Cystic Fibrosis Foundation - West Florida Chapter

Cystic Fibrosis Foundation - West Florida Chapter We're helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis.

Faced with insurmountable odds, but determined to save the lives of their children, a group of concerned parents came together in 1955 to form the Cystic Fibrosis Foundation. At the time, very little was known about cystic fibrosis, but the tenacity and strength of CF families laid the groundwork for monumental progress in research, care, and treatment of a rare disease. Today, because of their ha

rd work and the support of generous volunteers and donors, many people with CF are living into adulthood. Yet, we still lose precious young lives every day and will not be satisfied until there is a cure for all those living with this disease.

Join us for a live virtual event to celebrate our incredible ROSE UP community for coming together to raise money for a ...
08/05/2026

Join us for a live virtual event to celebrate our incredible ROSE UP community for coming together to raise money for a cure for cystic fibrosis in their own way. Join us Thursday, Sept. 17!

Save your seat today: https://on.cff.org/4w5BTTz

Because of the support of people like you and our national peer-to-peer sponsor, Vertex, people with CF are achieving dr...
07/16/2026

Because of the support of people like you and our national peer-to-peer sponsor, Vertex, people with CF are achieving dreams for themselves, not limited by their disease. Thank you for all you do!

Research funded by the National Institutes of Health (NIH) has driven decades of progress in cystic fibrosis. It led to ...
06/25/2026

Research funded by the National Institutes of Health (NIH) has driven decades of progress in cystic fibrosis. It led to the discovery of the CFTR gene and deepened our understanding of the disease, laying the foundation for today’s treatments and future therapies in development. Despite this progress, significant unmet needs remain. There is still no cure, and many people with CF cannot benefit from existing therapies.

Today, teens from across the country are advocating on Capitol Hill and online for the Foundation’s 18th annual Teen Advocacy Day. They are sharing their personal stories and asking members of Congress to increase funding for the NIH to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF and, ultimately, a cure.

Help amplify their voices. Urge your members of Congress to increase NIH funding.
https://act.cff.org/campaign/increasefundingNIH/

We’re incredibly proud of everyone representing the cystic fibrosis community at the Cystic Fibrosis Foundation’s 18th a...
06/18/2026

We’re incredibly proud of everyone representing the cystic fibrosis community at the Cystic Fibrosis Foundation’s 18th annual Teen Advocacy Day.

Our Florida community will be sharing their stories with Lois Frankel & Rep. María Elvira Salazar to highlight the urgent need to increase funding for the National Institutes of Health to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF — and ultimately, a cure.

This 65 Roses Day (6/5), join the 65 Roses Club: a dedicated group of monthly donors committed to helping cure cystic fi...
06/05/2026

This 65 Roses Day (6/5), join the 65 Roses Club: a dedicated group of monthly donors committed to helping cure cystic fibrosis.

As a monthly donor, you can spread your support into smaller gifts that add up to real progress. This steady, reliable stream of revenue helps enable the Foundation to fund innovative research, drug development, and provide high-quality, specialized care so that we can get closer to a cure for cystic fibrosis.

Joining is easy — set up automatic monthly giving through the donation page and know your support is working for people with CF every month, without any extra steps.

https://give.cff.org/65rosesclub/donate?rbref=65RD26ch&donate=35&unitid=Florida%20-%20West%20-%20Tampa

Join the next CF Circle for a virtual, small-group discussion about the Black CF Experience. On June 23 at 7 p.m. ET, Bl...
06/04/2026

Join the next CF Circle for a virtual, small-group discussion about the Black CF Experience. On June 23 at 7 p.m. ET, Black adults with CF, as well as parents and caregivers of Black children with CF, are invited to talk openly with peers about shared experiences like misdiagnosis, delays in treatment, self-advocacy in medical settings, and navigating life with CF.

https://on.cff.org/CF-Circles-June-2026

65 Roses Day (6/5) is around the corner! Are you familiar with the “65 Roses” story? The “65 Roses” story began in 1965...
06/02/2026

65 Roses Day (6/5) is around the corner! Are you familiar with the “65 Roses” story?

The “65 Roses” story began in 1965 when a 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, it’s a term many children with CF still use to describe their disease. But making the disease easier to say doesn’t make it easier to live with.

Shouting out all of our Tampa Bay Great Strides teams! Thank you for saying yes to walking for a cause and supporting th...
05/11/2026

Shouting out all of our Tampa Bay Great Strides teams! Thank you for saying yes to walking for a cause and supporting the CF community. We'll see you all this weekend!

Share this link and invite friends and family to join your team! https://fundraise.cff.org/Tampa26

05/05/2026

Great Strides Tampa, come out and support our CF fighters! There's still time to register. We keep showing up as a community until CF stands for cure found.
https://fundraise.cff.org/Tampa26

Address

1614 North 19th Street
Tampa, FL
33605

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18133749041

Website

Alerts

Be the first to know and let us send you an email when Cystic Fibrosis Foundation - West Florida Chapter posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Cystic Fibrosis Foundation - West Florida Chapter:

Shortcuts

Share

Category