ISACRA-International Sacral Agenesis Caudal Regression Association

ISACRA-International Sacral Agenesis Caudal Regression Association Welcome to the iSACRA public page, where you’ll get information to direct you to the proper resour

iSACRA is an international organization founded to provide information and support for those impacted by the condition of sacral agenesis, also called caudal regression syndrome (SA/CRS).

Alison Erhardt Vice PresidentAlison was born and raised in North Dakota, USA. She graduated from Dickinson State Univers...
08/12/2024

Alison Erhardt Vice President
Alison was born and raised in North Dakota, USA. She graduated from Dickinson State University with a degree in Music Education and a minor in Leadership. She spent the early years of her marriage helping her husband Drew run the family ranch, as well as devoting her time and attention to their children. She is the lucky mom to eight beautiful souls. Raising her six surviving children is truly the greatest privilege in her life. Alison currently teaches elementary music. She discovered iSACRA when her son was diagnosed with SA after five years of searching for answers. It was a relief to finally have a diagnosis for all of his symptoms but, at the same time, it was overwhelming to try to find any answers. Allison found that the iSACRA website and Facebook group offered her the best chance at understanding what to expect and how to support her son on his journey. Allison states, “As we continue to learn about how his SA affects him, it gives me hope to know that I have a group of people we can both turn to who will offer support. I am also thrilled at the prospect of researchers having a registry from our members in order to work towards offering better knowledge to providers in the future of healthcare."

07/31/2024
Celebrating International Disability Pride Month! What are you proud of?   www.isacra.org
07/10/2024

Celebrating International Disability Pride Month!
What are you proud of?





www.isacra.org

Happy Belated 1st Day of....
07/02/2024

Happy Belated 1st Day of....

Please, if you or your child has SA/CRS fill out our patient registry so we can help pave the way for future families an...
03/28/2024

Please, if you or your child has SA/CRS fill out our patient registry so we can help pave the way for future families and the medical community.

Please enquire by April 7th. Thank you
03/26/2024

Please enquire by April 7th. Thank you

Happy 10th Anniversary iSACRA!! 🎉
03/24/2024

Happy 10th Anniversary iSACRA!! 🎉

Happy International Wheelchair Day!!!
03/01/2024

Happy International Wheelchair Day!!!

Happy Rare Disease Day!!! Don't forget to wear your zebra stripes and jeans!!!
02/29/2024

Happy Rare Disease Day!!!
Don't forget to wear your zebra stripes and jeans!!!

Want to know what iSACRA is? Take a scroll through the pics below.
02/27/2024

Want to know what iSACRA is? Take a scroll through the pics below.

PRIVACY PROTECTIONiSACRA values the privacy and protection of each member, and the iSACRA board works extra hard on safe...
10/26/2022

PRIVACY PROTECTION
iSACRA values the privacy and protection of each member, and the iSACRA board works extra hard on safety in this online format. Posts are monitored for appropriate content. Bullying, sexual harassment, and otherwise inflammatory content are not tolerated. Note that communications outside of group postings cannot be controlled by iSACRA. Use caution in friending, messaging, and otherwise communicating with individuals you do not know. If you receive problematic communications from a fellow iSACRA member, you are urged to unfriend and block communications. You may wish to report the individual to Facebook, and you may certainly also report problematic communications to the iSACRA board. Inappropriate communication may result in a notice of immediate termination from the iSACRA group.

Address

101 Cottontail Drive
Springfield, VA
22630

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