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National CMV Foundation

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National CMV Foundation

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A non-profit organization dedicated to preventing pregnancy loss, childhood death, and disability due to congenital Cytomegalovirus (cCMV). Inform. Engage.

Advocate. To raise awareness and promote education to women and families about the risks and prevention of congenital CMV. To form human connections with those affected by cCMV by linking users with the right resources to help them navigate through the psychosocial, emotional and financial challenges associated with each resulting diagnosis. To increase community involvement through various patient/family support programs and events, ultimately raising funds for vaccination and anti-viral medication research, and potential financial support for families requiring additional therapies and/or equipment.

10/27/2026

Rock, paper, scissors… CMV awareness wins every time!

When it comes to CMV, knowledge is power! From understanding how CMV spreads to knowing the simple steps that can help reduce exposure, awareness makes a difference.

The more we know, the more we can share, and the more families we can reach.

10/21/2026

Meet our 2026 Philadelphia Marathon Team!

We’re officially ONE MONTH away from Philadelphia Marathon Weekend, and we’re so excited to introduce the incredible runners going the distance for congenital CMV awareness!

This year marks an exciting milestone as the National CMV Foundation joins Philadelphia Marathon Weekend as an official charity partner!

On November 21–22, our runners will take on the 8K, half marathon, and full marathon, each with their own personal connection to our mission and a shared goal of making a difference for families impacted by congenital CMV.

Every mile has a purpose, and every donation makes a difference!

Swipe through to meet our marathon team, learn what inspires them to run, and help us cheer them on as they prepare for race weekend!

Want to support our runners? Visit their fundraising pages to make a donation and help us continue raising awareness, and supporting families affected by CMV.

Let’s show Team CMV some love in the comments! 👏

National CMV Foundation fundraiser page: https://raceroster.com/events/2026/111834/2026-philadelphia-marathon-weekend/pledge/team/997825?_gl=1*kzwyws*_gcl_au*MTQ0MjY0MTE0Ni4xNzg5OTk5MjEwLjIwMjgwMzA2NjAuMTc5MjAwNDUxNC4xNzkyMDA0NTI0LjEyODgzNzY0MDkuMTc5MjAwNDUxNC4xNzkyMDA0NTI0&blm_aid=15774721

Cooper’s fundraiser page: https://raceroster.com/events/2026/111834/2026-philadelphia-marathon-weekend/pledge/participant/45073188?blm_aid=15774721

Peter’s fundraising page: https://raceroster.com/events/2026/111834/2026-philadelphia-marathon-weekend/pledge/participant/45043562?blm_aid=15774721

10/19/2026

The National CMV Foundation is hosting a 2026 Holiday Card Drawing Contest, and one special piece of artwork will be selected to become our official holiday card! 💌

This year’s theme is:
❄️ “What Makes Me Happy This Holiday Season?”

Whether it’s spending time with family, favorite holiday traditions, or something completely unique, we want to see the holidays through your child’s eyes! ❤️

🖍️ All creativity is welcome! There is no right or wrong way to participate. We encourage every child to express themselves in whatever way works best for them.

📅 Submission Deadline: November 2, 2026

📧 Submit artwork to: [email protected]

Be sure to include your child’s name, age, and parent/guardian’s name. See the slides for full submission guidelines!

We can’t wait to see all the creativity, joy, and holiday magic our CMV community has to share! 🎄✨

❤️ Tag a CMV family who might love to participate!

10/13/2026

Now THAT’S scary. 👻

Too many families first learn about congenital CMV after receiving a diagnosis. This spooky season, we’re making something a little less scary: not knowing.

Awareness matters. Education matters. And every conversation about CMV helps more families know about it sooner.

10/09/2026

We remember them with you. 🤍

October is Pregnancy and Infant Loss Awareness Month.

Within the congenital CMV community are families carrying stories of babies deeply loved and deeply missed. This month, we honor those babies, the pregnancies that ended too soon, and the families who continue to carry their love with them.

Your baby’s life matters. Their story matters. Their name matters.

To every family in our CMV community who has experienced pregnancy or infant loss: we remember with you.

If it feels right, share your baby’s name or a memory you’d like us to hold with you in the comments.

10/06/2026

Today is World Cerebral Palsy Day. 💚

For some children born with congenital CMV, cerebral palsy can be part of their lifelong story. Because cCMV can affect the developing brain, it may lead to motor and movement differences, including cerebral palsy.

But a diagnosis never tells the whole story.

Today we celebrate the individuals with CP—their personalities, communication, accomplishments, strengths, and all the ways they experience and contribute to the world around them.

We also recognize the families, caregivers, therapists, educators, medical teams, and advocates working toward a world that is more accessible and inclusive.

💚 To our cCMV families who are also part of the CP community: today, we celebrate you.

10/05/2026

In case you missed it during the livestream… 🧡🏁

This commercial aired during the Medtronic Twin Cities Marathon Weekend livestream as Team CMV took on the 10 Mile and Marathon in support of the congenital CMV community — and we wanted to share it here, too!

We are so proud of every runner who represented the National CMV Foundation this weekend and so grateful for everyone who donated, cheered them on, and helped us spread awareness along the way.

The races may be over, but we still have one more finish line to cross! 🏁 Team CMV has raised over $12,900 toward our $15,000 goal, and there’s still time to donate.

Every mile had a purpose, and every dollar helps further our mission of raising awareness, providing education, and advocating for families impacted by congenital CMV. 💙

Help us cross that final finish line and reach $15K! 🧡

https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/team/974936?_gl=1*1fkmeyk*_gcl_au*MjE3ODI3OTY0LjE3ODIxNDI1NzIuMTExMzk1ODkxMy4xNzg5NjU2NTcyLjE3ODk2NTY2MDcuMTExMzk5NDc1NC4xNzg5NjU2NTcyLjE3ODk2NTY2MDc.&blm_aid=15774721

09/30/2026

Meet our National CMV Foundation Marathon Team!

Next up, we’re introducing the incredible runners taking on the full marathon distance in support of the National CMV Foundation!

26.2 miles is no small feat, and each of these runners is making every mile count by raising funds to support congenital CMV awareness, education, and the mission of the National CMV Foundation.

Now it’s our turn to cheer them on!

Each runner has their own fundraising page, and every donation—big or small—helps us continue educating families and communities about congenital CMV.

🔗 Support our marathon runners through their individual fundraising links below!

Help us send some encouragement to our marathon team in the comments! 👏

Brendan- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/45401163
Valarie- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/45734041
Brian- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/46006820
Chelsea- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/47365032

09/30/2026

A positive cCMV test is an important first step, but the evaluation doesn’t stop with the diagnosis.

The AAP’s new clinical report outlines recommendations for evaluating infants diagnosed with cCMV, including a thorough physical and neurologic examination, laboratory testing, cranial ultrasound, and diagnostic hearing evaluation. Additional imaging and specialist involvement may also be recommended depending on the baby’s individual findings.

These evaluations help providers better understand how cCMV may be affecting a baby and determine whether treatment, additional monitoring, or other services are appropriate.

Most importantly, a diagnosis provides information—information that can help families and care teams make informed decisions about a child’s care and connect them with the support they may need as they grow.

Swipe through for a simplified look at what may happen after a positive cCMV diagnosis. ➡️

🔗 Read the full AAP clinical report at https://publications.aap.org/pediatrics/article/doi/10.1542/peds.2026-078595/209466/Care-of-the-Infant-With-Congenital-Cytomegalovirus?autologincheck=redirected

09/28/2026

First up, we’re introducing our four incredible runners taking on the 10-mile distance at the Minnesota Marathon on October 4!

Each runner is going the extra mile for congenital CMV awareness and education, raising funds to support the National CMV Foundation and our mission.
We’re so grateful for their dedication, and now it’s our turn to cheer them on!

Help us support our runners by visiting their individual fundraising pages, making a donation, or sharing their stories. Every dollar helps us continue spreading awareness and educating families about congenital CMV.

Let’s show our 10-mile team some love in the comments! 👏

🔗 Donate through these links:
Liza- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/45616923
Raeanna- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/45646989
Ellen- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/46401309
Ashley- https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/participant/45251004

Address

PO Box 18322
Tampa, FL
33679

Opening Hours

Monday	8am - 5pm
Tuesday	8am - 5pm
Wednesday	8am - 5pm
Thursday	8am - 5pm
Friday	8am - 5pm

Website

http://www.nationalcmv.org/

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