Bobby Jones Chiari & Syringomyelia Foundation

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Bobby Jones Chiari & Syringomyelia Foundation All donations go to support the core mission of: Bobby Jones Chiari & Syringomyelia Foundation, a 501(c)(3) nonprofit.

Bobby Jones Chiari & Syringomyelia Foundation is a 501(c)(3) nonprofit with a mission to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders. The Bobby Jones Chiari & Syringomyelia Foundation, Inc. (Bobby Jones CSF) is a non-profit organization founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM), and related disorders. Bobby Jones CSF has funded over $6 million dollars’ worth of education, research projects and meetings in its first nine years and has impacted more than 2 million people around the world who are looking for answers. Twitter: https://twitter.com/bobbyjonescsf
Instagram: http://instagram.com/bobbyjonescsf
Youtube: http://www.youtube.com/csfinfo2007
Facebook: http://facebook.com/bobbyjonescsf
Google+: https://plus.google.com/u/0/114715265885814307010/posts

Bobby Jones CSF's Vision: Within a generation, we will be the preeminent world-wide resource for professional and laypeople seeking accurate and current information about treatments for and best practices surrounding the management of CM and SM. With our unique resources, both financial and intellectual, we will be the leader in driving ongoing programs and research focused on earlier diagnosis and better outcomes for people suffering with these disorders.

🎉 THE AUCTION IS OPEN!🎉Our Dinner Dance for a Cure is tonight, and our “Sweet Sixteen” Online Silent Auction is OPEN! Ca...
10/17/2026

🎉 THE AUCTION IS OPEN!🎉

Our Dinner Dance for a Cure is tonight, and our “Sweet Sixteen” Online Silent Auction is OPEN!

Can't attend? Bid from anywhere and support Bobby Jones CSF. 💜

⭐️ Browse & Bid: Click Here and Register to explore amazing auction items! 🔗26ddc.givesmart.com

📍 Local Pickup: Some items require pickup in the Twinsburg, Ohio, area. 💚 Make an Impact: Bid, WIN, and support BJCSF

⏰ Auction closes Saturday, October 17, at 9:15 p.m. ET!

👉CLICK HERE TO BID! 26ddc.givesmart.com

Every bid and donation helps advance awareness, research, education, and support for those affected by Chiari malformation, syringomyelia, and related disorders.

💜 Join the excitement. Bid for a cause. Make a difference!

Help us settle this debate... Is this is gimme? 👀Comment below👇☑️Yes or ❌No?There's still time to register! 🔗REGISTER HE...
10/09/2026

Help us settle this debate... Is this is gimme? 👀

Comment below👇
☑️Yes
or
❌No?
There's still time to register!
🔗REGISTER HERE: https://igfn.us/form/tpM0Jw

Let's round out Chiari Awareness Month with this lecture from Dr. Eric Jackson on the Top 100 Questions About Chiari. Th...
09/30/2026

Let's round out Chiari Awareness Month with this lecture from Dr. Eric Jackson on the Top 100 Questions About Chiari.

There is so much we know now and so much we don't know yet. Let's see what the most common Q's are and how a neurosurgeon might answer them...

Bobby Jones | CSF

🎃🍻 CO****LE, COSTUMES & COMMUNITY! 🍻🎃Get ready for our annual unite4answers Co****le Tournament🏆🌽 📅 October 2, 2026📍 Hop...
09/29/2026

🎃🍻 CO****LE, COSTUMES & COMMUNITY! 🍻🎃

Get ready for our annual unite4answers Co****le Tournament🏆🌽

📅 October 2, 2026
📍 Hopsquad Brewing Co.
👉Sign up today HERE: https://igfn.us/form/FqbEsQ

Only 6 spots left—so grab your team and sign up before they’re gone!

🎯 Co****le Tournament
🎟️ Raffles
🍬 Trick-or-Treat Fun
👻 Costume Contest — come dressed to impress! 🏆

Bring your friends, show off your best costume, toss some bags, and help us unite for answers! 💜

****leTournament

Looking forward to hearing the latest from Tayler on hEDS genetics this Wednesday! If you haven't yet, registered please...
09/28/2026

Looking forward to hearing the latest from Tayler on hEDS genetics this Wednesday!

If you haven't yet, registered please do so HERE👇
https://igfn.us/form/23tQzg

Join us at at MUSC on September 30th for a peer-to-peer support meeting and lecture featuring Tayler Goectau as she shar...
09/25/2026

Join us at at MUSC on September 30th for a peer-to-peer support meeting and lecture featuring Tayler Goectau as she shares an hEDS genetics update from the Norris Lab!

👉Register for the lecture HERE - https://igfn.us/form/23tQzg

👀Learn more about Tayler - https://taylergoectau.weebly.com/

Come. Connect. Learn. Ask Questions.
Live in the Charleston-area or coming into town?
Join us the next day, October 1st, for a night at Topgolf! ZERO golf expertise needed.

Spend a night out with old and new friends, having fun, and raising awareness and funds for research💜

For more information, PM us or visit bobbyjonescsf.org/events

Nancy Feracco

Address

29 Crest Loop
Staten Island, NY
10312

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+17189662593

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