Fragile X Resource Center of Missouri

06/19/2026

Here's to your future career helping Fragile X families! Congratulations!

We are here to celebrate Marysa Cristofaro, Class of 2027, for recently receiving the Martin and Margaret Israel Scholarship for the 2026–2027 academic year from the Fragile X Resource Center of Missouri. This award speaks to her commitment to supporting individuals and families with rare genetic conditions such as fragile X syndrome. Congratulations, Marysa!

06/18/2026

this podcast definitely hit home for me. I also had a few chuckles, too.

Laugh Cry Rage Repeat : The Caregiver Chronicles · Episode

06/17/2026

Watch FRAXA’s Fragile X clinical trials webinar featuring leading researchers discussing current studies, emerging treatments, trial eligibility, and the future of the Fragile X treatment pipeline.

06/17/2026

📣 Adult Siblings Needed for Research Study

Do you have a brother or sister with Fragile X syndrome or Down syndrome? Researchers at University of Miami are seeking adult siblings to participate in a study exploring how families prepare for future caregiving responsibilities as parents age.

Your insights can help researchers better understand caregiving transitions and identify resources and supports that families need.

You may be eligible if you:
✅ Are 18 years of age or older
✅ Live in the United States
✅ Have a sibling with Fragile X syndrome or Down syndrome

📝 Participation involves a brief online survey (15–20 minutes)

🔗 Take the survey: https://hubs.ly/Q04lFwYW0

06/07/2026

A huge thank you to everyone who supports the Fragile X Resource Center of Missouri. Because of your generosity, we’re able to create meaningful opportunities for local Fragile X families to connect, build friendships, and make lasting memories.

Last night, we hosted a father-son outing at Topgolf for families in our Fragile X community. While we don’t have any photos from the event (apparently remembering to take pictures isn’t a strong suit for a group of dads!), we can confidently say that a great time was had by all.

Events like these are only possible because of the support we receive from our donors, sponsors, volunteers, and community partners. Thank you for helping us bring families together and strengthen our Fragile X community across Missouri.

06/05/2026

Knowledge for new followers and a refresher for the rest of us! ❤️

05/31/2026

If you have a child who likes hugs, this is helpful information. 🥰

05/31/2026

Next weekend! Register now!

Register here:

https://docs.google.com/forms/d/e/1FAIpQLScIhV4sdKlLdhb6PuYzkrFCgOQ6zIPHY7twpLRACw6QZKG-aw/viewform?usp=dialog

05/29/2026

The recording for our latest **Females with FXS Webinar Series: Health, Wellness & Fertility** is now available.

Girls and women with Fragile X syndrome can experience a wide range of strengths, challenges, and support needs - and their experiences deserve dedicated conversations and resources.

In this webinar, expert panelists discuss:
✨ Puberty and reproductive health
✨ Emotional wellness and independence
✨ Sleep, exercise, and healthy habits
✨ Fertility and family planning conversations
✨ Supporting females with FXS across the lifespan

Thank you to our incredible panelists: Dr. Vicki Wilkins, Dr. Deborah Barbouth, Dr. Heather Hipp, Makenzie Woltz, and Missy Zolecki.

Presented in partnership with the LivJoy Foundation.

🎥 Watch the recording now. https://fragilex.org/resources/webinars/females-fxs-webinar-health-wellness-fertility