05/28/2026
ALS is in the news everyday and those diagnosed younger and younger! Before Gina’s diagnosis I was aware of ALS because of the fundraising efforts of the Ice Bucket Challenge the decade before but didn’t fully understand the disease. This article details the journey of several patients and with each story it is evident ALS research desperately needs funding.
https://www.today.com/parents/family/als-raising-kids-parenthood-neurodegenerative-disease-rcna344794?utm_campaign=trueAnthem_manual&utm_medium=trueAnthem&utm_source=facebook&fbclid=IwZnRzaASEfGZleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEerA1Qfp626N9_rBqo7hTrlAzkcNzOtele6XZZz2aNZvYLyct61_RrWIE6bGw_aem_oxfDJlqGPbm_NP9yK2wIsQ
Eight parents share the extraordinary journey of raising children while living with a disease that steals speech, mobility, and physical independence.