The APS Type 1 Foundation

06/01/2026

HAPPY HYPOPARA DAY! Click the link in the comments to learn more through the hypoparathyroidism association.

05/22/2026

Caring for a loved one can be hard, Rare givers is here to help. Click the link in the comments for weekly support groups and to check out their website for other generalized help.

04/14/2026

Have you signed up yet? Hope to see you in our Community HUDDLE this Sunday at 1pm ET, on Zoom. Join members of the APS1 Community as we have meaningful discussions and connect over shared experiences. Register here: https://apstype1.org/events/huddle-with-the-aps-type-1-community/
Link to event will be emailed to all registrants by this Saturday.

04/08/2026

Join for bi-monthly huddles discussing many topics that are of interest to our community. If you can’t make the first one, no worries! We will be there to see you any other meeting. Click the link in our comments to register.

04/04/2026

Announcing APS Type 1 Foundation HUDDLEs! Join our community via Zoom, for connection, conversation, and comradery. We will gather every other month, beginning April 19th. Register here https://apstype1.org/events/huddle-with-the-aps-type-1-community/

04/03/2026

Join our community in a HUDDLE! Our first virtual gathering is April 19th.

Introducing HUDDLEs – virtual support and mentoring group meetings focused on families living with APS Type 1. The group meets virtually every other month and provides a safe and confidential space for patients, their families, and caregivers to talk about their shared experiences.

02/20/2026

There is still time to Carry the Torch for APS Type 1 and join our fun virtual race. Joining our team for his Olympics-themed race will help support the hard work our Foundation is doing to fund research and find a cure for this rare disease. Please help grow our team! Use the link in our comments to sign up. See you on the trail!!

02/15/2026

Heartfelt wishes for a Happy Valentine’s Day ❤️

02/13/2026

What’s your favorite way to exercise?

Whatever it is, any movement counts when you join Team APS1 for a fun, interactive, low pressure virtual race! It’s a great way to support the work of the APS Type 1 Foundation.

Our race takes place from February 21-February 28, with the “closing ceremony” coinciding with Rare Disease Day.

Sign up today and help us grow our team. Registration is $25, and $10 for students.

Use the link in comments to register — and we’ll see you on the trail!!

Let’s GOOO TEAM APS1!

02/07/2026

The Winter Olympics started today, and you can help us Carry the Torch for a cure of APS Type 1 during our own Olympics-themed Virtual Race! Join our team and track your progress on the virtual map as we trek from Olympia, Greece to Milan, Italy.

Any movement counts! You will be able to log any activity you do and it counts toward your distance traveled. This is a fun way to get some steps in and support the great work we are going at the APS Type 1 Foundation. Registration is only $25, and $10 for students.

Use the link in comments to register and share with your family and friends. With your participation we will have our biggest team yet!