The AHC Foundation

08/26/2026

Coming to Houston for the 2027 AHC Family Meeting? There’s plenty to enjoy just minutes from our hotel!

🌳 Stroll along The Woodlands Waterway
🛍️ Shop, dine and wander through Market Street
💦 Let the kids cool off at the splash pad
🍽️ Grab lunch, dinner or a drink on one of the many outdoor patios
☀️ Or simply take a little time to enjoy the area between Family Meeting activities

Whether you’re extending your stay or just have a few free hours, The Woodlands makes it easy to add a little fun to your Family Meeting trip.

Learn more:
🔗 The Woodlands: https://www.visitthewoodlands.com/
🔗 Market Street: https://www.shopatmarketstreet.com/

📍 Houston, Texas
📅 June 23–26, 2027

Bigger in Texas. Stronger Together.

08/21/2026

Back to school means making sure your child’s care team is prepared, too. 🎒

For children with AHC who experience seizures, having a Seizure Action Plan on file gives teachers, nurses and school staff clear guidance on what to do, when to give rescue medication, and when to seek emergency help.

The Epilepsy Alliance America offers downloadable Seizure Action Plan templates to help families start the school year prepared.

A little planning now can make a big difference when every second matters.

🔗 Download templates: epilepsyallianceamerica.org

08/20/2026

💬 What Our Community Is Saying

“Your support to our community and information sharing is so valuable and helps us feel like we are not alone.” — Brenda Stedman, South Wales, UK

This is exactly why we created The AHC Foundation Educational Series — to bring our global community information, practical resources, and the support of a community that understands. 💜

If you haven’t had a chance to watch Alice Belgrade-Moss’s “Changing the Channel: Behavior & AHC,” you can catch the recording on our website or watch it here on social media.

▶️ 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝗰𝗼𝗺𝗽𝗹𝗲𝘁𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗿𝗶𝗴𝗵𝘁 𝗵𝗲𝗿𝗲, https://tinyurl.com/kn65pfpd, or visit our website to access the recording and other webinars in the AHC Foundation Educational Series.

As always, please share with other AHC families who may find it helpful.

08/20/2026

08/19/2026

🎥 𝗡𝗼𝘄 𝗮𝘃𝗮𝗶𝗹𝗮𝗯𝗹𝗲 𝘁𝗼 𝘄𝗮𝘁𝗰𝗵!

Our AHC Foundation Educational Series webinar, “Changing the Channel: Behavior & AHC,” featuring Alice Belgrade-Moss, MSEd., LCPC, BCBA, is now available to watch in full.

▶️ 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝗰𝗼𝗺𝗽𝗹𝗲𝘁𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗿𝗶𝗴𝗵𝘁 𝗵𝗲𝗿𝗲, https://tinyurl.com/kn65pfpd, or visit our website to access the recording and other webinars in the AHC Foundation Educational Series.

Alice shares valuable insight into behavior and AHC, with practical information for families, caregivers, and the AHC community.

Please share this resource with others who may benefit!

08/18/2026

💜 Exciting news—our AHC Family is growing!

We’re expanding eligibility for the AHC Support Group to welcome not only parents, but also legal guardians, family members, and caregivers of someone living with Alternating Hemiplegia of Childhood (AHC).

We know that AHC affects the entire family—and the people who love, support, and care for someone with AHC need connection and community, too.

Our Support Group is a caring space to:

💜 Connect with others who “get it”
💬 Share challenges, joys, experiences, and support
💡 Explore research and medical topics together
🌎 Build connections with AHC families around the world

Whether you’re a parent, legal guardian, grandparent, sibling, extended family member, or caregiver, there’s a place for you in our AHC Family.

No one has to walk this journey alone.
👉 www.facebook.com/groups/1436035426663331/

08/17/2026

🎥 𝗡𝗼𝘄 𝗮𝘃𝗮𝗶𝗹𝗮𝗯𝗹𝗲 𝘁𝗼 𝘄𝗮𝘁𝗰𝗵!

Our AHC Foundation Educational Series webinar featuring 𝗗𝗿. 𝗦𝘂𝘇𝗮𝗻𝗻𝗲 𝗗𝗲𝗕𝗿𝗼𝘀𝘀𝗲, focused on 𝗱𝗲𝗰𝗼𝗱𝗶𝗻𝗴 𝘁𝗵𝗲 𝗴𝗲𝗻𝗲𝘁𝗶𝗰𝘀 𝗼𝗳 𝗔𝗛𝗖, is now available to watch in full.

🧬 𝗪𝗮𝘁𝗰𝗵 𝘁𝗵𝗲 𝗰𝗼𝗺𝗽𝗹𝗲𝘁𝗲 𝘄𝗲𝗯𝗶𝗻𝗮𝗿 𝗿𝗶𝗴𝗵𝘁 𝗵𝗲𝗿𝗲, https://tinyurl.com/58nz8wht, or visit our website to access the recording and other webinars in the AHC Foundation Educational Series.

Dr. DeBrosse helps break down the genetics behind AHC and what our growing understanding of the condition means for families and the future of AHC research.

Whether you joined us live or are watching for the first time, we hope you’ll take advantage of this important educational resource.

Please share it with others in the AHC community who may benefit!

08/16/2026

Self-Care Sunday 💙 Small Moments Count

Self-care doesn’t always mean taking a day off or finding hours of free time. Sometimes, it’s the smallest moments that help us recharge.

☀️ Stepping outside for a few minutes
☕ Enjoying something you love
💬 Connecting with someone who understands
😴 Resting when you can
💙 Finding one small moment of joy

For families and caregivers in the AHC community, we know that caring for yourself can sometimes fall to the bottom of the list. Today, we hope you can find just one small moment that’s yours.

What’s one little thing bringing you joy today? Tell us in the comments. 💙

08/13/2026

𝗪𝗲'𝗿𝗲 𝗹𝗶𝘃𝗲!
It's not too late to join us!

𝗖𝗵𝗮𝗻𝗴𝗶𝗻𝗴 𝘁𝗵𝗲 𝗖𝗵𝗮𝗻𝗻𝗲𝗹: 𝗕𝗲𝗵𝗮𝘃𝗶𝗼𝗿 & 𝗔𝗛𝗖
🎙️ Alice Belgrade-Moss
🕖 Happening now!

https://tinyurl.com/m7dzhcd4

08/13/2026

TONIGHT! 💙 Behavior & AHC

Don't wait until behavior becomes a challenge to start learning about it.

Join Alice Belgrade-Moss tonight for an important conversation about Behavior & AHC—what families should know, what to watch for, and strategies that can help you feel more prepared.

Even if behavior isn't a concern for your child right now, this is information worth having before you need it.

📅 Thursday, August 13
⏰ 7:00 PM EDT

Learn now. Be prepared later.
There's still time to register—join us tonight!

https://tinyurl.com/m7dzhcd4