Support For Siblings of CHD

04/17/2018

Aoife and both her sisters (and us of course) just returned from Orlando for Aoife's Make a wish trip. We all had a great time. I'll post pics later. If you get a chance to do a make a wish, choose Disneyworld, there is a make a wish village there (give kids the world) and they are equally awesome to siblings as well as the make a wish lid. More on that later as well. 🖤💗💞 sorry I haven't posted in a while

02/06/2016

Please help my niece Dee get a headstone for her baby. It has hurt her deeply to lose her baby, and the fact that he doesn't have a headstone for him made her contemplate skipping Christmas to get him one, but she has other children to think about.. Please donate what you can even $1 or $5 adds up. She's a great mom and this would be a huge weight off her shoulders. Please donate, please share.

Seryn Marcel Hernandez was born December 10th of 2008. Less than a month later he died of group b strep/meningitis. Dee has been unable to afford a headstone for her beautiful baby boy. Dee has four other children: Zaida aged 10, Orion 8, Jeriah 5, and Addison who is 2. Dee is currently attending...

10/08/2015

Any questions or specific issues I can help you with? As away! We are here to help!

06/13/2015

I have been having a rough time at it for a while now. My middle child (who was homeschooled til this year) began public school and made a ton of friends. While I'm happy for her, it is causing a lot of stress and fighting with her younger sibling (6 years old. Has a CHD) the middle kid, we'll call her C, caters to her friends and leaves her sister, we'll call her A, out a lot. And sometimes the friends are mean to A as well. C has many sleep overs, I try to get A's friends to spend the night at the same time but that hasn't been happening lately. I have had many talks with both of them as well as the friends, but it's always the same. Any suggestions to make these two get along on sleepover nights at least? In case you can't tell, this is a sleepover night. I lost my shir and yelled at them both, I apologized and didn't do it in front of the friend. But I can't take them fighting call the time. Sorry for rant and I'll try to better explain things in the morning. Suggestions are appreciated. Love & light to you all.

05/26/2015

Anxiety can run high in children whose siblings have something such as a heart defect.

Anxiety is a normal response to something dangerous or stressful. It becomes a problem when it shows up at unexpected times and takes a particularly firm hold.

05/25/2015

This is a very serious issue to me. I love that I was given an opportunity to help my family, and I don't think there is anything wrong with siblings taking an active role in helping to care for their disabled siblings. - Nadia Skye Nolan

I realized a serious problem with our culture lately, and I think it especially hurts families with one or more disabled children. Growing up I always helped my Mother. I helped her with the cookin...

05/19/2015

My name is Julee. I have 3 children, Nadia who is 22, Caoilfhionn (Keel-in) who is almost 12, and Aoife (Ee-fa) who is 6. Aoife is my CHD warrior, she has had 2 open heart surgeries (one at 2 days old and another at 4 months old) as well as many other procedures. We originally thought Aoife was our only special needs kid, but in the past few years Nadia has had many seizures. We do not know what is causing them, bu they have added to the sibling stress. Caoilfhionn is the most affected by all of this, mostly affected by Aoife's heart condition. It has been a struggle over the years to "fix" the problems, and of course it is not 100% fixed. I'd love to hear about your kids and stories! Feel free to share!

05/19/2015

Greetings and Merry Meet to all of our new members! We have recently surpassed 500 likes! This tells me that a lot of people are having trouble with sibling children, and while I am pleased to have so many likes, it reminds me that there is a serious need for this page :( Please take a moment to introduce yourselves here, and let us know what problems your family is having. Feel free to ask any questions, and remember to check out the note page here for lots of useful information!

04/30/2015

If you have some spare cash take a moment to help a family in need. Every dollar counts, and you could really make a difference in someones life.

A few days ago, my mother, Cathy Chavez, found out she needed heart surgery to fix a coronary blockage. We were hoping it could be fixed with a minimally invasive stint and catheterization, but it turns out she is being flown to Albuquerque as I write this for emergency open-chest heart surgery....

04/28/2015

Is there anyone in this group who is an adult sibling to an adult living with a CHD? If so, please share your experiences. :) - Nadia Skye Nolan

04/14/2015

I never think of myself as disabled, despite the fact that I have a seizure disorder. With an older sister with neurological problems and a younger sister with a heart problem, I sometimes wonder how to make my middle sister, Caoilfhionn, feel special and loved. Any advice? - Nadia Skye Nolan

04/14/2015

We broke 500 fans! Thank you all for your support, we hope to support you as well.