Sisters Helping Sisters a Nonprofit Corporation

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Sisters Helping Sisters a Nonprofit Corporation We support women with Endometriosis and allow them the means to get to proper specialists.

We are a non profit corporation that will assist with financial costs associated with consultation fees, surgery down payment, hotel & airfare costs.

06/29/2026

I prefer to stay anonymous, but I wanted to take a moment to share a little about why this organization exists.

Like many women living with endometriosis, I spent years searching for answers. I experienced pain, frustration, and the feeling of not being heard. I learned firsthand how difficult it can be to find qualified specialists, and how financial barriers can make that journey even harder.

As someone who has navigated those challenges, I know that the cost of travel, appointments, lodging, missed work, and other expenses can prevent people from getting the care they need. No one should have to choose between their health and their finances.

That experience inspired me to create this nonprofit. My hope is to help women access the specialized care they deserve by providing financial assistance and support along the way.

Throughout my journey, I also explored different ways to support my overall well-being. One thing that became part of my routine was a tea blend I created for myself. While it isn't a treatment or cure, it became a comforting part of my self-care routine during some difficult days. I may share more about it in the future for those who are interested.

This organization is built on the belief that every woman deserves access to knowledgeable care, support, and hope. Whether you're living with endometriosis, supporting someone who is, or simply learning more about the disease, thank you for being here.

Together, we can help make specialist care more accessible and ensure that fewer women have to face this journey alone.

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What has been the biggest challenge in your endometriosis journey—finding a diagnosis, finding a specialist, financial barriers, or something else? I'd love to hear your story.

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05/20/2026

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After 21 years and 16 surgeries, living with severe endometriosis, Lovlin Geczy founded Sisters Helping Sisters, a nonprofit that helps others access the care they need. In our latest blog, Lovlin shares her story and explains why research at the Oregon National Primate Research Center, working toward a non-hormonal, non-surgical treatment, gives her real hope. Endometriosis affects roughly one in ten women. Hormones do not work for everyone, surgery is costly and not always effective, and pain often returns. Better options are urgently needed, and they start with research.
Read Lovlin's story on our blog: https://savescienceoregon.org/blog/patient-advocacy-perspective

05/07/2026
05/07/2026

Endometriosis and coccyx pain! 🪑🩸🦴

GENTLE REMINDER: I’m a husband learning alongside my wife, who lives with stage IV endo, adeno, and fibro. This is not medical advice but my own research and a wish to understand. THANK YOU! 💛

You may notice pain right at the bottom of your spine, around your tailbone, and it can feel so specific that you wonder how endometriosis could possibly be involved.

You might feel it when you sit down, stand up, lean back in a chair, drive, use the toilet, or when a flare makes your whole pelvis feel heavy and irritated.

Sometimes it feels like bruising, sometimes it feels like pressure, and sometimes it feels like a sharp, deep ache that makes you keep shifting because nothing feels comfortable for long.

Coccyx pain is not “just sitting funny” when it keeps coming back, follows your cycle, arrives with pelvic pain, or appears alongside bowel, bladder, hip, back, or leg symptoms.

Endometriosis does not have to sit directly on the tailbone to make the tailbone area hurt. Pain can be referred, which means it can be felt in one place even when the irritation begins somewhere nearby.

Your pelvis is not a collection of separate parts. Your bowel, bladder, pelvic floor, ligaments, nerves, lower back, and tailbone area all share space and communication.

So if your pelvis is inflamed, tense, guarded, or irritated, your coccyx can become part of the pain story.

You may notice coccyx pain with endometriosis because of:

• pelvic floor muscles tightening around pain
• uterosacral ligament irritation
• deep pelvic inflammation
• adhesions or scar tissue changing how tissues move
• bowel pressure, constipation, or painful bowel movements
• nerve sensitivity around the sacrum and pelvis
• sitting differently to protect your abdomen
• clenching your glutes without realising it

Your body might be trying to tell you, “I am holding tension in places you cannot easily see.”

One thing you may not realise is that chronic pelvic pain can change posture and movement.

If your belly hurts, you may curl forward. If your pelvis hurts, you may sit off to one side. If your bowel hurts, you may tense before going to the toilet. If you are afraid of pain, your muscles may brace before pain even arrives.

This does not mean you caused it, that you sat wrong, moved wrong, or failed to exercise enough. Your body has been adapting to pain, and adaptation is not failure. It is survival.

Here is what can help...

Start by noticing the pattern, meaning:

• Does the coccyx pain come before your period, during bleeding, around ovulation, after bowel movements, after sitting, after driving, or after intimacy?
• Does it ease when you lie on your side?
• Does heat help?
• Does walking help or make it worse?

These details can help you explain it clearly to a clinician.

Try reducing direct pressure.

My wife uses a coccyx cushion with a cut-out at the back. It may help some, but not everyone likes the same shape. You can also try sitting with both feet supported, avoiding slumping into your tailbone, and changing position before the pain becomes unbearable. Waiting until your body screams is not the only valid time to move.

One small thing you can try today is a “sitting reset.”

Set a gentle reminder to stand, breathe, and soften your glutes every 30 to 45 minutes if that is possible for you. Not a workout. Not a demand. Just a small interruption to the pressure and bracing.

You can also check whether you are clenching.

Many with pelvic pain hold their pelvic floor, bum, belly, jaw, or shoulders without noticing. Right now, if it feels safe, see if your jaw, shoulders, glutes, or belly are gripping. Then soften one area by just a tiny amount.

If bowel symptoms are part of the picture, do not ignore them.

Constipation, straining, re**al pressure, painful bowel movements, or period-related bowel pain can all increase pressure around the pelvis and tailbone. You deserve support, not embarrassment.

Pelvic floor physiotherapy may also be worth considering if you can access it. Not because this is “just muscle pain,” but because muscles often become involved when endo keeps irritating the pelvis.

And please speak with a qualified health professional if your coccyx pain is new, severe, getting worse, linked with trauma, fever, numbness, leg weakness, loss of bladder or bowel control, or anything that feels worrying. You should never be expected to self-manage red flags.

Pain in a strange place is still real pain. You do not have to make it sound dramatic to deserve care or explain it perfectly to be believed. You deserve to understand what is happening in your body.

Save this if sitting, driving, or toilet pain has become part of your endometriosis story, and share it with a woman who keeps being told her pain is “probably nothing.”

If your tailbone pain has made you feel dismissed or confused, my FREE 130+ pages eBook “You Did Nothing To Deserve This!” on endometriosis validation may be a comforting place to start. Tap the link in my profile/bio to get it. The paperback is also on Amazon if you type “endometriosis validation” into Amazon’s search tab.

Lucjan 🎗

Good for her!!
05/01/2026

Good for her!!

Cece Worley was refused accommodations in her workplace for symptoms of endometriosis, a common reproductive condition affecting 1 in 10 women.

I’m going to be really honest for a minute…I need your help.Because of the news story I was recently part of, a door ope...
04/27/2026

I’m going to be really honest for a minute…

I need your help.

Because of the news story I was recently part of, a door opened that I never expected—and it’s leading to something that could truly make a difference for those of us living with endometriosis.

I’m not ready to share all the details just yet, but I will be soon. I’m working on a blog post where I can explain everything more clearly.

Right now, what I *can* ask is this: please take a moment to read and share this article.

https://www.opb.org/article/2022/04/29/nanotechnology-may-point-to-a-future-treatment-for-a-common-gynecological-condition/

The more people we reach, the more impact we can have when the next step comes. I truly believe this matters—not just for me, but for all of us who have been fighting to be seen and heard.

If you’re standing with me on this, drop a 💛 so I know we’re in this together.

I wouldn’t ask if it wasn’t important.

Thank you for showing up, for me and for this community. From the bottom of my heart… thank you. 💛

Scientists at Oregon State University and Oregon Health and Science University are using nanotechnology to develop a possible future technique to treat endometriosis without surgery.

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04/25/2026

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Pullman, Wash. — Newly published findings at Washington State University are helping explain why endometriosis pain can continue long after surgeries and other treatments.

Big things happening for the endometriosis community!! This is one thing and I just asked due to this to help with anoth...
04/24/2026

Big things happening for the endometriosis community!! This is one thing and I just asked due to this to help with another thing for more Endo research!!! Source: NonStop Local KHQ

Pullman, Wash. — Newly published findings at Washington State University are helping explain why endometriosis pain can continue long after surgeries and other treatments.

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Boone Avenue
Spokane Valley, WA
99206

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