The Last Ride Project

12/24/2021

MERRY CHRISTMAS

12/18/2021

Thanks to the hard work of ALS advocates, Congress has passed the Accelerating Access to Critical Therapies (ACT) for ALS Act after a unanimous vote in the Senate. The bill previously passed in the House 423-2. The bill is expected to be signed into law b

12/01/2021

https://alsnewstoday.com/columns/2021/12/01/speech-generating-devices-let-eyes-do-walking/

"I been one poor correspondent, and I been too, too hard to find But it doesn't mean you ain't been on my mind." In retrospect, I fear that much of my life has resembled that stanza from the band America’s second Billboard No. 1 hit, “Sister Golden Hair.” Too often, the contact and currency th...

11/05/2021

Every 90 minutes someone is diagnosed with – or dies from – ALS.This fatal disease can strike anyone at any time. It takes away the freedom to walk, to talk, to run and dance. To laugh. To hug. To eat. To breathe. We fight to give that independence back – and help empower people to live life t...

10/26/2021

A signaling protein called neurturin promotes the development of muscles with greater endurance, leading to better exercise performance and coordination, according to a new mouse study. The results suggest that therapeutic approaches using neurturin — for example, using a gene therapy that...

10/22/2021

A detailed atlas of the various types of cells that populate the motor cortex, the brain region that controls voluntary movement and is damaged in people with amyotrophic lateral sclerosis (ALS), was created by a worldwide consortium of researchers. The long-term goal of the group, which...

10/06/2021

https://alsnewstoday.com/columns/2019/10/02/outside-box-thinking-cure-als-new-research-reversal/

*** Note: ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician...

08/04/2021

https://alsnewstoday.com/news-posts/2021/08/04/advocates-lobby-us-congress-during-virtual-rare-disease-week-2021/?utm_source=ALS&utm_campaign=040c180a7d-ALS_ENL_3.0_US&utm_medium=email&utm_term=0_0593028b75-040c180a7d-73803269

More than 600 people participated in the 10th annual Rare Disease Week on Capitol Hill 2021, held virtually July 14–22, to advocate for the rare disease community. Hosted by the EveryLife Foundation’s Rare Disease Legislative Advocates (RDLA) program, the event brings together community members....

06/25/2021

Cedars-Sinai Medical Center, in California, has been awarded an $11.99 million grant to support a clinical trial that will test specifically engineered neural progenitor cells as a potential therapy for amyotrophic lateral sclerosis (ALS). The work, funded by the California Institute for...

06/20/2021

https://www.espn.com/video/clip?id=31670754&fbclid=IwAR1Gz5q5YXe8BlG6-qaLVmJlfLh1is2YD-Qknw5lKfHSl_iBAiwy9vJEyAY

Steve Gleason has surpassed his life expectancy after battling ALS, and his son Rivers tells his dad how this has inspired him to be resilient.