The title, “Working On Walking (WOW)”, was coined by a woman named Alyssa Silva, who has SMA I, when she was only ten years old. As a little girl, Alyssa would have lemonade stands to raise money for Spinal Muscular Atrophy and had always dreamed of raising $100 for this cause. Selling lemonade at 50 cents a cup wasn't the most lucrative option; so, with a goal in mind and an incredible support sy
stem by her side, Alyssa decided to branch out and begin WOW. As a nonprofit organization dedicated to supporting all efforts related to Spinal Muscular Atrophy, we aim to continuously provide the SMA community with funds, awareness, and hope which all play an integral role on our journey to our ultimate goal—a cure. Working On Walking will provide information on this debilitating disease, as well as offer firsthand experience on what living with SMA is like. And, in our quest to pave the way towards a cure, we will continuously raise funds for SMA research through fundraisers, selling items, and online donations. Our efforts under this organization will be done with love and the faith knowing that we can conquer this disease.
