Choroideremia Research Foundation

06/02/2026

What an incredible day on the course! ⛳️

A heartfelt thank you to CHMer Dave Rumpel and his friends for hosting the 8th Annual 18-Hole Fundraiser Special Vision Golf Outing benefiting the Choroideremia Research Foundation (CRF) and Area 22 Special Olympics.

Held at Valley View Farm Golf Course in Saginaw, Michigan, this year's event welcomed 140 golfers and raised an incredible $15,000, with $7,500 being donated to each charity.

We are deeply grateful to everyone who participated, volunteered, sponsored, and supported this event. Your generosity helps advance CRF's mission and brings hope to individuals and families affected by choroideremia.

Thank you for making the 8th annual outing such a tremendous success!

05/28/2026

Help send a first-time CHM family to the 2027 CRF International Conference. 💙

For many individuals and families affected by choroideremia, attending a CRF event for the first time can be truly life-changing. The conference gives CHMers and their families the opportunity to connect with others who understand the journey of living with CHM while gaining valuable resources, hearing from researchers, and building lasting friendships and support systems.

First-Timer Grants help remove barriers that may prevent families from attending.

The 2027 CRF International Conference will take place June 23–26, 2027 in Orlando, Florida.

To support a First-Timer Grant, select “In Honor Of,” then enter “Conference Grant” at: curechm.org/donation-form

05/26/2026

The Choroideremia Research Foundation (CRF) is now accepting applications for its upcoming research grant cycle, with submissions due June 30, 2026.

The Choroideremia Research Foundation is now accepting grant applications for research focused on CHM through June 30.

05/26/2026

Congratulations to Tim Galvin, a member of the CHM community, on being named a winner of the 2025/2026 CARTA Image Competition! 🌌

Tim’s winning image, Deep Radio-Continuum Insights Towards the Galactic Plane With ASKAP, highlights both the beauty of astronomy and the power of scientific discovery through CARTA.

We’re proud to celebrate members of the CHM community making an impact across the scientific world.

Read more from IDiA: https://idia.ac.za/2026/05/22/announcing-the-winners-of-the-2025-2026-carta-image-competition/

05/22/2026

SHARE to help others better understand Choroideremia (CHM).

Choroideremia (CHM) is an ultra-rare inherited retinal disease affecting approximately 1 in 50,000–100,000 people. Symptoms often begin with difficulty seeing in low light or at night and can gradually progress to peripheral vision loss over time.

This visual is designed to help illustrate how vision changes may occur for some individuals living with CHM.

While no graphic can fully capture lived experience, educational visuals like this can help families, friends, and communities better understand CHM and the importance of awareness, research, and support.

Join the drive for a cure: curechm.org/donation-form

05/21/2026

May is Inherited Retinal Disease (IRD) & Genetic Testing Awareness Month 🧬

The Choroideremia Research Foundation (CRF) is proud to join Prevent Blindness in recognizing the third annual IRD Awareness Month.

This month highlights inherited retinal diseases such as Choroideremia, Retinitis Pigmentosa, Stargardt Disease, and others—while emphasizing the critical role of genetic testing in achieving an accurate diagnosis.

Choroideremia often appears similar to Retinitis Pigmentosa in its early stages, which can lead to misdiagnosis. A genetic test is essential to confirm the diagnosis and ensure individuals receive the most accurate information about their condition, especially as research advances and emerging therapies are developed to target specific gene mutations.

Together, we’re raising awareness of the importance of genetic testing in eye health, diagnosis, and the future of vision research.

Learn more about inherited retinal diseases and genetic testing from Prevent Blindness:
https://preventblindness.org/inherited-retinal-diseases/ #1587478551805-8fd98b0c-7329

05/20/2026

📣 Mark your calendars!

The 2027 CRF International Conference will be held June 23–26, 2027, at the Drury Plaza Hotel Orlando – Disney Springs Area in Orlando, FL.

Join the CHM community for several days of connection, education, research updates, and family-friendly fun. With resort-style amenities, nearby Disney Springs, and convenient park access, it’s a great setting for learning and time together.

More details, registration, and schedule info coming soon—stay tuned!

05/19/2026

May is Mental Health Awareness Month 🩵

A reminder that emotional well-being is just as important as physical health. Living with CHM-related vision loss can bring real challenges, and feelings like anxiety, sadness, or uncertainty are valid.

The Foundation Fighting Blindness is hosting an upcoming webinar focused on mental health and living with low vision:

Quarterly Vision Webinar: Mental Health — Living and Thriving
📅 Saturday, May 23, 2026
🕛 12:00 p.m. ET | Zoom

This session will explore the emotional impact of vision loss and share strategies for resilience, holistic well-being, and building community support.

Featuring licensed therapist Matthew Reeves, LPC, CRC, NCC, along with a speaker from Hadley, a nonprofit that provides tools, resources, and peer connections for people living with vision loss.

Register to join: https://www.fightingblindness.org/events/quarterly-vision-webinar-mental-health-living-and-thriving-6840

05/19/2026