Adrenal Insufficiency Oregon

03/18/2023

It's not too late to register for the conference in Portland!!
https://united4rare.org/aiu-csrf-conference-2023/

Also if you have a child with AI who is under the age of 18 message us if you are driving from a distance and need a hotel room. We have some funding available.

02/18/2021

Good morning Oregon! Can you help me real quick? Want to help save a babies life? All it takes is a quick signature to add SMA to Oregon NBS! As many of you know, my son Tristan’s life was saved because his rare medical condition was caught early on due to newborn screening. We now have the chance to add SMA to the screening! Click the link below to sign on and please share! ❤️❤️❤️

To add your name to this Oregon-only sign-on letter, please complete the below information. By completing and submitting the requested information, you are agreeing to have your name, city and state (for Oregon residents only) listed as a signer of the letter. See sample below): EXAMPLE LISTING:

02/09/2019

Can't attend our conference in person? We'll be live streaming it for our member, learn more by reading our news brief. - https://mailchi.mp/aiunited/live-streaming-conference

04/16/2018

We hope you'll join our town hall on rare disease and help our legislators know how they can help! https://www.facebook.com/events/360913637746429/

01/17/2018

Registration for AIU's first conference on Adrenal Insufficiency is now open!

11/10/2017

Be sure to like our new regional page! https://www.facebook.com/AIUakidorwa/
On Saturday this page will be archived. We're looking forward to collaborating with our neighboring states.

Show your support for those living with Adrenal Insufficiency, by joining our page. Let's bring the AI Community and their supporters in the Northwest together!

11/07/2017

Please head over and LIKE our new regional page. In a few days this page will be deactivated. We are excited about working with our Northwest neighbors in AK, ID, and WA
https://www.facebook.com/Adrenal-Insufficiency-AK-ID-OR-WA-214604242412781/

Show your support for those living with Adrenal Insufficiency, by joining our page. Let's bring the AI Community and their supporters in the Northwest together!

11/06/2017

HELLO! To help make our pages more dynamic and active we will be organizing states into regions. Oregon, Washington, Alaska and Idaho will be merged into one page. We will also do the same on our website with a soon to be added interactive map so we can post events or opportunities for get togethers. The name of the page will change to Adrenal Insufficiency Northwest.

09/01/2017

If you're near Portland, OR here's a support group meeting for you!

07/16/2017

Some important news for Oregonians!

The story of how one rare disease group used cupcakes to help make a new law to protect their loved ones.