08/30/2026
Meet Millie! Millie was born this past November with many medical issues. Shortly after birth, she went into respiratory failure. After several months of being hospitalized at St. Louis Children’s Hospital, doctors determined she had a very rare genetic disorder called Glycogen Storage Disease Type IV. This affects 1 in 800,000 births. She has issues with her heart, muscle strength, mobility and eating by mouth. Millie will require ongoing specialized care and close medical monitoring throughout her life. Despite the uncertainty that comes with such a rare diagnosis, Millie has shown incredible strength and resilience! Colton’s Cause was able to assist, with the help of Woodard Construction (Jared) to install the necessary electrical work in her parents home to allow the medical equipment Millie requires to care for her at home! Keep fighting Millie! 😇🦋❤️