Relapsing Polychondritis Foundation

Relapsing Polychondritis Foundation We are raising awareness of relapsing polychondritis (RP) and fueling autoimmune disease research. The cause of RP is unknown and there is no cure for RP.
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RP affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain. Relapsing polychondritis (RP) is extremely difficult to diagnose. There is no available blood test to make the diagnosis. The diagnosis is based on clinical symptoms and signs that fit the pattern consistent with RP. If RP is not diagnosed earl

y and treated effectively, there can be irreversible damage and long term complications. For more information, visit https://bit.ly/RP_Poster.

05/20/2026
05/20/2026

New Clinical Trial Opportunity for the RP Community.The Relapsing Polychondritis Foundation is proud to support an impor...
05/07/2026

New Clinical Trial Opportunity for the RP Community.

The Relapsing Polychondritis Foundation is proud to support an important clinical trial through Penn Medicine’s Relapsing Polychondritis Program.
This study, called PROSPECT, is focused on understanding the effectiveness of commonly used immunomodulatory medications for adults living with mild to moderately active Relapsing Polychondritis (RP).
Clinical trial participation helps advance research, improve treatment options, and bring hope to the RP community.
If you are interested in learning more about this study, please email:
[email protected]

04/19/2026

Jane’s light lives on through her son, Thomas, and his friends driving a future of earlier diagnoses, stronger care, and renewed hope for the RP community.
PROGRESS to learn more and support Tom’s race.

04/17/2026

Turning awareness into action.

The RP Foundation leads the effort to advance research, awareness and education for Relapsing Polychondritis.
Race for RP helps fuel that mission - one story, one partnership, one race at a time.


04/11/2026

Thomas‘s mother, Jane Bowles, battled RP for eight years and believed deeply in better information and care for patients. In her honor, Thomas and seven friends created Prague for progress to support RP and autoimmune disease research. Comment “PROGRESS” to learn more and support Tom’s race.

04/02/2026

Grateful to Thomas for reaching out to the RP Foundation and sharing how his mother’s light continues to inspire our collective mission: advancing research, catalyzing hope, and changing outcomes for families everywhere.

03/27/2026

Thomas‘s mother, Jane Bowles, battled RP for eight years and believed deeply in better information and care for patients. In her honor, Thomas and seven friends created Prague for progress to support RP and autoimmune disease research.

02/28/2026

Today, February 28, is Rare Disease Day. At the Relapsing Polychondritis Foundation, we stand with patients, caregivers, and researchers working toward better understanding, better care, and ultimately a cure. Rare may be the diagnosis, but no one should face it alone. Log onto polychondrtis.org to learn more or to donate.

02/27/2026

Tomorrow, February 28, we recognize Rare Disease Day. For the relapsing polychondritis community, visibility matters. Awareness helps shorten the path to diagnosis, strengthens research efforts, and brings hope to patients and families navigating a rare and complex disease. Learn more at polychondritis.org.

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