Choroideremia Research Foundation

06/25/2026

A new book from Dr. Ian M. MacDonald highlights the decades-long journey toward gene therapy for choroideremia.

In Our Hope for Gene Therapy, Dr. MacDonald shares the scientific discoveries, challenges, and collaborations that have shaped the search for treatments for CHM, culminating in Canada's first experimental gene therapy trial for choroideremia in 2015.

The book acknowledges the many individuals and organizations that contributed to this progress, including patients, families, researchers, clinicians, institutions, funding organizations, and patient advocacy groups. Among those recognized is the Choroideremia Research Foundation (CRF), whose research grants have helped support investigations into choroideremia and potential treatments over the years.

A longtime CRF-funded researcher and Emeritus member of the CRF Science Advisory Board, Dr. MacDonald has played an important role in advancing the understanding of CHM and the pursuit of new therapies.

Our Hope for Gene Therapy serves as both a personal reflection and a testament to the power of collaboration, perseverance, and a shared commitment to creating a better future for the CHM community.

📖 Learn more and purchase a copy: https://a.co/d/00MIQ2CV

06/24/2026

Did you know?

If you are blind or have low vision, Amazon offers a dedicated Accessibility Line where trained representatives can help you shop more easily. They can describe products, search for items, compare options, and even place items directly into your cart. If you already have an Amazon account, you can complete your purchase later simply by asking Alexa.

📞 Amazon Accessibility Customer Support: 888-283-1678

A few things to keep in mind:
• You’ll need an Amazon account
• They may ask for the email and phone number linked to your account
• Some deals are exclusive to Prime members
• Representatives can help you search and compare products when navigating listings can be difficult

Plus, Amazon’s Prime Summer Shopping event is happening now through June 26, so it’s a great time to explore these accessibility tools and seasonal deals.

06/23/2026

In case you missed it, the recording of our webinar with Dr. Jogin Desai of EyeStem is now available on YouTube. Learn about the latest developments in RPE cell replacement therapy and its potential applications for CHM.

Dr. Jogin Desai is the Founder and CEO of EyeStem, a cell therapy c...

06/22/2026

Thank you, The Andover Companies and Cassidy Associates Insurance Agency, for supporting the Choroideremia Research Foundation through the Agency Impact Grant Program! We are grateful for your generosity and partnership in helping fund research and support for individuals and families affected by choroideremia.

06/17/2026

Across multiple states, one community came together for one mission.

Through the Penn Medicine Orphan Disease Center's 2026 Million Dollar Bike Ride, Team CHM cyclists Kelly Ho**er, Carol Brennan, and Neal Bench, CRF President, along with the Team Bench Paceline riders, have already raised more than $10,000 toward our $15,000 goal to support choroideremia research.

It's not too late to give! Donations will be accepted through June 30. Help us reach our goal: https://secure.qgiv.com/event/mdbr2026

06/15/2026

Manny Moodley, CEO of Retina South Africa and Deputy Chair of Retina International, joined H. Eric Hartman, CRF Director of Advocacy, for an interview at the combined Retina International World Congress and Foundation Fighting Blindness (FFB) “United in Vision 2026” conference in Fort Worth, Texas.

06/15/2026

James Carrick, Treasurer of Retina New Zealand and a prominent advocate living with choroideremia, joined H. Eric Hartman, CRF Director of Advocacy, for an interview at the combined Retina International World Congress and Foundation Fighting Blindness (FFB) “United in Vision 2026” conference in Fort Worth, Texas.

06/15/2026

CRF was honored to attend the combined Retina International World Congress and Foundation Fighting Blindness (FFB) “United in Vision 2026” conference on June 12–13 in Fort Worth, Texas, and host a booth throughout the event.

The conference brought together global scientific conversations on cutting-edge research and gene therapy clinical trials, assistive technology, daily living and advocacy workshops, and meaningful community connection across the retinal disease space.

A special thank you to Lin and Laura Ogg for volunteering their time and supporting us at the CRF booth!

06/11/2026

What happens when the world's leading vision researchers, clinicians, and patient advocates come together in one place?

Take a look inside ARVO 2026, where the Choroideremia Research Foundation (CRF) connected with researchers, industry leaders, and members of the CHM community to help advance the future of choroideremia research.

Filmed by Team Trust Productions, this video features interviews with CHM researchers, CRF staff, and community members, along with highlights from the International Choroideremia Research Network (ICRN) breakfast, CRF's outreach booth, and scientific presentations throughout the conference.

As the world's largest gathering dedicated to vision research, ARVO provides an important opportunity to share discoveries, foster collaboration, and move promising treatments closer to reality.

Join the Choroideremia Research Foundation (CRF) at ARVO 2026 in De...