Parotid Patient Project

04/05/2025

Hello Parotid Community! The patient-centered study funded by Parotid Patient Project-that many of you participated in- has been published in the Journal of American Medical Association-Otolaryngology- Head & Neck Surgery April 2025 issue!

Our voices have been heard and were used to compile this questionnaire that surgeons around the world can use to provide their parotid patients with better care.

Thank you to all who participated in this study!

This survey study establishes and validates the Parotidectomy Quality of Life Index, a new English-language, 35-item patient-reported outcome instrument for parotidectomy.

03/15/2025

Hello Parotid Community! The latest video in the Mayo Clinic Parotid Tumor Guide series has been published and is ready for you to learn more about incisions and healing!

In this video, Dr. Eric Moore, Chair, Department of Otolaryngology-Head & Neck Surgery, and his patient, Heidi, discuss a variety of topics on incisions and healing. Dr. Moore answers questions and concerns about the type of incision that is used for different types of parotid tumors, closure of incisions, post-operative incision care, side effects related to incisions, scar revision, and much more.

Happy Viewing!

This video features Dr. Eric Moore and his patient, Heidi, discussing parotid tumor surgery incisions and surgical approaches used by head and neck surgeons....

06/16/2024

Hello Parotid Community! The latest Parotid Tumor Podcast episode that discusses a variety of topics on incisions is ready for your listening enjoyment! You can find the time stamp for the topics in the show notes or chapter markers section of the podcast.

We hope this information helps answer some questions and concerns about the type of incision that is used, closure of incisions, post-operative incision care, side effects related to incisions, scar revision, and much more.

Happy Listening!

There are many aspects of parotid surgery that concern patients, and one of the primary concerns is the incision used during parotid surgery. The treatment is on a highly visible area of the body-the face- and can lead some patients to worry about...

07/27/2023

LAST CALL:

The Mayo Clinic's patient-centered research project that was funded by Parotid Patient Project is still enrolling patients. This study needs at least 300 participants from the United States.

If you are based in the United States and have gone through parotid treatment, we need to hear about your experiences.

If you have already enrolled and filled out the survey, thank you! If you have not had a chance to participate yet, the time to enroll is now! The study closes on July 31, 2023.

This survey aims to capture both the short-term and long-term effects of surgery, so we need patients who have recently had surgery as well as patients who had surgery quite some time ago to participate to capture this information.

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit: https://mayocl.in/3qetsIm
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

07/06/2023

Hello Parotid Community! Time is running out to participate in the Mayo Clinic's patient-centered research project that was funded by Parotid Patient Project. The study closes on July 31, 2023. This study needs at least 300 participants from the United States, and we have not hit that number yet. Don’t miss your chance to participate!

If you are based in the United States and have gone through parotid treatment, we need to hear about your experiences. If you have already enrolled and filled out the survey, thank you! This survey only takes 15 minutes to complete and will have lasting impacts on the parotid community.

This survey aims to capture both the short-term and long-term effects of surgery, so we need patients who have recently had surgery as well as patients who had surgery quite some time ago to participate to capture this information.

If we want answers and want researchers to care about parotid related research, then we need to participate in their studies when they have them.

Volunteers needed in a study on patient-centered outcomes after parotid surgery

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit:
https://mayocl.in/3MKGUgn
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

07/06/2023

Volunteers needed in a study on patient-centered outcomes after parotid surgery

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit:
https://mayocl.in/3MKGUgn
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

06/12/2023

Hello Parotid Community! The Mayo Clinic's patient-centered research project that was funded by Parotid Patient Project is still enrolling patients. This study needs at least 300 participants from the United States, and we have not hit that number yet.

If you are based in the United States and have gone through parotid treatment, we need to hear about your experiences. If you have already enrolled and filled out the survey, thank you! If you have not had a chance to participate yet, the time to enroll is now as the study will be closing in a few weeks.

This survey aims to capture both the short-term and long-term effects of surgery, so we need patients who have recently had surgery as well as patients who had surgery quite some time ago to participate to capture this information.

This survey only takes 15 minutes to complete and will have lasting impacts on the parotid community.

Volunteers needed in a study on patient-centered outcomes after parotid surgery

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit:
https://mayocl.in/41GUa9v
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

05/26/2023

A great way to educate yourself and to become your own best advocate is by learning through questions that have been asked by fellow parotid patients. Listen to our latest podcast episode where Dr. Eric J. Moore, Chair, Department of Otolaryngology-Head and Neck Surgery, at the Mayo Clinic in Rochester, Minnesota answers questions from the parotid community!

It is parotid patient question and answer day at Parotid Tumor Podcast! Patients often share the same worries, concerns, and experiences as they navigate this diagnosis and treatment process. A great way to educate yourself and to become your own ...

04/21/2023

If you have had parotid surgery and are located in the United States, we need to hear from you!

Please enroll in this patient-centered research study that was funded by Parotid Patient Project to give patients a voice and to help impact the future care of parotid patients.

Volunteers needed in a study on patient-centered outcomes after parotid surgery

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit:
https://mayocl.in/3MKGUgn
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

03/13/2023

Hello Parotid Community! The patient-centered research project that was funded by Parotid Patient Project has been released and is ready for patient enrollment. Due to restrictive patient privacy laws overseas, the Mayo Clinic can only enroll patients based in the United States to participate in the study.

Our parotid community members overseas will still be able to benefit from this study as the findings will be released to physicians across the world to use in their practices.

If you are based overseas, I want you to know that I hear you all and care very much about all of you. Your voices are heard and influence everything that I do through Parotid Patient Project, and your experiences matter.

If you are based in the United States, we have a unique opportunity to influence the future care and treatment of parotid tumors, and we need as many people as possible to participate in this survey. This is our time to unite as a community and let our voices be heard!

Volunteers needed in a study on patient-centered outcomes after parotid surgery

Mayo Clinic researchers are seeking volunteers who have had a “parotidectomy” – a surgery to remove part or all of the parotid gland – to participate in a survey research study. The purpose of the study is to better understand the experiences of patients who have gone through parotid surgery with respect to their surgical outcomes, quality of life, mental health, and social well-being. For more information, or to access the survey, please visit:
https://mayocl.in/3YF7Ikp
or contact our study research coordinator, Amy Tuchscherer, at [email protected]

02/28/2023

Hello Parotid Community! The moment we have waited for is finally near. The patient-centered research project that was funded by Parotid Patient Project will be released soon. I recorded this podcast with Dr. Linda Yin who is spearheading this research project at the Mayo Clinic. Dr. Yin explains the project, what they hope to learn, and how you can help by participating in this study.

Every patient voice matters. This is our time to unite as a community and let our voices be heard! We have a unique opportunity to influence the future care and treatment of parotid tumors.

We will provide a link where you can sign up to participate in the study when it becomes available. In the meantime, you can learn more about this groundbreaking study in this podcast episode.

The day we have all been waiting for has finally arrived! A patient-centered research project at the Mayo Clinic that was funded by Parotid Patient Project is being released. As patients, we often wonder why we don’t have more answers about paroti...

02/28/2023

Hello Parotid Community! The moment we have waited for is finally near. The patient-centered research project that was funded by Parotid Patient Project will be released soon.

I recorded this podcast with Dr. Linda Yin who is spearheading this research project at the Mayo Clinic. Dr. Yin explains the project, what they hope to learn, and how you can help by participating in this study.

Every patient voice matters. This is our time to unite as a community and let our voices be heard! We have a unique opportunity to influence the future care and treatment of parotid tumors.

We will provide a link where you can sign up to participate in the study when it becomes available. In the meantime, you can learn more about this groundbreaking study in this podcast episode.

Parotid Tumor Podcast strives to reduce the fear, anxiety, and stress levels of patients, who have been diagnosed with parotid tumors, by providing them with information, resources, and support. The episodes will be hosted by Heidi Semann, a fello...