Relapsing Polychondritis Foundation

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Relapsing Polychondritis Foundation We are raising awareness of relapsing polychondritis (RP) and fueling autoimmune disease research. The cause of RP is unknown and there is no cure for RP.
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RP affects multiple organs, particularly cartilaginous structures such as the ears, nose, airways and joints as well as eyes, skin, heart valves and brain. Relapsing polychondritis (RP) is extremely difficult to diagnose. There is no available blood test to make the diagnosis. The diagnosis is based on clinical symptoms and signs that fit the pattern consistent with RP. If RP is not diagnosed early and treated effectively, there can be irreversible damage and long term complications. For more information, visit https://bit.ly/RP_Poster.

10/02/2026

Thank you, Pam, for sharing your story. Learning how the work of the Relapsing Polychondritis Foundation and investments in RP-focused research are helping ease your journey reminds us why this work matters.
Every step forward in research brings us closer to better treatments, better support, and more hope for patients and families affected by RP. #

09/08/2026

Support Jon and the many other warriors walking for RP awareness and research at raceforrp.org!

IF you have already signed up, don’t forget to ask your friends and family to support you by sharing your fundraising link with them via email or in your social media.

Where there is research, there is hope.

09/06/2026

Comment “warrior” to register or donate today.

IF you have already signed up, don’t forget to ask your friends and family to support you by sharing your fundraising link with them via email or in your social media.

Where there is research, there is hope.

Remember, comment “warrior” to register or donate today.

You can be a Warrior for Relapsing Polychondritis research! Walk any time between September 7 and September 12, 2026! ht...
08/20/2026

You can be a Warrior for Relapsing Polychondritis research! Walk any time between September 7 and September 12, 2026! https://give.polychondritis.org/event/2026-rp-warrior-walk/e830401
How you participate is up to you! Walk, jog, or run on any date between September 7 and September 12 at any location you choose! You can walk in your neighborhood, at a park, or even on a treadmill! It is completely your decision. You can participate as an individual fundraiser or create your own team. Simply click below to form your team or to begin your individual campaign. Then lace up your shoes, promote your participation, and get ready to walk. Remember- where there’s research, there’s hope!

07/17/2026

💙✨ Thank you, Darin Harvey and the Brian and Phyllis Harvey Foundation, for supporting the RP Foundation and helping raise awareness of Relapsing Polychondritis.
Together, we’re bringing visibility, support, and hope to the RP community. 🙌
 

05/20/2026
05/20/2026

New Clinical Trial Opportunity for the RP Community.The Relapsing Polychondritis Foundation is proud to support an impor...
05/07/2026

New Clinical Trial Opportunity for the RP Community.

The Relapsing Polychondritis Foundation is proud to support an important clinical trial through Penn Medicine’s Relapsing Polychondritis Program.
This study, called PROSPECT, is focused on understanding the effectiveness of commonly used immunomodulatory medications for adults living with mild to moderately active Relapsing Polychondritis (RP).
Clinical trial participation helps advance research, improve treatment options, and bring hope to the RP community.
If you are interested in learning more about this study, please email:
[email protected]

04/19/2026

Jane’s light lives on through her son, Thomas, and his friends driving a future of earlier diagnoses, stronger care, and renewed hope for the RP community.
PROGRESS to learn more and support Tom’s race.

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Speedway, IN
46224

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