Thank you for joining BEKKA You are now part of a community of friends, patients, and caregivers who are determined to overcome the challenges of Viaual Impairment and epilepsy to get the control they deserve. Brett Henslee was only 4 years old (back in 1998), when he was first diagnosed with a slight case of epilepsy. Within a couple years, it had progressed into one of the most severe types of e
pilepsy called Lennox-Gastaut Syndrome or (LGS). This particular form of epilepsy is very difficult to treat and usually shows up in children between 2 and 6 years of age. He has lost his capability to speak and do normal day to day tasks on his own. His challenges consist of needing help eating, using the restroom, getting dressed, and brushing his teeth to name a few. All the things we tend to take for granted. After years of trying every different medication out there, going through several tests, and even having brain surgery, Brett continues to average 3-5 seizures on any given day and sometimes more. At least once a week he suffers from a “cluster” of seizures, where he can have upwards of 100 various seizures one after another and can last for several hours. Brett’s parents and myself, Jo Anna Wright (Brett’s Aunt), over the years have supported and/or volunteered to assist the Epilepsy Foundation of Northern California in various fundraisers and events to promote awareness and raise money for research and development. The money raised goes towards programs to help with the quality of life for those affected with epilepsy in Northern California and to provide funds for research and development to one day find a cure.
