Rising Phoenix CRPS

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Rising Phoenix CRPS

Rising Phoenix was designed by a CRPS survivor to help communicate with one another, as well as give support, educate, and raise awareness. More to come!

06/22/2026

What True Strength Looks Like

Still breathing when the pain level spikes past what feels humanly possible.

Showing up for life even when your body is begging you to pull the covers over your head.

Choosing to hope for a better tomorrow, even when today feels completely unbearable.

Your pain is real, your fight is valid, and continuing to move forward through the fire is the highest form of bravery.

06/16/2026

Asking for a friend 🧡

06/15/2026

Dear Me,
I am writing this to the version of myself that lives inside the fire, the swelling, and the unpredictable storms of Complex Regional Pain Syndrome (CRPS). I see how hard you fight every single day just to stay upright. I know you are exhausted. But I need to talk to you about our peace, because protecting it has become a non-negotiable requirement for our survival.

For a long time, we treated peace like a luxury we could only afford on “good days.” We let the pain dictate the boundaries, and we let guilt run the clock. But the truth is, living with an overactive nervous system means peace cannot just be an afterthought. It is the medicine we have to actively cultivate. Moving forward, my peace has firm requirements, and I need you to honor them:

The Right to Say No: Peace requires that we stop over-extending our body to make others comfortable. “No” is a complete sentence, and it is a shield for our nervous system.

A Zero-Tolerance Policy for Guilt: Taking a rest day, cancelling plans, or staying in bed is not a failure. It is necessary maintenance. We will no longer apologize for surviving.

Pacing, Not Pushing: We are done with the “boom and bust” cycle. Pacing ourselves is not giving up; it is an act of fierce self-preservation.

Protecting Our Space: We must walk away from chaotic environments, stressful dynamics, and people who demand more energy than we have to give.

Gentle Self-Talk: When the flares hit, we will meet our body with kindness instead of frustration. You cannot heal or find calm while at war with yourself.

CRPS takes so much out of our hands, but these boundaries are the things we can control. Setting these requirements isn’t selfish; it is how we create a safe harbor in the middle of a storm. Let’s promise to guard our peace like the precious, vital resource it is.

With love and absolute grace,
Myself

06/09/2026

Love,
another CRPS Warrior

06/03/2026

The Scale of Ten

The charts are neatly filed in clinical rows,
A language of acronyms only the broken know.
They measure the pain on a one-to-ten scale,
But numbers are hollow, and data will fail
To capture the fire that lives in the bone,
The weight of a mountain you carry alone.

The waiting rooms swallow the hours of the day,
For experts to guess at what text books can’t say.
A cycle of visits, of trials, of tests,
Searching for calm while the nervous system protests.
”It’s rare,” they remind you, “a complex design,”
As lightning rewires the pathways of spine.

You advocate fiercely, explaining the heat,
The touch of a blanket, the sting of defeat.
A pharmacy ledger of hope and of doubt,
Trying to put the internal flame out.
Yet past the sterile walls and the clinical gaze,
Lies a warrior just trying to navigate the blaze.

06/01/2026

The CRPS Hangover [noun]:
The overwhelming, full-body physical penalty paid the day after trying to do something “normal.”

Anyone living with Complex Regional Pain Syndrome knows that fun or necessary activities are never free. They are borrowed against tomorrow’s energy and pain levels.

Going to a friend’s house, walking around a grocery store, or attending a family dinner might look simple from the outside. But for a hyperactive nervous system, it’s the equivalent of running a marathon while being shocked with electricity.

When the adrenaline wears off, the “hangover” sets in:
The Fire Flares: Burning pain that intensifies at the slightest touch.Deep Exhaustion: A bone-deep fatigue that sleep cannot fix.
Sensory Overload: The feeling that your body’s volume dial has been cranked up to 100.

If you are spending today in a dark room, resting, or just trying to get through the crash—remember that your body is working incredibly hard to find its baseline again. Rest is not a luxury; it is a medical necessity.

Gentle reminder: You didn’t do anything wrong by trying to live your life. The tax is just incredibly high.

05/28/2026

Dear CRPS Fighter, 🧡

I see you. I see the immense courage it takes to wake up every single day when your own nervous system feels like it is on fire.

Complex Regional Pain Syndrome is a relentless, burning, stabbing weight that very few people truly understand. It is incredibly lonely to navigate an invisible illness that leaves no outer scars, but completely rewires your entire world.

Please know that your pain is real, your exhaustion is valid, and you are not crazy.

On the days when the flares are unbearable and the brain fog makes it hard to see a way forward, please give yourself grace. Surviving the day is enough.

You belong to a fierce, resilient community of warriors who understand exactly what you are going through. You never have to carry this alone. Keep fighting, gentle soul. Your resilience is breathtaking.

Drop an orange heart (🧡) in the comments if you are fighting today, or tag a warrior who needs to hear this.

05/22/2026

Most people see a smile. They don’t see the burning, the swelling, or the constant firing of misdirected nerve signals.

🧡CRPS is often called a ‘suicide disease’ because the pain is ranked higher than childbirth and amputation on the McGill Pain Scale. Yet, because it is invisible, the world expects those fighting it to act totally normal.

If you are fighting this daily battle, you do not have to carry the weight alone. Our support group is a safe space where you don’t have to explain your pain—because we already get it.

👇 Drop an orange heart if you are fighting today, or tag someone who needs to see this.

🔗 Click the link in our bio to join our next support group meeting. We are stronger together.

Syndrome

05/12/2026

When CRPS pain peaks, our natural instinct is to tense up, hold our breath, and fight back. But this physical and mental “bracing” can actually signal our nervous system to stay in a state of high alarm, fueling the cycle of a flare.

Try the Soften, Soothe, and Allow practice to shift your body from “battle mode” to “healing mode”:

Soften: Consciously relax the muscles around the pain. Imagine the area becoming pliable and soft, like a cloud, rather than a clenched fist.

Soothe: If you can tolerate light touch, place a warm hand over your heart or the affected area. Imagine a golden, healing light flowing from your palm into your body.

Allow: This is the hardest part. Let the pain be there without trying to push it away. When we stop resisting, we often find that the secondary “suffering”—the anxiety and mental exhaustion—begins to lift.

Be gentle with yourself today. You don’t have to fight every fire. Sometimes, you just have to let it burn while you stay safe in the center. ✨

Address

PO Box 19144
Spokane, WA
99219

Website

http://www.risingphoenixcrps.com/

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