Dysautonomia Information Network - DINET

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Dysautonomia Information Network - DINET DINET is a non-profit organization created and managed by volunteers living with dysautonomia. For more info visit dinet.org We are here for you.

DINET is dedicated to providing support to patients & caregivers, while also raising awareness of ANS dysfunction. The Dysautonomia Information Network (DINET) is a volunteer-run 501(c)(3) nonprofit organization dedicated to providing support for people living with dysautonomia. We provide information through our website, dinet.org, and our quarterly newsletter. Our moderated online forum offers support for patients and caregivers. The forum is a place to meet and discuss issues related to dysautonomia and chronic illness with others who understand the struggle. Our team of Medical Advisors answers questions from our members through our newsletter. We also provide a database of physicians specializing and treating people with dysautonomia as well as a list of support groups. We hope you will come by, meet a few people and decide to stay.

A guide for family & friends. Awareness starts with you.
10/18/2026

A guide for family & friends. Awareness starts with you.


NOTE: If you are a part of a support group or and would like to receive printed materials to share with family, or local medical community, please contact [email protected] DINET supports your efforts! You have what? You may have said words like that to your friend or family member when they to...

The gut microbiome and its impact on the ANS (in other words, how healthy is your gut, and how does that affect your sym...
10/14/2026

The gut microbiome and its impact on the ANS (in other words, how healthy is your gut, and how does that affect your symptoms?)

https://www.dinet.org/info/dysautonomia-disorders-diagnostics-info/gut_microbiome/

One of the more significant discoveries in the medical world in the past 20 years has been the investigation into gut health and the microbiomes involved. The gut-brain connection is bidirectional, meaning the signals go in both directions, from the digestive system to the central nervous system ...

How does sleep impact your symptoms?
10/12/2026

How does sleep impact your symptoms?

Share your journey to being diagnosed, what living with dysautonomia is like for you, how your friends and family can he...
10/10/2026

Share your journey to being diagnosed, what living with dysautonomia is like for you, how your friends and family can help, or anything else you want to share about the experience. Or just read other people's stories.



https://www.dinet.org/member-stories/

Sexual dysfunction and dysautonomia Original study by the Dysautonomia Clinic
10/07/2026

Sexual dysfunction and dysautonomia


Original study by the Dysautonomia Clinic

Background: We aimed to determine whether patients with postural orthostatic tachycardia syndrome (POTS) have sexual dysfunction compared to age-matched healthy controls. Methods: Utilizing online COMPASS-31 to evaluate dysautonomia symptom severity, Beck's Depression Inventory S...

How does DINET use your donation?- medical research- patient support, one-on-one and a moderated forum - original vid...
10/06/2026

How does DINET use your donation?
- medical research
- patient support, one-on-one and a moderated forum
- original videos & interviews with leading medical professionals
- literature for physicians
- maintaining our website with thousands of information articles and so much more...

https://www.paypal.com/us/fundraiser/charity/1552351

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Swanzey, NH

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