Paxton... Hello Friends, We have an exciting update to share on the gene therapy projec...
12/11/2025

Here's the latest good news with Paxton...

Hello Friends, We have an exciting update to share on the gene therapy project at UMass Chan Medical School! UMass has let us know that the vector (which will be used to deliver the gene therapy) has been built! It is currently being tested in cultures to assess ongoing protein expression and silencing the endogenous gene. Next steps will be to create plasmids to then inject TFRC (Transferrin Receptor) into mice with CLCN6 mutations. Jackson Laboratory is building out the colony and we will share an update when that is made available. This is a big step in the project and we would not be here if it wasn't for the support of each and every one of you who has donated to us. There is still a long way to go, but we do want to take a moment to celebrate this milestone and express our gratitude and appreciation to each and every person who has helped make this possible and is giving hope to us and Paxton, and the other children around the world with CLCN6 mutations who are contacting us. We will share more updates with you as they become available. Please stay tuned and thank you all for your support, Paul, Kristin, Paxton, Aria Purdy

Paxton's Story: A Rare Genetic Battle Our son Paxton, recently diagnosed… Paul Purdy needs your support for Help Save Paxton's Life: A Rare Genetic Battle

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