National CMV Foundation

National CMV Foundation A non-profit organization dedicated to preventing pregnancy loss, childhood death, and disability due to congenital Cytomegalovirus (cCMV). Inform. Engage.

Advocate. To raise awareness and promote education to women and families about the risks and prevention of congenital CMV. To form human connections with those affected by cCMV by linking users with the right resources to help them navigate through the psychosocial, emotional and financial challenges associated with each resulting diagnosis. To increase community involvement through various patien

t/family support programs and events, ultimately raising funds for vaccination and anti-viral medication research, and potential financial support for families requiring additional therapies and/or equipment.

Hello, September! 💚🍂A new month means another opportunity to educate, advocate, and keep the conversation about CMV goin...
09/01/2026

Hello, September! 💚🍂

A new month means another opportunity to educate, advocate, and keep the conversation about CMV going.

CMV is a common virus, yet so many parents first hear the words “cytomegalovirus” after their child has already received a diagnosis.

Every conversation about CMV can make a difference. Every shared post can reach someone who has never heard of it. And every person who learns about CMV is one more person who can help spread awareness.

This September, help us keep the conversation going. đź’š

Share what you know. Talk about CMV. Tell someone new.

CMV impacts more than one person—it can shape the lives of entire families. To the parents, grandparents, siblings, fami...
08/31/2026

CMV impacts more than one person—it can shape the lives of entire families.

To the parents, grandparents, siblings, family members and caregivers navigating congenital CMV: we see you, too.

The appointments. The advocacy. The uncertainty. The celebrations. The hard days. The milestones that may look a little different. And all of the love woven through it.

However CMV has touched your family, there is space for your story in this community.

Tag or share this with someone in the CMV community who could use a little extra support today.

What does congenital CMV look like? The truth is, there isn’t just one answer.Some babies with congenital CMV are born w...
08/27/2026

What does congenital CMV look like?

The truth is, there isn’t just one answer.

Some babies with congenital CMV are born with no noticeable symptoms. Others may experience hearing or vision loss, developmental or motor differences, feeding challenges, seizures, cerebral palsy, or other lifelong impacts. And for some children, certain effects may not become apparent until later.

That wide spectrum is one of the many reasons awareness, early identification, appropriate monitoring, and continued support matter.

No two cCMV stories look exactly the same—but every story deserves to be seen.

Back-to-school season is here! 🎒📚💙For children impacted by congenital CMV, heading back to school can look many differen...
08/25/2026

Back-to-school season is here! 🎒📚💙

For children impacted by congenital CMV, heading back to school can look many different ways. Some students may use AAC, mobility equipment or hearing technology. Some may have an IEP, receive therapies during their school day, need additional classroom support, or learn from home. Others may need few or no accommodations at all.

There is no single picture of what congenital CMV looks like—and there is no single picture of what learning should look like.

As a new school year begins, let’s create classrooms and communities where every child isn’t just included, but truly belongs.

Because every child deserves opportunities to learn, communicate, participate, make friends, and be valued for exactly who they are. đź’™

New on the National CMV Foundation blog 🧡Congenital CMV is widely known for its connection to hearing loss—but its impac...
08/12/2026

New on the National CMV Foundation blog 🧡

Congenital CMV is widely known for its connection to hearing loss—but its impact on speech and language development may go beyond hearing alone.

New research highlights speech and language challenges in children with cCMV and reinforces the importance of early monitoring and intervention.

Read the latest blog to learn more!

CMV doesn’t stop when Awareness Month ends—and neither do the families living with its impact.Every day, babies are born...
08/06/2026

CMV doesn’t stop when Awareness Month ends—and neither do the families living with its impact.

Every day, babies are born with congenital CMV. Every day, parents receive life-changing diagnoses. Every day, researchers, healthcare providers, advocates, and families continue working toward a future where more pregnancies are protected, more babies are identified early, and more families have the support they need.

Awareness is more than a month on the calendar. It’s every conversation that sparks curiosity, every post that’s shared, every healthcare provider who educates an expecting parent, and every advocate who speaks up for families affected by congenital CMV.

Thank you for helping us keep the conversation going all year long. Together, we can create a future where fewer families have to say, “I wish I’d known.”

What is one thing you wish more people knew about congenital CMV?

A new article highlights growing evidence that universal newborn screening for congenital CMV (cCMV) could help identify...
08/04/2026

A new article highlights growing evidence that universal newborn screening for congenital CMV (cCMV) could help identify babies who might otherwise go undiagnosed. Researchers and advocates say that earlier identification means families can access the monitoring, specialists, and interventions that can make a meaningful difference for some children.

Currently, many babies with cCMV are never diagnosed because they appear healthy at birth. Yet some may go on to develop hearing loss or other complications months or even years later. Universal screening has the potential to identify more of these infants early, allowing families and healthcare providers to monitor hearing, vision, and development from the very beginning.

Every child deserves the opportunity for early identification and appropriate follow-up care.

🩵 Read the full article to learn more about the growing conversation around universal newborn screening for congenital CMV.

Read the full CIDRAP article: https://www.cidrap.umn.edu/misc-emerging-topics/universal-screening-could-find-more-babies-born-cytomegalovirus-infection?utm_source=chatgpt.com

Whether you’re a friend, family member, neighbor, or fellow parent, your support can make a lasting difference.Sometimes...
07/31/2026

Whether you’re a friend, family member, neighbor, or fellow parent, your support can make a lasting difference.

Sometimes it’s the little things that mean the most:
🤍 Listening without judgment.
🤍 Dropping off a meal.
🤍 Learning about congenital CMV.
🤍 Celebrating every milestone.
🤍 Simply checking in.

For many CMV families, the journey includes appointments, therapies, unexpected challenges, and countless victories—both big and small. Knowing someone is in your corner can make even the hardest days feel a little lighter.

If you know a family affected by congenital CMV, let them know they’re not alone.

07/29/2026

Lace up for a cause that matters 🧡

The National CMV Foundation is heading to the Minnesota Medtronic Marathon Weekend (October 2–4), and we’re looking for runners to join our team!

🥇 10-Mile: $750 fundraising minimum
🥇 Marathon: $1,500 fundraising minimum

Whether you’re chasing a PR or running for someone you love, every mile helps raise awareness for congenital CMV and supports families impacted by it.

Not a runner? You can still make a difference by donating to our team!

đź”— Registration + donation links below

https://www.tcmevents.org/alleventsandraces/medtronictwincitiesmarathonweekend

https://raceroster.com/events/2026/108147/2026-medtronic-twin-cities-marathon-weekend/pledge/team?id=156

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PO Box 18322
Tampa, FL
33679

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Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

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