Here is his journey, bucket list adventures and the goal of spreading the word about SMA! Logan has been diagnosed with SMA Type 1. SMA is the #1 genetic killer of children under 2 years of age. There is no treatment and no cure. "Type 1 is normally diagnosed before 6 months of age. Many times, symptoms start while still in the womb. They are not able to hold up their heads, roll over, crawl, sit
up without support, or walk. All of their muscles are extremely weak, with the weakest muscles being the legs, upper arms, and neck. A common cold can easily turn into pneumonia which is what usually takes the lives of these children, along with “respiratory failure” or when they no longer have the lung or chest muscles to be able to breathe on their own." "SMA is a rare disorder occurring in approximately 8 out of every 100,000 live births, and affecting approximately 1 out of every 6,000 to 10,000 individuals worldwide." To read this and more on SMA, please visit http://www.smasupport.com/laymen_version.htm
If you or a close family/friend are going through SMA, please contact us! To contact us directly, you can email us at [email protected] or message us through the page.
