Dysautonomia Information Network - DINET

04/24/2026

I just heard a great description of what has happened to our medical system by a neurologist named Christopher Kerr. He said the patient experience has worsened into “an assembly line with spot welders”. IMO a great description of the diagnostic journey for many of us. What do you think?

04/23/2026

Headache & migraine are listed in many studies as the most common comorbidity in patients living with POTS.
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Patients with postural orthostatic tachycardia syndrome (POTS) commonly experience migraine as a comorbidity. By understanding the underlying mechanisms that may link POTS and migraine, primary care…

04/22/2026

Please share with anyone you know in the medical field. This is a great program from a great organization across the pond

📣 Reminder - Calling all healthcare professionals with an interest in PoTS!

Join us for an engaging and informative day:
Postural Tachycardia Syndrome: Back to Basics - An Educational Masterclass

🗓 Thursday 14th May
⏰ 9:00am – 5:00pm
📍 Attend in person or virtually

Whether you’re new to the condition or looking for a refresher, this beginner-friendly session will cover the fundamentals to help you better understand and support patients living with PoTS.

🔍 The programme includes:
• Making a diagnosis
• Overlapping orthostatic intolerance syndromes
• Co-morbidities
• Management and service models
• Research updates

👩‍⚕️ Ideal for GPs, nurses, allied health professionals, and anyone working in primary or secondary care who may encounter PoTS patients.

👉 Register here: https://potsmasterclass.eventbrite.co.uk

⚠️ Please note: This event is for healthcare professionals only.

03/23/2026

Emotional stress and the ANS

Understanding the Connection Between Emotional Trauma and POTS Postural Orthostatic Tachycardia Syndrome (POTS) is a disorder of the autonomic nervous system that primarily affects blood circulation, often resulting in symptoms such as dizziness, rapid heart rate upon standing, and chronic fatigue.....

03/20/2026

Happy Spring!

Dr. Kandel shares how seasonal weather changes can trigger neurological symptoms such as migraines, fatigue, balance issues, brain fog, and chronic pain.

03/19/2026

Vitamin D and Long-COVID - An overview of studies


https://www.medicalnewstoday.com/articles/vitamin-d-supplements-lower-long-covid-risk?

Vitamin D supplementation does not prevent COVID-19 or improve symptoms but it may help lower the risk of long COVID, a recent study suggests.

03/18/2026

The face of POTS - we come in all shapes and sizes. Wishing Kristaps the best.

"It's not mysterious. It's complex."

03/07/2026

You don't need to be interested in the drums to be inspired by this story. A young man with a spinal injury that caused paralysis and all that goes with it, including confinement to a wheelchair, who learned to adapt to his "new normal" and find a way to still enjoy his music.



https://bit.ly/40QGLx

A drummer records incredible drum-cover videos from his wheelchair utilizing a mouth-trigger kick drum pedal.

03/06/2026

Understanding thermoregulation

Thermoregulation is how the body maintains a steady inner core temperature, which is important for your overall health. Here’s what you need to know.

03/04/2026

It's winter and for most of us, the temps are bouncing around daily. A good time to revisit this article:

How barometric pressure can wreak havoc on the body by Susanne Rimm
https://www.dinet.org/info/dysautonomia-disorders-diagnostics-info/barometricpressure/