Complex Disorders Alliance

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Complex Disorders Alliance

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The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit organization dedicated to accelerating research for complex conditions.

06/01/2026

We are thrilled to recognize Cortney Gensemer for joining the CODA 50 Challenge and committing to run 50 miles in support of funding research for patients living with complex disorders.

As a scientist and patient living with complex chronic illness, Cortney brings an extraordinary perspective to this mission. She understands both the urgent need for answers and the importance of rigorous research designed to create meaningful impact.

Her commitment to this challenge reflects a shared belief that patients deserve more than symptom management. They deserve a scientific pathway toward understanding, treatments, and hope.

We are deeply grateful for Cortney’s support and dedication to advancing research for Long COVID, ME/CFS, dysautonomia, Ehlers-Danlos syndrome, and related complex chronic disorders.

Please join us in celebrating Cortney and supporting her fundraising efforts.

Donate to support Cortney’s CODA 50 Challenge:
https://givebutter.com/CODA50/cortdoesscience/cortneygensemer

05/29/2026

For many patients living with EDS and complex chronic conditions, survival becomes the baseline.

Daily life is shaped by symptoms, limitations, and uncertainty. Even with a diagnosis, patients are often left without clear or effective treatment pathways.

This reflects a fundamental gap in how these conditions are studied.

Progress depends on research that connects biological systems, identifies underlying mechanisms, and translates that understanding into more precise treatment approaches.
At CODA, this is the focus of our work.

Advancing this research requires sustained investment.
Support the science patients are waiting for: https://www.complexdisorders.org/research-programs

05/28/2026

At CODA, we believe every patient deserves answers. That starts with understanding the biology contributing to their symptoms.

CODA's Neuroimmune Research Portfolio is built around five interconnected research domains that study complex chronic illness as a whole, not by a single diagnosis.

CODA is funding research to better understand how disrupted communication between the nervous system and immune system may drive chronic illness and persistent symptoms. This work explores how targeted treatments may help restore healthier signaling and improve symptoms for a certain subgroup of patients.

Swipe to learn more about the science and the studies behind this work.
🔗 https://hubs.la/Q04jcycl0

05/27/2026

Every person living with ME/CFS, Long COVID, POTS, EDS, MCAS, and/or other complex, chronic disorders deserves a research strategy that matches the needs of their biology.

That's exactly what CODA is building: multisystem research for multisystem conditions.

Our research is organized around five core neuroimmune domains, the interconnected biological systems most consistently involved in complex chronic disease. Together, they form a scientific framework built to do what medicine has yet to deliver for this community: subtype patients by biology and match the right treatment to the right person at the right time.

Neuroimmune Signaling Immune Network Dysregulation Viral & Microbial Persistence CSF, Glymphatics, Cerebral & Venous Blood Flow Structural Mechanics & Instability

Progress is possible. This is how we get there. This research framework drives every study and initiative CODA funds.

Visit the link in our bio to learn more about CODA's Neuroimmune Research Portfolio.

05/26/2026

CODA is proud to announce its 2026 Research Portfolio!

This marks a significant step forward in how we approach complex chronic disease. Our work is grounded in a systems-level model that studies the full patient and connects the biology that may drive these conditions.

This approach brings together leading scientists, emerging technologies, and coordinated research efforts across neuroimmune systems to move toward more precise and effective treatment.

Progress begins with understanding.

Visit https://hubs.la/Q04hS-7v0 to learn more.

05/22/2026

Erica’s story reflects the reality many patients face.

Answers can take years to find. Even with a diagnosis, the path to effective treatment is often unclear.

Research is how we change that.

At CODA, we study the full patient to better understand what is driving disease across systems. That understanding leads to more precise, effective treatment options.

There is a path forward and it starts with science.

Support research that leads to better treatments for the millions of patients like Erica: www.complexdisorders.org

05/15/2026

Why does microvascular research matter for patients living with complex chronic disorders?

New research led by Professor Resia Pretorius at Stellenbosch University, in collaboration with Dr. Michal “Mikki” Tal at Massachusetts Institute of Technology (MIT), is advancing the study of microvascular function in conditions such as ME/CFS and Long COVID.

This work expands the ability to observe and analyze microvascular systems and can strengthen the understanding of how these processes contribute to disease at a systems level.

These insights are helping inform the development of more precise diagnostic frameworks and targeted therapeutic approaches for patients.

CODA is committed to supporting research that unites best-in-class science and accelerates progress toward improved patient outcomes.

Explore how this research is advancing the field: https://hubs.la/Q04gSpst0

05/13/2026

CODA is proud to support an international collaboration advancing microvascular research in complex chronic disorders.

This work brings together the expertise of Professor Resia Pretorius of Stellenbosch University and Dr. Michal “Mikki” Tal of Massachusetts Institute of Technology to investigate how microvascular dysfunction, endothelial dysfunction and immune-mediated clotting may drive persistent symptoms in conditions such as Long COVID, ME/CFS, and other complex, chronic disorders.

By advancing the ability to observe blood flow in real time, this research represents a meaningful step toward more precise diagnostics and targeted treatments.

This collaboration reflects CODA’s commitment to supporting and uniting best-in-class science and accelerating research that translates into promising treatments.

Read about this research collaboration effort: https://hubs.la/Q04gwhW70

05/12/2026

May 12 marks International ME/CFS Day, a moment to recognize both the global impact of ME/CFS and Long Covid and the scientific progress underway to better understand these conditions.

CODA is proud to support Sequence ME & Long Covid, a global collaboration building on Decode ME Study to identify the genetic architecture of these diseases.

Today, we are announcing Phase 2 funding, supporting the sequencing of 6,000 ME/CFS samples using advanced long-read technology. This represents an important step forward in uncovering the genetic drivers of these conditions.

In partnership with Action for ME, The University of Edinburgh, Oxford Nanopore Technologies, and the European Bioinformatics Institute, this study applies whole-genome sequencing to detect rare variants and structural differences across the genome.

With 6,000 samples already being sequenced and plans to expand to tens of thousands, this represents one of the largest studies of its kind and a meaningful step toward targeted diagnostics and treatments.

This is what it looks like to build the future of complex disease research.

🔗https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/

Support the work driving this field forward:
www.complexdisorders.org

05/05/2026

Kaley is a complex disorder patient navigating a reality where time is often spent in medical settings instead of classrooms, friendships, and the everyday moments that shape a young life.

Her experience reflects what so many patients face and why research must move forward with urgency.

At CODA, we focus on supporting science that moves treatments forward.

Every breakthrough brings us closer to a future where patients like Kaley can reclaim their time, their independence, and the life they deserve.

Support research for patients who can’t wait.
https://hubs.la/Q04fqvDJ0

Address

2299 Summer Street #1140
Stamford, CT
06905

Website

http://www.complexdisorders.org/

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