aHUS Action Network

aHUS Action Network Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from aHUS Action Network, Nonprofit Organization, Spotsylvania, VA.

aHUS Action Network (aAN) is a community of patients and caregivers living with atypical Hemolytic Uremic Syndrome, a rare genetic disorder that affects the kidneys.

Don't miss this educational webinar from our friends at Alexion on Thursday, March 9.
03/01/2023

Don't miss this educational webinar from our friends at Alexion on Thursday, March 9.

Share Your Stripes is the Rare Disease Day theme for the National Organization for Rare Disorders. What will you be doin...
02/28/2023

Share Your Stripes is the Rare Disease Day theme for the National Organization for Rare Disorders. What will you be doing to raise awareness about aHUS and other ultra-rare diseases?

Tomorrow is Rare Disease Day. Be sure to share this post to help us raise awareness about ultra-rare diseases like aHUS.
02/27/2023

Tomorrow is Rare Disease Day. Be sure to share this post to help us raise awareness about ultra-rare diseases like aHUS.

Mark your calendars....
01/31/2023

Mark your calendars....

Whether you are an aHUS patient, caregiver, family member or friend, we wish everyone a Happy Hanukkah, Merry Christmas ...
12/20/2022

Whether you are an aHUS patient, caregiver, family member or friend, we wish everyone a Happy Hanukkah, Merry Christmas and Happy Kwanzaa, as well as a VERY Happy New Year!

In our latest webinar, James Romano discusses Medicare and Obamacare open enrollment considerations for aHUS and chronic...
11/30/2022

In our latest webinar, James Romano discusses Medicare and Obamacare open enrollment considerations for aHUS and chronic disease patients with Kimberly Ryle of Good Days.

aAN's James Romano discusses Medicare and Obamacare open enrollment considerations for aHUS and other chronic disease patients with Kimberly Ryle from Good D...

Happy Thanksgiving from the Officers, Board and Volunteers of the aHUS Action Network!
11/23/2022

Happy Thanksgiving from the Officers, Board and Volunteers of the aHUS Action Network!

Our friends at Alexion invite you to participate in this educational webinar on Tuesday, Nov. 1 at 7 p.m. ET.
10/27/2022

Our friends at Alexion invite you to participate in this educational webinar on Tuesday, Nov. 1 at 7 p.m. ET.

During aHUS Awareness Month, our Director of Advocacy, James Romano, began educating Members of Congress and their staff...
09/26/2022

During aHUS Awareness Month, our Director of Advocacy, James Romano, began educating Members of Congress and their staff about aHUS. One of aAN's central missions is to advocate on behalf of patients and caregivers with legislators and policymakers at the federal and state levels.

On aHUS Awareness Day, aAN is pleased to release our latest webinar: aHUS, COVID-19 and Vaccines, presented by our Board...
09/24/2022

On aHUS Awareness Day, aAN is pleased to release our latest webinar: aHUS, COVID-19 and Vaccines, presented by our Board Member and medical expert Dr. Bradley Dixon.

aAN Board Member and aHUS specialist Dr. Bradley Dixon discusses the latest findings about how COVID-19 interacts with aHUS and current COVID vaccines.

09/13/2022

aHUS Action Network board member Cameron Shadinger discusses her family's aHUS journey. Both her daughter and husband live with this rare disease and Cameron shares her story and encourages other families in the aHUS community.

09/13/2022

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Spotsylvania, VA

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